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Mother of Jibril

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Latest Celiac Disease News & Research:

Everything posted by Mother of Jibril

  1. Mother of Jibril
    Hi Amy, Your husband is right that you don't have one of the main genes for celiac disease (DQ2 or DQ8). However... you do have a double dose of serotype DQ1 (you have a combination of subtypes DQ5 and DQ6). Serotype DQ1 is associated with neurological problems such as ataxia, MS, vertigo, depression, etc... Wikipedia (Open Original Shared Link) says...
  2. Mother of Jibril
    I know this won't work for everyone on this forum, but with friends and family members I've started saying that "I have one of the genes for celiac disease." It seems to ring a few bells for people... 1) This is serious 2) It's not a choice 3) It's genetic... maybe you should get tested The best thing is that it's absolutely true! I can even...
  3. Mother of Jibril
    Cool! I wondered if anyone would ever respond to this topic! All of my halo nevi are on my hands. Kind of strange... most people get them on their torso. They're pretty small. You could cover each one with a pencil eraser. Usually it's nothing to worry about, but if you notice that the mole is really dark or the white area is growing rapidly you...
  4. Mother of Jibril
    I'm SO sorry. Doctors can be shockingly incompetent when it comes to autoimmune disorders. Unless they come up with a new test for celiac disease, I'm in the same boat as you. I'm not willing to go back on gluten to maybe get a positive test, even if I do find a competent doctor. Here's what I've been thinking lately... what would be the benefit...
  5. Mother of Jibril
    I just looked at your post again... and your daughter is a bit older than I thought (sorry!). So... a lot of kids are no longer breastfeeding at that age In that case, you can make her diet very simple. Fruits, vegetables, meats, avocado, nut butter, rice... That's a good way to heal very quickly. Then you can try reintroducing the other foods....
  6. Mother of Jibril
    Welcome to the group! Those really DO sound like malabsorption problems. I have different advice for your daughter and your husband based on the difference in age: Daughter... Even if she has celiac disease, it's difficult to get a positive blood test in such a young child. You could certainly try! Otherwise, you could just take the most common...
  7. Mother of Jibril
    Welcome to the group! You're right that anti-gliaden is not as specific for celiac disease as TtG. The thing is... it does indicate that your immune system is making antibodies in response to gluten. You might not have celiac disease... you might not even have the genes for it... but you could easily turn up with some other autoimmune disease if you...
  8. Mother of Jibril
    It is a lot to deal with... The thing is, I had SO many warning signs. Some of them I thought were just "normal" for me... dandruff, hair loss, feeling cold all the time, constipation, dry skin. Others symptoms (abdominal pain, heartburn, fatigue, depression, joint pain) I chalked up to being pregnant three times in four years and losing one child...
  9. Mother of Jibril
    Hi Alia, I agree that you already have your answer... give the gluten-free diet a serious try and see how you feel! A positive response to the diet is another diagnostic tool. I have autoimmune hypothyroidism and a (painless, solid) lump in one of the lymph nodes under my left jaw. I wouldn't jump right to the idea of "cancer" although it's worth...
  10. Mother of Jibril
    I was just reading about that last night! Thank goodness I'm not severely allergic to corn... but I have noticed that I'm getting more sensitive as I get better about taking it out of my diet. This is really going to make me a nutcase about potlucks. Not only do I need to bring my own food... I need to bring my own plate, cup, and silverware.
  11. Mother of Jibril
    I think you're smart to keep this idea in mind and pay attention to your symptoms. Celiac can explain a lot, but it doesn't explain everything. A few months ago I was diagnosed with autoimmune hypothyroidism. Since then I've figured out I'm intolerant to gluten and corn and have low stomach acid (hypochlorhydria). I was also diagnosed with halo nevi...
  12. Mother of Jibril
    If it says "starch" without specifying the source, it's probably because they use different starches (wheat, corn, barley, etc...) based on whatever is cheapest. Manufacturers are required to list wheat, but not the other gluten grains. So... you could either avoid it or you could call the company each time you buy it. "Natural flavors" are a gamble too...
  13. Mother of Jibril
    For some reason I can't understand... some of the yogurt manufacturers (even Stonyfield and Brown Cow) have started making yogurt blended with cereal. Ugh. Try not to be paranoid, but you really do need to check EVERY label. You wouldn't believe how many products have wheat, barley, rye, oats, or some kind of derivative. It will get easier as you figure...
  14. Mother of Jibril
    If the gastro is planning to do an endoscopy, then your friend is right... your daughter needs to keep eating gluten for a few more days. Right after the appointment she can go gluten-free! I know it's hard, but a few more days won't make much of a difference. You're a good dad for wanting to go shopping right away. Some parents are worried about the...
  15. Mother of Jibril
    That's definitely part of my reaction when I get glutened I've also started getting itchy little bumps on my hands. Grrrr.... I hate how irritable it makes me.
  16. Mother of Jibril
    I've been ordering my supplements from this company: Open Original Shared Link They're good about labeling for allergens... gluten, dairy, soy, corn, etc... For people who have a hard time swallowing they even show you how big the tablets are.
  17. Mother of Jibril
    The Specific Carbohydrate Diet (SCD) is very strict, but it's a great way to keep your blood sugar level. You can check it out by visiting www.pecanbread.com or reading "Breaking the Vicious Cycle." Also... fats are good for slowing down the digestion of carbohydrates: eggs, avocado, coconut oil, olive oil, nut butter, seeds, cheese (if you can tolerate...
  18. Mother of Jibril
    Genetics is really revolutionizing medicine! I know a lot of people are worried about getting these things tagged as "pre-existing conditions" on their health insurance, but frankly... IMO this is the best way to figure out what kind of preventative care you need.
  19. Mother of Jibril
    My grandfather had to stop farming because of asthma, but otherwise I don't know much about it. Is there a specific test to ask for? You could be right about the influence of her classmates. One of them (who my daughter often mentions) is a tantrum MASTER. She's the youngest of three kids.
  20. Mother of Jibril
    I have a three-year-old with a very intense personality She's been like that since day one... she can be SO happy and silly (her teachers love her), but she can also throw some spectacular tantrums. If it wasn't for our other child... who's Mr. Mellow ... I might have thought there was something wrong with our parenting style. We had a battle this...
  21. Mother of Jibril
    I've started visualizing cockroaches on gluten foods. I HATE cockroaches. I can't dwell on the image for too long... it sure makes me lose my appetite!
  22. Mother of Jibril
    My son gets terrible eczema on his face from corn. I don't think it's a true (IgE) allergy... it takes at least a day for it to show up and at least a week to go away. Since he's still breastfeeding I also had to take corn out of my diet... I was really amazed at what a positive effect it had! Even being gluten-free and casein-free, I was still having...
  23. Mother of Jibril
    When people say they have DQx, they're usually talking about the subtype. Your husband has one of the main celiac genes, DQ2.5 (HLA-DQB1*0201). You have DQ7 and DQ5, which can also cause all kinds of problems... DQ5 (one of the DQ1 subtypes) is associated with neurological reactions to gluten (MS, vertigo, ataxia, depression, etc...). DQ7 is associated...
  24. Mother of Jibril
    I certainly do wonder if he doesn't have enough acid and/or enzymes... but how do you give that kind of supplement to a baby? On the issue of teeth... the funny thing is that even when I grind his food with a food mill I still see little bits of undigested food. It just looks like confetti instead of chunks!
  25. Mother of Jibril
    I know this is a bit confusing... Your baby could inherit the genes for celiac disease, but you can't directly pass it on (it's not like a virus). The thing is... not everybody who has the genes develops the disease. The genes have to be turned on by some trigger... severe stress, trauma, infection, allergies, puberty, pregnancy, etc... A bottle-fed...
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