FreyaUSA
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Latest Celiac Disease News & Research:
Everything posted by FreyaUSA
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Wow! Great thread! The number one positive thing it's done for me (the gluten-free diet that is) is make me feel great! I love going out and doing things now. I lost my problem with crowds. I play more with the kids. I just like to DO things now where in the past I never felt good so I was kind of a sidelines person. I'm also REALLY interested in the...
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Jendenise, my daughter (age 6) who has been gluten free for the last couple months used to eat ice all the time, too! I never put this together, but since she's been on this diet, she's stopped. How interesting! On to sorbitol. Sorbitol is a sugar alcohol (which has nothing to do with alcohol, it's a polyol ) but these sweeteners cause MANY people...
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ARCHIVED Candy Necklaces
FreyaUSA replied to FreyaUSA's topic in Parents, Friends and Loved Ones of Celiacs
The reason I called the FDA (because nothing can be done about labeling like you said) is because it is illegal to import a product (and most definitely a food product) without knowing exactly what's in it. If they truly don't know, they are in trouble. If they just didn't bother giving the information to their phone people, they'll get their wrists slapped... -
ARCHIVED Additional Nutrition Challenges ?
FreyaUSA replied to wildones's topic in Parents, Friends and Loved Ones of Celiacs
Are you familiar with the glycemic index/load of foods? Basically, it is a new way of categorizing carbohydrates by how quickly they're able to be digested. It sounds like it would be worth your while to find foods that are "high" on the list for your son to eat but are still nutritional strong. Examples of some of these foods would be millet (it is alkaline... -
This is an FYI thing. My daughter got several candy necklaces at a birthday party this weekend. The packages have no ingredient info, but a phone number for Oriental Trading Company. I called them and they DO NOT KNOW what their ingredients are made from. NO allergen information at all. Being the good, civic-minded, paranoid mom I am , I called the FDA to...
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My kids and I are all intolerant. Does anyone have ideas for packing lunches (not just for kids, for me, too! Lol!) So far, my easiest put together "sandwich" have been roll ups. Roll Ups Ham and Cheese, Peanut Butter and Jelly, Pizza (the three that are most often made) Heat, in a dry, hot frying pan, a soft flour tortilla. (I've tried them...
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ARCHIVED He Is Such A Grump The Last Few Days!
FreyaUSA replied to rgeelan's topic in Parents, Friends and Loved Ones of Celiacs
I'm not certain how you'd feel about this suggestion, but here goes I gather William is quite young still? To make him feel like he isn't being singled out for negative treatment (you get one pizza, he gets something "different") why not all of you go gluten-free with him, in the house and in his presence anyway? Then, trying new things would be an adventure... -
ARCHIVED Help...
FreyaUSA replied to cynicaltomorrow's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This is exactly what happened to me. I was sent to an allergist and I didn't even react to the control! Lol! (Does that mean I have no IgE at all? ) The thing that astounded me was that when I spoke with the allergist about being intolerant (this was all new to me too,) she was clueless (she acted like she'd never even heard the term before.) When I said... -
I have quick, rather obvious reactions to both gluten and beef. (Beef I've been avoiding for 10+ years.) I've found that most restaurants have no problem cooking my order in a skillet. I do frequent the same restuarants, however. In general, cross contamination has been very rare. Just make certain to be clear you can't have "bread or wheat" (lol! anything...
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ARCHIVED Enterolabs
FreyaUSA replied to FreyaUSA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Very interesting, Tiffany. Which, puts me in the exact same spot as before. Lol! How long has Dr. Fine been doing these tests? And, since I accidentally got into gluten AGAIN this week (that's twice in one week where I've managed to avoid it for weeks and weeks prior!) I have no desire to return to a gluten consuming lifestyle anyway. Migraines suck -
ARCHIVED Blood Test Still + After 10 Months Gf?!?!
FreyaUSA replied to jen-schall's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I don't know if your doctor has suggested this (are you seeing a nutritionist who is aware of celiac disease?), try documenting every single thing you put in your mouth (including brand names.) From toothpaste to water. Then, have either your nutritionist look at it or post it somewhere so that others who are aware (here on the board? I'm new here so I don... -
ARCHIVED Enterolabs
FreyaUSA replied to FreyaUSA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree, Tiffany. Even if I got back test after test saying I'm okay with gluten, I wouldn't eat it again. I get migraines from it. I used to get anywhere from 6-12xs a month (with a generalized headache all day, every day.) Not a good way to live. I've also not eaten any red meat in 15 years, why? Because I get sick whenever I do. I was tested negative for... -
ARCHIVED Feel Like The I Have The Flu
FreyaUSA replied to HAPPY DOG SUZ's topic in Coping with Celiac Disease
The same thing happened to my 15 year old. Prior to going gluten-free, he had "seasonal allergies." For almost the first two weeks of being on a gluten-free diet, he felt miserable (the symptoms seemed to become 100x worse, he really thought he'd caught something dreadful.) It cleared up as well as all his seasonal allergies, so have hope! Now, however, one... -
ARCHIVED Cd And The South Beach Diet
FreyaUSA replied to FreyaUSA's topic in Related Issues & Disorders
I like that, it sure makes you think: "The diet of the blue-footed booby was obviously not working. After gaining..." Personally, I really appreciate all the help offered. I feel like, in the last 6 months, I must have reinvented the wheel several times. I only just discovered there is a support group in my area and one for parents of celiac disease... -
ARCHIVED How Sick Were You During Pregnancy?
FreyaUSA replied to kathyhay's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I won't help in the connection then. I had three pregnancies and, except for some minor queasiness during my last one, I would say they were effortless. I did click "less than usual" because of that one short period, but if I'd had to vote on just my first two (who were boys, and last as a girl) I'd have said None at all. Oh, I did have enemia, protein problems... -
What is the general concensus about Enterolabs? I've read through all the promo material and it seems like a far better/more reliable method to determine gluten sensitivity/intolerance/celiac disease/whatever than the biopsy methods of the last half century (and blood work of the last 2 decades??? Not sure how long this has been around...) Anyway, what I...
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ARCHIVED Cd And The South Beach Diet
FreyaUSA replied to FreyaUSA's topic in Related Issues & Disorders
Oh, I'm a compulsive label reader and a member of the frequent customer service caller club! Lol! SB is really a "way of eating" more so than a diet. It stresses using whole, unrefined, unprocessed foods (if you've ever heard of the glycemic index, that's what it's based on, eating foods that take longer to digest and turn into sugars, etc.) rather than... -
Fyi, for those of you also concerned with your weight, this is a very popular recipe using Splenda (the bulk kind) rather than sugar. I don't know how the regular ones turn out, but the splenda version are a bit crumbly. Many people stick them in the freezer and eat them straight from there. (They're addicting, btw.)
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ARCHIVED So Excited!
FreyaUSA replied to kathyhay's topic in Parents, Friends and Loved Ones of Celiacs
I have suffered from headaches constantly. I'd wake in the morning with a mild headache, by mid afternoon, VERY often I would have a migraine. I can't eat beef or anything with heavy fats (like cream sauces...ugh, just the thought makes my stomach hurt.) I'd never even heard of celiac disease before I went gluten-free. I just started a diet (south beach.... -
ARCHIVED Safe Snacks For The Kiddies
FreyaUSA replied to kirst4588's topic in Parents, Friends and Loved Ones of Celiacs
On the bar topic...I called Balance (which turns out to have been bought by Kraft within the last year or two which has a company wide policy to always disclose ingredients on the label that are made from foods containing allergens) and they have gluten-free bars too! At my local Trader Joes, they sell for $.99 per. For comparisons sake (I have a 15 year... -
I actually found out I was gluten intolerant after starting this diet. For those of you who don't know about it, you go for two weeks without any grains or potatoes, basically (as someone once said on the SBD forum I go to, it's a Low Crap, No White diet.) After these initial 2 weeks, you add in whole grains a little at a time. Funny, while on this first...
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ARCHIVED Gf Recipe Exchange
FreyaUSA replied to chasefamily's topic in Gluten-Free Recipes & Cooking Tips
I used to belong to a great recipe exchange group (pre-celiac disease.) We would have a topic every week or two (taking turns selecting the topic, something general like "chicken recipes" or more specific like "Halloween Cookies") and we would just email everyone on the list our recipe (the best part was that everyone would put a comment at the beginning... -
ARCHIVED Gluten-free Dining In Northern Virginia
FreyaUSA replied to terri's topic in Gluten-Free Restaurants
I so had to laugh about your experience with Amphora! When I found out I was gluten intolerant, Amphora was one of the first (if not the first) restaurant we went to. We used to really like going there. They were SO RUDE! They didn't exactly refuse to serve me, but they made it one of the worst dining experiences I've ever had. But, here's something I've... -
My sister is a manager at Outback, so from the day I found out I was GI, she came to my rescue! She said, if the restaurant near you does not know what you're talking about, ask to speak with the kitchen manager, they've all been trained in this. Back in March when I found out about myself, my nearby Outbacks front people hadn't a clue. Now, they are absolutely...