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Mother of Jibril

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Everything posted by Mother of Jibril

  1. Mother of Jibril
    Welcome to the group, however long you stay I went on a gluten-free diet after I was diagnosed with autoimmune hypothyroidism. For me, the diet (along with some supplements like vitamin D) have made a HUGE difference. Two years ago I went through a severe depression and had to take a medical leave from my job for three months... these days I don't...
  2. Mother of Jibril
    I agree with this 100%. Plus... isn't the range for ttG set pretty high so only a positive result corresponds with obvious villi damage? Also... the realm of autoimmune disorders is such a new area of medicine. I wouldn't be surprised if there are LOTS of antigens just waiting to be discovered.
  3. Mother of Jibril
    My pleasure! I know how hard it is to lose a child. I'm just glad I had some useful information for you!
  4. Mother of Jibril
    How awful! Have you ever tried a lukewarm bath? My son was running a temperature as high as 104 degrees this summer (even on Tylenol)... he ended up having meningitis. The baths really helped bring his fever down for a while. Just make sure the water is not too cold, otherwise his fever will spike again from the shivering.
  5. Mother of Jibril
    Welcome to the group! I know the feeling... when I was diagnosed with autoimmune hypothyroidism, SO MANY things started to make sense. It's not that I wanted to have a chronic disorder, but it gave me some answers to my questions. Since I've changed my diet and added some supplements I feel so much better! I still have a ways to go, but I'm amazed at...
  6. Mother of Jibril
    My son is a little younger (ten months), but his situation is the same. Doing great on a gluten-free, casein-free, corn-free diet... but his diapers often have undigested food. At first we thought it was due to his lack of teeth (his first one is just starting to poke through). But... even if I run everything through a food mill, some things (like...
  7. Mother of Jibril
    Absolutely!!!! I'm so glad you asked For the first twelve weeks you can use progesterone suppositories. Kind of gross... but it definitely helps. After that, the placenta usually kicks in and starts producing enough progesterone on its own. BUT... if this doesn't happen, you can start getting shots of progesterone. I've heard of women doing that...
  8. Mother of Jibril
    People do sometimes mention Lactaid. The problem is, if you're intolerant to casein (the protein in cow's milk dairy products), then Lactaid won't help. It only helps with lactose intolerance. Casein does terrible things to my son... before we figured out what the problem was, he was having green diarrhea with streaks of blood, projectile vomiting...
  9. Mother of Jibril
    Pure henna powder should not have any gluten (it's made from dried leaves), but who knows what kind of additives it could have! Where do you usually buy it? I'm sure on the Internet you could find a source of pure henna powder if you can't find one locally.
  10. Mother of Jibril
    Welcome to the group! The blood test sounds like an IgG delayed "food allergy" test. Some people find them helpful to point them in the direction of problem foods... but the results can change depending on the health of your immune system, intestines, and what foods you eat the most. In no way can it diagnose celiac disease. Since you've been off gluten...
  11. Mother of Jibril
    Here are some great suggestions that people gave me on another thread about corn... https://www.celiac.com/gluten-free/index.php?showtopic=53613 I agree with you... getting rid of corn is more difficult than gluten. For one thing, it's not considered a "major allergen," so you really have to be knowledgable about labels. Also, corn is in something...
  12. Mother of Jibril
    Another high-calorie, nutrient-dense food is coconut. It makes a wonderful cooking oil. You can also use coconut milk to make smoothies instead of dairy. Depending on how sweet you like it, you might want to add a little bit of stevia, honey, real maple syrup, agave nectar, etc... If you can tolerate gluten-free baked goods like muffins you could even...
  13. Mother of Jibril
    Another person mentioned eye twitches a few days ago... mine stopped doing that! I used to notice it in my upper eyelids when I was watching TV because it would interfere with my vision. Actually, I haven't noticed any muscle twitches either since I went gluten-free.
  14. Mother of Jibril
    A regular PCP can do the blood test. A GI would only be needed for an endoscopy. A celiac panel should include anti-gliaden, EMA, TtG, and total IgA. The total IgA is very important... if the number is too low, you won't be able to get a positive test even if you do have celiac disease.
  15. Mother of Jibril
    Good question! 1. When I get glutened, the first thing I notice is that I feel anxious and irritated at everyone around me. Then I get constipated (which causes rectal bleeding), bloated, gassy, and I get an ITCHY rash. It takes at least a week before the rash begins to dry up... even longer for the bumps to fade away. 2. If I couldn't take care of...
  16. Mother of Jibril
    There's some debate over whether you can outgrow allergies. Severe IgE allergies (the kind that can be fatal) are considered to be life-long. Celiac disease is a life-long intolerance to gluten. In some cases people do improve and are able to tolerate foods again. You just have to wait and see. I'm sure it is scary, thinking about taking your son...
  17. Mother of Jibril
    Eczema is definitely a sign of allergies and/or intolerances. If my son has even a tiny bit of casein or corn he gets eczema on his face (his legs too if it's bad enough). Some people have had success with IgG testing (the kind you did), but the results can change depending on what kinds of foods you're eating on a regular basis as well as the health...
  18. Mother of Jibril
    Yeah... I watched what she was doing She took two samples... one from a lesion (from a cluster of bumps on my arm) and one from a clear patch of skin right beside it. She even mentioned that the pathologist would be looking for "fluorescence." I've been glutened three times in the last month. Not by eating gluten foods... by not being paranoid...
  19. Mother of Jibril
    My chest gets flushed when I take a hot shower. This is common for people with rosacea. Just like you described, it's not itchy and it goes away in a few hours. The mouth rash could be something else... maybe a true (IgE) allergic reaction. Have you ever had any allergy testing like a skin prick test?
  20. Mother of Jibril
    I've been seeing a new dermatologist since August. I called her office yesterday because I have a rash (which pops up when I get CC) and taking a shower makes it really ITCHY. She prescribed a couple of shampoos for yeast overgrowth on my scalp... which seems to be fine... but my painfully dry skin just can't handle daily showers. I thought she might come...
  21. Mother of Jibril
    I've been taking generic Synthroid (levothyroxine), but I ask the pharmacist about gluten and corn every time and I've never had a problem.
  22. Mother of Jibril
    Raspberry leaf is one of the few substances that's actually recommended for pregnant women (it's supposed to "tone" your uterus and make contractions more efficient). I tried it... I can't really say that I noticed much of a difference... but it's certainly safe to consume as a supplement or tea.
  23. Mother of Jibril
    Exactly... the only two DQA1*05 genes are DQA1*0501 (the allele associated with DQ2.5, one of the main celiac genes) and DQA1*0505 (associated with DQ7.5). That means that your full haplotype is HLA-DQA1*0505:DQB1*0301. It's interesting to know the alpha genes... in some cases, it does make a difference. DQ7.5 is the most likely to cause celiac out of...
  24. Mother of Jibril
    Unfortunately, there's no such thing as an "autoimmunologist," so you have to deal with different doctors for different parts of your son's problem. You could ask a GI about doing an endoscopy to look for damage in your son's intestines... he or she might be able to help resolve the constipation and gluten intolerance issues. A rheumatologist is the...
  25. Mother of Jibril
    It's possible that your son does not have celiac disease (at least not yet), but he's definitely having an autoimmune reaction to wheat. You should absolutely get him on a gluten-free diet! Having a positive ANA at such a young age is NOT good. Sometimes people have a positive ANA without any obvious signs of illness, but that's usually in late middle...
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