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Mother of Jibril

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Everything posted by Mother of Jibril

  1. Mother of Jibril
    My three-year-old is also VERY active. I know exactly what you mean about potty training! We had an especially difficult time with #2 because she was constipated (due to gluten) and did NOT want to sit on the potty for long. I'm not big on parenting books, but one that I found really useful was "Living With the Active Child" by Linda Budd. She makes...
  2. Mother of Jibril
    What really helped with that was taking Betaine HCl with protein meals. I don't know exactly how it reduces inflammation, all I know is that it improves my digestion. Hypochlorhydria (low stomach acid) is one cause of rosacea. For the first time in years I don't look like I have a sunburn on my face! I still flush very easily, but it goes away in a few...
  3. Mother of Jibril
    I used to get in trouble for that all the time when I was little! I remember licking the edge of the counter in the check-out line at Kmart when I was about four or five years old. It just happened to be at mouth-level and I remember liking the metallic taste. What kind of kid does that? Sooo many things are making sense in my life.
  4. Mother of Jibril
    Wow lbd. minton came to us for help. Do you have any idea how devastating it is to lose a child? It doesn't matter if you're 19, 29, 39... or how "irresponsible" your lifestyle might be. A loss is a loss.
  5. Mother of Jibril
    I have two ideas for you... 1) Antiphospholipid syndrome (also known as Hughes syndrome)... you can find out if you have it by testing for anticardiolipin and lupus anticoagulant. There's some overlap with Sjogren's syndrome and lupus, but all of these disorders can cause fetal death, particularly in the first or early second trimester. Keep in mind...
  6. Mother of Jibril
    I also think a lot of the "healthy" people who have some celiac antibodies (but not enough for a positive test) don't really know what "healthy" is. Before I was diagnosed with autoimmune hypothyroidism, I thought a lot of the symptoms were just "normal" for me... feeling cold all the time, depression, terribly dry skin, constipation, heavy periods....
  7. Mother of Jibril
    My parents told me the rash on my buttocks was "sweat pimples." Right! The bumps are around the joints on my hands... not really enough to call it a "rash." When I see my parents next month I'll have to check their hands Incidentally, I see we share the DQ7 gene. I'm pretty sure I got that one from my dad.
  8. Mother of Jibril
    My daughter has had problems with pica... sometimes she eats chalk like it's candy. She also loves ice cubes and paper. When I searched online it said that in kids with normal to high intelligence it's associated with iron deficiency and/or OCD. Both of these run in my dad's family. I had her tested and they said her iron levels were "normal," but I didn...
  9. Mother of Jibril
    Me too! I went straight from teenage acne to adult acne I also have halo nevi (places where my skin is reabsorbing a mole) and rosacea. Thankfully, on the gluten-free diet the long-time rash on my buttocks has gone away! My rosacea is looking better too.
  10. Mother of Jibril
    I tried looking through old posts for something like this... but I can't seem to find anything that matches just right. I have some tiny, red, itchy bumps on my hands that showed up in the last few days. They're about 1mm in diameter... not on my palms, and I only have about half a dozen. No bumps on the rest of my body. It's too cold for most bug...
  11. Mother of Jibril
    Good vent! I can use some venting too... I've already had two incidents like this with my son and he's only nine months old!!! The first time he had "colic," which turned out to be a severe intolerance to casein. He was clearly in pain (crying for hours), projectile vomiting, and having dark green diarrhea. The nurses kept telling me it was...
  12. Mother of Jibril
    I agree 100% with this! I don't assume that I have celiac and I don't assume that I don't have it Incidentally, I did have a CBC (which showed elevated liver enzymes and borderline anemia), a metabolic panel, and I found out I have autoimmune hypothyroidism. I'd still like to get a bone scan... and be tested for Sjogren's antibodies. I'm seeing a...
  13. Mother of Jibril
    True... genetic testing can't give you a diagnosis of celiac disease. But... it does indicate your level of risk (since 98% of celiacs have either DQ2 or DQ8). Also, some people find themselves in a situation where they can't get an accurate blood test. An allergist (a medical doctor who probably should have known better) advised me to try a gluten-free...
  14. Mother of Jibril
    Since celiac disease is genetic, having a mother with celiac is a major risk factor. That being said... your kids might be perfectly healthy and never develop celiac disease (or any other autoimmune disorder). I have two kids, a three-year-old daughter and a nine-month-old son. My son definitely inherited some of my problems... he's very sensitive to casein...
  15. Mother of Jibril
    Welcome to the group! Having a blood relative with celiac disease is the greatest risk factor. It would certainly be interesting to do a genetic test... it's just a cheek swab and you can do it anytime. Lack of growth is a common symptom of celiac disease in a small child, but there might be other subtle things that just seem "normal" for her. For...
  16. Mother of Jibril
    I did my genetic test through Enterolab... just a cheek swab. You don't even have to freeze it! You give each swab a good rub on the inside of your cheek (one for each side), let them dry, put them back in the wrapper, and ship the samples off through UPS. Very simple! With tax it was $174. It took about three weeks for the results to show up in my e...
  17. Mother of Jibril
    Really simple foods are the best. Rice (the easiest grain to digest), meat, lots of vegetables, fresh fruit, seeds, nut butters, eggs, etc... Your body will probably thank you if you go easy on the sugar, dairy, and processed foods for a while If you haven't done much cooking before, now is the perfect time to learn!
  18. Mother of Jibril
    Gallbladder problems are common in pregnancy because of the increased estrogen. They're also common when your intestines are damaged (from celiac disease, leaky gut, IBS, etc...) because your gallbaldder, liver, and kidneys have to work extra hard to compensate. Bile and undigested fats can back up into your gallbladder and form stones. I'm sorry...
  19. Mother of Jibril
    Beans and dairy are both difficult foods to digest You might want to stay off them for a few months... once your intestines have healed you'll be able to tell if you have a permanent intolerance. Hopefully you can eat them again
  20. Mother of Jibril
    Pregnancy is a common trigger for autoimmune disorders. I'm slightly younger, but my kids are the same age as yours... I had a big flare up after my last pregnancy. Abdominal pain, gas, bloating, joint pain, excessive hair loss, terribly dry skin, rapid weight loss, headaches, fatigue, postpartum OCD... it was horrible! I was diagnosed with autoimmune...
  21. Mother of Jibril
    I went gluten-free on the recommendation of an allergist and I felt SO much relief from my abdominal pain. There was no way I wanted to try the "challenge." I could already tell that gluten was doing bad things to my body. That being said... at first I was hoping I was just a "little" intolerant. That maybe I wouldn't have to be paranoid about cross-contamination...
  22. Mother of Jibril
    Unfortunately, casein is in all cow's milk dairy products: cheese, milk, yogurt, ice cream, sour cream, whey, etc... You might try dairy products from other animals. I can eat a little goat cheese on my pizza without causing any suffering. Casein is the protein in cow's milk; lactose is the sugar. As far as I know, lactose intolerance is uncomfortable...
  23. Mother of Jibril
    I know what you mean. I figured out the casein intolerance on my own... my son had colic, diarrhea, lots of sinus congestion, projectile vomiting, and streaks of blood in his diapers... all from the casein getting through my breast milk. I found some good information at www.kellymom.com. He started to improve within a week after I stopped eating dairy...
  24. Mother of Jibril
    Making your own cranberry sauce is very easy! Just boil some frozen cranberries in a little water (enough to cover them) for about five minutes. Mash and add some sweetener... sugar, maple syrup, agave, stevia... maybe a little orange juice if you like it that way. That's it!
  25. Mother of Jibril
    Hi Claudia, The idea that everybody "outgrows" their intolerances in childhood is ridiculous... I'm 32 and I just discovered this year that I'm intolerant to gluten and corn! Getting her off gluten was a great idea. I'm sorry it hasn't helped more, but here are some ideas that come to mind: 1. She could have more intolerances. Dairy (casein)...
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