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Mother of Jibril

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Latest Celiac Disease News & Research:

Everything posted by Mother of Jibril

  1. Mother of Jibril
    It's difficult to get an accurate result from testing for celiac in such a small child. The best thing is simply to take suspicious food(s) out of your son's diet and see if it makes a difference. Gluten is a great place to start. So is dairy! There's nothing unhealthy about this kind of diet. My nine-month-old son is intolerant to casein (dairy proteins...
  2. Mother of Jibril
    Welcome to the group! I'm sorry you're having such a frustrating time Have you considered that you might have another food intolerance or another autoimmune disorder? I felt even better after I stopped eating corn. Plus, I think once you're off gluten it becomes easier to recognize other things that might be going on in your body... A book...
  3. Mother of Jibril
    Welcome to the group! Thank goodness for libraries and the Internet... like you, that's how I learned about the connection between autoimmune hypothyroidism and gluten intolerance. I also had a pregnancy loss in November 2006. I don't know why... but that literature has VERY little information about autoimmune disorders in pregnancy. I'm sure I would...
  4. Mother of Jibril
    I've heard about ELISA testing for food intolerances (which are different from allergies), but it's expensive and not very reliable. An elimination diet is considered the gold standard I've been wondering the same thing about other intolerances... do they cause your immune system to produce antibodies? I don't know that anything has been proven. ...
  5. Mother of Jibril
    I think it's wise to check out lyme disease and related illnesses! Also, have you considered whether you're making enough stomach acid? Check out this list of symptoms and disorders related to hypochlorhydria: Bloating, belching, burning,flatulence immediately after meals, indigestion, diarrhoea, constipation, itching around the anus, multiple...
  6. Mother of Jibril
    I started by cutting out all the obvious sources of corn... corn chips, corn bread, corn cakes (they taste better than rice cakes), corn cereal (grrr... that eliminates a LOT of gluten-free cereals), corn on the cob, etc... Now I'm getting more strict about corn starch and corn syrup... I'll have to check my medications and supplements like I do for gluten...
  7. Mother of Jibril
    I was like that not long ago. I still get tired very easily from exercise, but I don't NEED to take naps and I don't get so cranky and exhausted all the time. Some possibilities... - hypothyroidism - vitamin D deficiency - pernicious anemia (B-12) - hemolytic anemia (iron) - macrocytic anemia (enlarged red blood cells) - not enough red blood cells...
  8. Mother of Jibril
    It's totally up to you This forum is great for advice and ideas... but you still have to live in your body. The only person who really knows what that's like is YOU. Here are my thoughts... 1) OK... just remember that a negative result doesn't necessarily mean negative forever. I have GOOD reasons not to trust doctors, but I still need their...
  9. Mother of Jibril
    You could definitely be hypothyroid with that kind of TSH. The new recommendation from AACE is that "normal" should be between 0.3 and 3.0... a lot of labs just haven't caught up yet. A person your age should have an even lower TSH. I would definitely test your free T4/T3. Also, check for antibodies (TPO and TgAb) because if you have them then your body...
  10. Mother of Jibril
    Pilates! Look for a nice beginner's class. It can be very slow and gentle, but it's GREAT for building muscle tone, especially in your torso. I played sports in high school (basketball, volleyball, track), but since I developed all these autoimmune problems exercise makes me feel exhausted for hours. Pilates actually makes me feel GOOD I bet yoga would...
  11. Mother of Jibril
    This was my first gluten, dairy, and corn-free Thanksgiving... it wasn't bad! I did make a turkey. I also baked a butternut squash (delicious!) and made a soup using the turkey neck, celery, carrots, chicken stock, rice, and some herbs (sage, thyme, and fresh rosemary). I also added a potato, but the soup would have been better with a stronger vegetable...
  12. Mother of Jibril
    Welcome to the group! A negative blood test doesn't rule out celiac (did they test your total IgA?) and it certainly doesn't rule out gluten intolerance. Give the gluten-free diet a try! It won't hurt you and it could help a LOT. The people on this forum are a great source of advice. I had to give up dairy, gluten, and corn, but I still find plenty...
  13. Mother of Jibril
    Finding intolerances can be a slow process, but you can do it on your own and get some solid answers... better than any test or doctor. Here's what I would do: First... make sure you're being really strict about the gluten-free diet. CC from gluten will interfere with your observations. Then... try eliminating one food at a time. Dairy is a good...
  14. Mother of Jibril
    What a good idea! I just finished baking a pumpkin DISASTER. I boiled almond milk (to evaporate some of the water) in place of the cow's milk... which I think was ok. The problem was the crust... a clerk at our co-op recommended gluten-free cookies (to make something like a graham-cracker crust), but the cookies burned and the whole thing looks terrible...
  15. Mother of Jibril
    That makes sense... I would also check your thyroid levels. Weren't you hyperthyroid at one point? Maybe your thyroid has burned itself out and now you're going hypothyroid. That can cause heavy, irregular periods. In my 20s I went through stretches where I would get my period every three weeks It's a miracle that I have two living children. Why...
  16. Mother of Jibril
    A few thoughts come to mind... 1. If your body is making thyroid antibodies, then you have an autoimmune thyroid disorder... end of story! TSH can bounce all over the place when you're having an attack. Don't wait until your TSH is sky-high to do something about it. Look for a GP doctor who's willing to work with you. 2. I don't know if you have...
  17. Mother of Jibril
    That's very interesting! My mom says "no matter what she eats" her blood sugar is out of control, even when she's being "good" and avoiding sugar (she has a terrible weakness for ice cream). I know she has a lot of emotional issues with food... and has been misled by all the hype about "low fat" diets. Plus my dad is a super picky eater. Just about every...
  18. Mother of Jibril
    Next month my family is driving up to Wisconsin for the holidays. We're going to be there for at least a week. My mom suggested that we go grocery shopping when we get there (definitely) and I told her I was also planning to do most of the cooking. Good deal! She said she would do the dishes My mom developed diabetes in her 50s, but lately her blood...
  19. Mother of Jibril
    The first time I really got nailed by food intolerance was after a semester in Mali... I was eating SO healthy there! Lots of rice, fruit, and vegetables with a little meat and a tiny amount of dairy. Very little processed food. I felt GREAT. Then I got back to the United States and I spent a week with my parents... eating sandwiches, bowls of cereal...
  20. Mother of Jibril
    Welcome to the group! Another food intolerance seems like a possibility... a lot of people have problems with dairy, corn, soy, etc... How long have you been gluten-free? Is there anything you've been eating a lot more of lately? Corn was one of my main substitutes for gluten before I realized it was causing problems for me as well as my breastfed...
  21. Mother of Jibril
    I just found out that the powder on balloons is corn starch... which my son and I are both sensitive to. I'm not sure if bandaids or stickers have gluten. I know playdoh does. It's frustrating trying to protect little ones when they put EVERYTHING in their mouths!
  22. Mother of Jibril
    Oh yeah... I was confused by this for a while too. The "serotypes" (1, 2, 3, 4) are broad categories that the "subtypes" fall under. For example... DQ7 and DQ8 are both "3s" meaning that they share some of the same amino chains and therefore some of the symptoms. It's better to have genes from two different categories; overlap makes you higher risk and...
  23. Mother of Jibril
    My husband and I are still together, but we just barely made it through After we lost our second child when I was 17 weeks pregnant (which I'm pretty sure was caused by my autoimmune problems) I fell into a severe depression... made worse by the same autoimmune problems. I took a leave of absence from my job for three months. My husband just did NOT...
  24. Mother of Jibril
    I never would have suspected corn either... of course, for years I thought I just had a problem with lactose I gave up corn to see if it would get rid of my casein-intolerant son's eczema (it did). I was pleasantly surprised to find that it helped both of us! Sadly, over the weekend I was out of town for a conference and my husband gave him a jar of...
  25. Mother of Jibril
    I think that's a very smart approach. Gluten can explain a LOT, but it doesn't explain everything. I feel fantastic overall being on the gluten-free diet, but my eyes have actually gotten worse. I think it's either ocular rosacea or Sjogren's disease... we'll see what my opthamologist says in January. Also... have you noticed any other foods that bother...
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