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Mother of Jibril

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Latest Celiac Disease News & Research:

Everything posted by Mother of Jibril

  1. Mother of Jibril
    Congratulations on the pregnancy! If you feel better being gluten-free (or at least wheat free)... why eat it? You don't need it to have a healthy, balanced diet. Pregnancy does all kinds of crazy things to your hormones and immune system. It can make food intolerances worse or apparent for the first time. One other thought... if you're itchy...
  2. Mother of Jibril
    Ahh... that might explain why he didn't even like sweet potatoes. The only way I could get him to eat fruit was by mixing tiny bits with his rice cereal. Getting rid of the corn was a good move for both of us! The eczema and rash are gone. Wow. I've only been giving him rice cereal and summer vegetables... I think I'll try this fruit experiment...
  3. Mother of Jibril
    I have three thoughts... 1. What is your current BMI? Aside from the issue of malabsorption, were you underweight before you stopped eating gluten? 2. What is your diet like? Are you eating lots of fruits and vegetables, proteins, and healthy fats? Avoiding heavily processed foods? Not all gluten-free foods are healthy or good for the waistline...
  4. Mother of Jibril
    There is a strong genetic component to gluten intolerance/celiac disease. Also... the book "Dangerous Grains" has some information about the prevalence of gluten intolerance. If I remember correctly, only 1 in 100 people is diagnosed with celiac disease (for a variety of reasons), but the number of people who are intolerant to gluten may be 1 in 3....
  5. Mother of Jibril
    In August I found out I have autoimmune hypothyroidism. My TSH was 44.3 - way, WAY off the scale. The doctor who found it put me on 100mcg of Synthroid and said to come back in two months. Two months later (after I'd also been gluten-free for five weeks) I was feeling better... more energy, not losing so much hair, not so constipated. Nice. Unfortunately...
  6. Mother of Jibril
    I wondered about sifting for a long time... What I finally learned is that it changes the amount of flour in one cup. One cup of unsifted flour might be equal to 1 1/2 cups of sifted flour. So... now when I use a recipe that calls for sifted flour I don't sift it... i just use less If you're using a baker's scale instead of measuring cups this is a...
  7. Mother of Jibril
    I've been reading about this because I'm trying to get some better management for my own thyroid disorder. Here's what I found about the tests you mentioned: TSH: is good for uncovering hypothyroidism, as long as you realize that a normal level is under 3.0 and you might not feel healthy again until it's even lower than that. A low TSH plus a low T3...
  8. Mother of Jibril
    Have you ever tried Tofutti's "Better than Cream Cheese" or their sour cream? They're made of soy and I find them pretty tasty. Pizza without cheese is surprisingly good. I've also seen gluten-free/dairy-free pizzas with soy cheese, but I haven't quite worked up the courage to try a $10 pizza that I'm not sure I'm going to like (!). I don't think...
  9. Mother of Jibril
    I have autoimmune hypothyroidism... how do you know if you have a mycoplasma infection??
  10. Mother of Jibril
    That's interesting... my blood test included total IgA, TTG and EMA, but not anti-gliadin. Hmmm... DeannaTX -- You say there's no history of celiac in your family... what about autoimmune disorders? I didn't figure out I was intolerant to gluten until I was diagnosed with autoimmune hypothyroidism. Autoimmune disorders often cluster together.....
  11. Mother of Jibril
    With all the AP classes it sounds like you're getting ready for college... Make sure you tell your professors! I'm a professor at a big university and every semester I teach a lecture class with 150 students. I've had students with learning disabilities, panic disorders, fibromyalgia... sometimes documented with a letter from a doctor or disability...
  12. Mother of Jibril
    There was a recent thread about the new Vivanno protein drinks and CC problems.
  13. Mother of Jibril
    I'm so sorry to hear that you also had a loss. I know how STRESSFUL a subsequent pregnancy is! You really need to treat yourself well. Find some non-gluten foods that you enjoy and can eat when you feel tempted by gluten... even if it's cookies! Order them off the Internet if you have to. It's a medical expense Seriously. I'm sorry your husband...
  14. Mother of Jibril
    I have a few thoughts... 1) If all of your kids have the genes for celiac, why wait for major problems to develop? You could be saving them so much suffering by getting them off gluten or at least cutting way back. 2) I'm still waiting for my own DNA test, but I was having a lot of abdominal symptoms (pain, gas, bloating, constipation) and when...
  15. Mother of Jibril
    My daughter started preschool this fall and is going to a small private school (preschool through 12th grade) where there is no cafeteria! Everyone brings their own lunch. What if your daughter started taking her own lunch to school? Maybe she won't be able to have hot food (although it seems like a small sacrifice... actually much easier than cooking...
  16. Mother of Jibril
    If you do want to have your daughter tested for a thyroid disorder it's not expensive... just a blood test. Maybe Shay can say more about this, but kids have a lower "normal" range than adults. I think you want to have a TSH level under 1.0. If it's just a little high (let's say 4.0, which a lot of doctors are reluctant to treat even though it can cause...
  17. Mother of Jibril
    Hi Sara, I also have two living children, but in between those pregnancies I had a loss at 17 weeks. I don't know for sure what caused it, but I've since learned that I have hypothyroidism and I'm intolerant to gluten... both of these increase your risk of having a miscarriage or stillbirth. Personally, I found it really devastating to lose a child...
  18. Mother of Jibril
    What about roasted vegetables? Potatoes, sweet potatoes, zucchini, squash, carrots, tomatoes, beets, yams... take any kind of vegetables you like... 1) cut them into small chunks 2) coat with olive oil 3) sprinkle with salt and pepper (maybe some herbs too... or garlic) 4) bake in the oven at 375 until browned (at least an hour) Roasting...
  19. Mother of Jibril
    Hi Maddie's mom, Hypothyroidism can also cause constipation, but since your daughter is so young I doubt that's her problem. What if she has another intolerance? Dairy is a common culprit. I don't think long-term laxative use is a good idea From what I've read, your body can become dependent. Also, what if your daughter has another disorder...
  20. Mother of Jibril
    A couple of ideas... What about a nice big pot of soup? Maybe chicken soup with vegetables and gluten-free noodles or rice. It heats up easily and should last for at least a couple of meals. You can add water to stretch it if necessary. Another easy dinner I like is salmon (just coat it with olive oil, salt and pepper and stick it under the broiler...
  21. Mother of Jibril
    I have looked at the pictures... the only problem is that I can't really see the rash on my buttocks I'll read more about the biopsy procedure... I have an appointment with a dermatologist in December. Do you have any idea how long a biopsy might test positive after going gluten-free?
  22. Mother of Jibril
    I don't know about the allergy testing, but if your daughter is allergic to casein (milk protein) instead of lactose (milk sugar) you should eliminate all dairy products from her diet... milk, cheese, and whey are the big ones. Taking Lactaid doesn't help. Anything marked Kosher "pareve" is fine as long as it's also gluten-free. I'm leery of cheese substitutes...
  23. Mother of Jibril
    Yes... babies can be tested with a cheek swab. Depending on my results from Enterolab, I might do this with my three-year-old and seven-month-old. The instructions tell you how to do it with young children.
  24. Mother of Jibril
    A few thoughts about cheese... - Being lactose intolerant and casein intolerant are two different things. Your intestines can stop producing lactase when they get damaged, but if they heal you might be able to process lactose again. Intolerance to casein is like intolerance to gluten... the only way to preserve your health is to cut it out of your...
  25. Mother of Jibril
    I had to take dairy products out of my diet when my son was about six weeks old... he was crying for hours on end (colic), vomiting (sometimes explosively), had green diarrhea in just about every diaper (5-6 times a day) and finally we noticed streaks of blood in his diapers. It took about a week to see signs of progress. Within six weeks he was completely...
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