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Mother of Jibril

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Everything posted by Mother of Jibril

  1. Mother of Jibril
    My holiday started off pretty badly... It was a 10-hour drive to my parents' house and we arrived at 1:00 in the morning to a house filled with all kinds of off-limits "goodies." Buns, cookies, fudge, ice cream, cheese (Wisconsin is not a good place for the casein-free!). My mom had been interrupted in the middle of a baking project by the arrival of my...
  2. Mother of Jibril
    My CBC was like that too before I stopped eating gluten... my absolute lymphocytes were fine, but my % of lymphocytes was at the high end of normal (out of range at some labs). From what I've read, "relative lymphocytosis" can be caused by: - Being under the age of 2 - Acute viral infection - Connective tissue disorder (Sjogren's, lupus, RA) - Thyrotoxicosis...
  3. Mother of Jibril
    DQ7.5 is the only "non-celiac" gene with a *05 alpha allele. It's not as common to have celiac disease in the absence of DQ2 and DQ8, but it's definitely possible... especially with DQ7.5. Here's what Wikipedia has to say about it: Open Original Shared Link A lot of people think the effects of celiac disease are limited to the digestive...
  4. Mother of Jibril
    Congratulations! That's wonderful news
  5. Mother of Jibril
    Just my personal experience What you described sounds like mucus. I still see that when I get glutened. Before I stopped eating gluten, I also saw little white blobs that looked like corn... only I wasn't eating corn. I assume that was fat. My stool was also greasy and difficult to flush.
  6. Mother of Jibril
    Ice cream! Also, coconuts (the oil is good for cooking, the milk is good in smoothies, Thai food, etc...), seeds, nuts, and nut butters. 1 cup of almonds has over 500 calories. These foods are not only high in calories, but good for you too... lots of trace minerals and antioxidants.
  7. Mother of Jibril
    Hard to tell if sugar is a problem... he doesn't like fruit. I tried bananas again yesterday and he spit them out. He gets a tiny bit of pure maple syrup in (otherwise unsweetened) yogurt. That's honestly it! I've never given him juice or candy. The only processed food I've given him is rice cereal where the only ingredient is rice. I suppose it's...
  8. Mother of Jibril
    In the last five months I've had a CBC done three times. Most of my numbers are looking really GOOD. My liver enzymes are back to normal, I'm no longer borderline anemic, my red and white blood cell counts are within normal ranges (including the different kinds of white cells)... I'm getting pretty good at reading these things The one thing I'm wondering...
  9. Mother of Jibril
    Have you ever had your TSH checked? Autoimmune hypothyroidism is much more common in celiacs than the general population... that could be another cause of your fatigue.
  10. Mother of Jibril
    I know it's a lot of information... A couple of good places to start... www.pecanbread.com and the book, "Breaking the Vicious Cycle" (you'll probably want to buy a copy if you're going to try the diet).
  11. Mother of Jibril
    AliB... you know I agree with you about the SCD. I'm starting it next month (my kids too!). BUT. I'm not sure candida is the only reason people react to certain foods. My son was 100% breastfed, natural birth (no drugs), no antibiotics, I took probiotics while I was pregnant... and yet by the time he was six weeks old he had colic, was projectile vomiting...
  12. Mother of Jibril
    Yes... Vitasoy They also make peppermint hot chocolate.
  13. Mother of Jibril
    A skin test was the first thing I did before trying the gluten-free diet! Nothing showed up. It's not very expensive... definitely worth doing if your rash comes on quickly. Mine takes at least a day to show up.
  14. Mother of Jibril
    I just wanted to add a couple of things about B-12... Vegetarians (and especially vegans) have a hard time getting enough B-12. What is your diet like?Also... to digest meat, your stomach needs to have enough acid and pepsin. If the parietal cells in your stomach have been destroyed by your immune system (pernicious anemia) then you'll probably need...
  15. Mother of Jibril
    My sister is like that too. In college she spent a semester in Ireland. Someone told her that the Irish think peanut butter is weird... so she packed several jars in her suitcase You know... in Southeast Asia and West Africa, people do a lot of interesting things with peanuts. Peanut butter makes a nice addition to soup or tomato sauce. Just add...
  16. Mother of Jibril
    I've been getting itchy little blisters on my hands too. I don't remember that happening before I stopped eating gluten, but then... I was ignoring a lot of things about my body I saw a dermatologist on Wednesday and she did a biopsy for DH. You could also look up "keratosis pilaris" and "dyshidrotic eczema." All of these seem to be caused by food...
  17. Mother of Jibril
    You know... one place where I think researchers could do a lot of good is by testing the kids of people with autoimmune disorders. It would answer some of these "which came first" questions. Plus, the kids would be better off with an early diagnosis. I was definitely noticing the symptoms of hypothyroidism by the time I was a teenager: hair loss, mild...
  18. Mother of Jibril
    ps - Last night I made a pretty convincing substitute for a milk shake - One can of coconut milk (full fat) - 2-3 cups of frozen fruit (I used strawberries and peaches) - A little almond milk to thin it out - A little pure maple syrup to sweeten Give at all a good run through the blender... if you use frozen fruit you don't even need to add...
  19. Mother of Jibril
    Focus on high-quality calories... eggs, coconut milk (coconut oil is great for cooking), olive oil, nuts, seeds, nut butters, avocado, etc... Even if you can tolerate non-gluten grains (like corn, rice, millet, soy), they don't have as many nutrients and your body has to work pretty hard to digest them.
  20. Mother of Jibril
    Wow... that is useful. Basically, it's the scientific explanation for "leaky gut." So... if you can heal the intestines you can undo the trigger that set off your autoimmune disorders. However... my understanding is that some damage cannot be reversed. Once you have Sjogren's syndrome, for example, there's no going back. You can do things to make...
  21. Mother of Jibril
    Welcome to the group! There are plenty of celiacs who would agree with you... lotion, shampoo etc... is no big deal. As long as you don't ingest it But... if you have a rash linked to celiac (like DH), then you would be smart to avoid gluten in any form. Also, people who are really sensitive would have to be very, very cautious about washing their...
  22. Mother of Jibril
    How did your daughter's doctor come up with the diagnosis of gastroparesis? Is it possible that she has hypochlorhydria instead? Check this out: Open Original Shared Link The symptoms are very similar, but you can treat hypochlorhydria without a prescription... you just need to take acid supplements. There's a very simple test for this. Try it...
  23. Mother of Jibril
    Hmmm.... I agree with you that plenty of people with Hashimoto's have celiac and vice versa... and that some people do get better on a gluten-free diet. But I've read about lots of possible triggers for Hashimoto's. Some of them don't even involve the intestines. For example... microchimerism. This is when fetal cells get through the placental barrier...
  24. Mother of Jibril
    Welcome to the group! Unfortunately, there's a lot to learn about autoimmune disorders. Even if you have the genes (which are still being identified), it takes some kind of trigger before you get the disorder. There are lots of possibilities... hormonal changes (pregnancy is a big one), physical trauma, severe stress, exposure to viruses like Epstein...
  25. Mother of Jibril
    I decided to stop drinking coffee because it upsets my stomach and makes me feel anxious... but that's just me. You don't have to give up everything you love It's much better to be strict about gluten and dairy.
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