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Mother of Jibril

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Latest Celiac Disease News & Research:

Everything posted by Mother of Jibril

  1. Mother of Jibril
    The normal function of the immune system is to create antibodies that can get rid of foreign invaders like viruses and bacteria. This is a very important function. People with depressed immune systems (from AIDS, cancer treatment, etc...) are in danger because these viruses and bacteria can get out of control very quickly. When you have an autoimmune...
  2. Mother of Jibril

    ARCHIVED PCOS And Celiac

    Mother of Jibril replied to Eliza13's topic in Doctors

    I would trust your body over your doctor!! Personally, I have the opposite reaction to gluten (and corn)... it makes my periods long and heavy. Before I stopped eating gluten I had been having painful abdominal cramps, bloating, and continuous spotting for about six months I went to my OB/GYNs office about it... once they ruled out infection they were...
  3. Mother of Jibril
    It would be a good idea to do this if you haven't already. TSH is inexpensive and easy to check (just a blood test). The normal range is 0.3 to 3.0. If your number is below that (let's say 0.1) that means you have hyperthyroidism. Graves' disease is a condition where your thyroid starts producing too many hormones, which speeds up your metabolism, heart...
  4. Mother of Jibril
    The problem with the "candida diet" is that it's very restrictive. No processed foods, no sugar, very little fruit, very little starch, no yeasty/moldy foods (mushrooms, vinegar, peanut butter, etc...), and no grains. Not just no gluten... no grains at all. Whew!! You need to have some serious motivation to stick with it. What is your motivation...
  5. Mother of Jibril
    Some doctors in the US will order genetic testing (so your insurance will pay for it), but it's not very common. I had to order and pay for the test myself. I don't have an official diagnosis of celiac disease, but I do have the DQ8 gene, a couple of other autoimmune disorders, and the diet has REALLY helped. That's enough to keep me gluten-free! I...
  6. Mother of Jibril
    Have you ever looked at the symptoms of lupus? One of them is a "butterfly-shaped" rash over the cheeks and nose. People with lupus tend to be very sensitive to the sun... so sensitive that you could get a sunburn just from sitting by a sunny window. It's also associated with arthritis, fatigue, and a low-grade fever (although the symptoms can really...
  7. Mother of Jibril
    That's why I keep my baking soda sealed in plastic. But you're right. I could picture someone taking the baking soda out of their fridge... smelling like old leftovers... and using a bit of that for the test Ew!!!
  8. Mother of Jibril
    Welcome to the group! A regular doctor can do the celiac panel... it's just a blood test. The problem is that false negatives are pretty common, especially in small children. Also, even if you have the "celiac genes" and a positive response to the diet, you're unlikely to get a positive result once you've been gluten-free for three months. My...
  9. Mother of Jibril
    I agree that the "baking soda" test is rather crude But let's think about chemistry for a second... Sodium bicarbonate shouldn't get "old." It's not an organic substance. When it reacts with acid it gives off water and carbon dioxide gas (which is what causes the burping)... so it is possible that results could vary based on physiology (such as...
  10. Mother of Jibril
    If your child does have celiac disease, you also need to stop eating gluten if you're going to keep breastfeeding. The proteins can pass through your breastmilk. Even if you have your child tested and it comes back negative, don't be afraid to give the gluten-free diet a try! It won't hurt anything and it might just help both of you.
  11. Mother of Jibril
    Here's a general article about hypochlorhydria and achlorhydria with some links to peer-reviewed medical literature... Open Original Shared Link Here's a description of the baking soda test... Open Original Shared Link There's also another, more scientific way to test the level of acid in your stomach. It's called the Heidelberg capsule test...
  12. Mother of Jibril
    Here's the baking soda test... Do this right away in the morning before you eat or drink anything! Put 1/8 tsp. of baking soda in a cup of water (about six ounces). Drink and start keeping track of the time. If you burp in the first 2-3 minutes you have plenty of stomach acid. If five minutes go by and you still haven't burped then you don't...
  13. Mother of Jibril
    That is highly ironic Interesting that your university tries to arrange things in advance... mine relies on the students to deliver letters to professors after the term starts. Not a very good system. I bet you could do a lot of good by talking to the instructor in person. You don't have to go into huge detail (no more than you feel comfortable...
  14. Mother of Jibril
    Kinnikinnic makes gluten-free doughnuts. Maybe you can order them online if you can't find them in Australia. As far as the oysters go... are they raw? Gluten-wise, they shouldn't be a problem! You only have to worry about gluten if you're eating processed food or the food is being prepared in the same area as gluten foods (on a shared grill, for example...
  15. Mother of Jibril
    I recently had a biopsy for DH, which came back negative. The pathologist called it a "spongiotic psoriasiform dermatitis"... which basically means, "We can't tell you exactly what it IS, but we can tell you a whole of things it's NOT." It's not DH. It's not scabies (or some other insect). It's not true psoriasis. My dermatologist called it, "acute...
  16. Mother of Jibril
    Hey num1habsfan, Being a professor myself... I want to give you a little different perspective. I don't know what your major is, but in most departments... professors work a LOT of hours and are not paid very well. Especially if you're a graduate student or a lecturer. I'm teaching almost 200 students this semester (I work at a big state university...
  17. Mother of Jibril
    It sounds like you're not making enough digestive enzymes. The digestive process actually starts in your mouth (with saliva), continues in your stomach (with stomach acid), and then finishes in your intestines with some help from your gallbladder and liver. If any of these organs are not working correctly you can have problems with malabsorption. It...
  18. Mother of Jibril
    I'm sorry you're going through such a hard time! It's possible that this is not related to celiac disease at all. I think you could benefit from making an appointment with a good gynecologist. My periods were getting progressively worse through my 20s... very heavy, lasting from 7-10 days (normal is 6-8), irregular (normal is every four weeks...
  19. Mother of Jibril
    I've also been amazed at how many things from my childhood suddenly have an explanation I don't know what country you live in, but in the US you only get about five minutes per doctor's appointment... not enough time to go through your medical history. It's best just to be direct and ask for the celiac panel. It's easy (a blood test) and not very...
  20. Mother of Jibril
    I'm so sorry about your daughter! I don't know about other countries, but in the US you can definitely refuse to have your child immunized (or do it on a different schedule).
  21. Mother of Jibril
    I've never seen a brand of soy milk that has casein... I have to be careful about it because my (breastfed) son is very sensitive to casein. He's fine with soy. Have you noticed a particular brand that does have casein?
  22. Mother of Jibril
    Negative blood tests are pretty common, even for people who have the right genes and symptoms of the disorder. In fact, I've read posts from other people who had a negative blood test and a positive result on the endoscopy. Also... I know how much of a relief it can be to have a firm diagnosis, but you could go gluten-free on your own and see how you...
  23. Mother of Jibril
    Do you have the reference ranges for total IgA? Your number seems a bit low... if it is, then you could be half-dead with celiac and never get a positive blood test. Have you tried the gluten-free diet yet? How do you feel?
  24. Mother of Jibril
    Another good test to have before conceiving is TSH (for thyroid hormones). Hypothyroidism can cause pregnancy loss and lower the IQ of your baby It's often missed because the symptoms seem like normal pregnancy symptoms... fatigue, constipation, anxiety, etc... Thyroid disorders are also a common cause of postpartum depression. Some doctors are...
  25. Mother of Jibril
    My son was exclusively breastfed for the first six months of his life, yet he still developed symptoms of a severe intolerance to casein... just from the proteins getting through my breastmilk! Once I cut dairy out of my diet he went back to normal. Whether there's a history of celiac disease in your family or not, nobody should be fed solid foods until...
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