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knittygirl1014

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knittygirl1014

  1. knittygirl1014
    I agree. I've only been gluten free for a year though and I'm still getting used to how people react. Some people are curious, some are put out, some are kind of rude, and some are overly accommodating, which can be awkward. I guess I will just ask where they are considering going so I can phone ahead and check it out.
  2. knittygirl1014
    I could swear I saw a thread on this before, but I can't find it. If anyone can point me in the right direction... I have a full day interview with several departments at a Biotech company coming up soon. The coordinator told me she wants to take me out to lunch that day. How do I bring up my dietary needs in a way that doesn't sound like I'm a primadonna...
  3. knittygirl1014
    I think this is really interesting to hear everyone's different viewpoint about it. Just illustrates the difficulty in getting a bill that everyone will be happy with (OK, that's impossible). I think doctors are currently encouraged to both run more and fewer tests now, depending on where the pressure is coming from. Yes, insurance sometimes deny things randomly...
  4. knittygirl1014
    I just wanted to mention that my gluten intolerance was triggered by a particularly bad case of the seasonal flu. I know my immune system is not back to its former glory, so I'll be getting the shot if it ever becomes available. I mean, really, if you're already feeling tired and achy because of gluten, do you really want to feel even worse? I don't know...
  5. knittygirl1014
    I've seen a lot of doctors in the last few years, and I think their attitude is the most important indicator of how good of a doctor they are! If they are not willing to listen to you and treat you like a person, imagine what they will do in the future when you have more questions or something else go wrong. The same thing! I was actually seeing a rheumatologist...
  6. knittygirl1014
    Well, let me clarify. I'm not afraid of socialized medicine, or a government run program. I got medicaid benefits for a short time when I was in college and it was great. I also had an HMO one time that I really liked, so that's not really the issue. Even if I stick with the insurance company I have now, new (possible) laws that would encourage doctors...
  7. knittygirl1014
    Wow, so many different stories! Glad someone mentioned drinking lots of water. I am so bad at this and have been trying to stay hydrated lately. Update for me- the last 4 months have been a little up and down. My joints still feel achy from time to time, and I've had to cut back on the gym-going, but I'm sure I'll work back up to it. I get really hungry...
  8. knittygirl1014
    Lactose is only part of milk- it is the sugar. Casein is the protein part, which is actually what irritates many celiacs. Lactose can be removed from products or digested with lactase (Lactaid), but casein has to be avoided. When I gave up all dairy (including butter, and trace amounts in anything) my GI problems improved vastly. I was also on an acid-reducer...
  9. knittygirl1014
    10 months ago I could have written that exact same post! I promise you will find new favorite foods. Try experimenting with Indian and Thai cuisine, they are very flavorful and a lot of stuff is gluten free, and you can make them yourself! Also keep in mind that the depression can be part of the physical reaction, so tell yourself it is normal and don't blame...
  10. knittygirl1014
    It took me 4 months before I felt any better- I actually felt worse for the first 2 months- and I had to completely eliminate dairy and soy as well before the bowel problems went away. It's been 10 months and I just was able to add dairy back this week. Still off soy. I used to get that metallic taste all the time. Not sure exactly what caused it, but it...
  11. knittygirl1014
    Hi everyone, I've been hearing a lot lately about how "cutting waste" from the health care system in the US is the way they are planning on paying for health care reform. Now, I'm all for reform, as I *have* insurance and still have racked up thousands of dollars in debt over the last couple of years trying to get the proper diagnosis. However, a lot of...
  12. knittygirl1014
    Hey there. I use Nutribiotic Rice Protein. It comes in different flavors and only has 3 or 4 ingredients. The statement on their website says "Completely vegan. Contains no soy, milk, eggs, yeast, corn, wheat, sugars, or preservatives." The jar I got is 22 oz but it also comes in 3 lb.
  13. knittygirl1014
    Hi Maceroni, I had terrible problems with constipation before I went gluten free. What you said about food sitting in your stomach makes me think you should do a little research on gastroparesis. Basically this is when food goes really slowly through your digestive system. It got so bad for me I was burping rotten egg taste and vomiting a lot. It was REALLY...
  14. knittygirl1014
    Anyone in Rochester, Syracuse or I think NYC... Dinosaur BBQ has lots of gluten free items! I went to the one in Syracuse a few weeks ago and my waitress said she eats gluten, dairy and soy free just like me! It was seriously the most thrilling thing you can hear in a restaurant, as I'm sure you know. She helped me pick out a really delicious meal and I had...
  15. knittygirl1014
    You can dip your veggies in hummus, or if you're weird like me, peanut butter. For an on-the-go breakfast, I found a recipe for healthy oatmeal cookies. You'd have to get Bob's Red Mill gluten free oats though. The recipe uses mashed up bananas and oil instead of lots of butter, and I used Splenda instead of sugar. I think the recipe was: 1 c oatmeal...
  16. knittygirl1014
    Even if curing candida overgrowth were a cure for celiac disease, the info he gave you doesn't make any sense. Candida is a yeast, and yeast feed on sugars. Starches and carbohydrates break down into various kinds of sugars. Him telling you to avoid chicken and turkey but to eat brown rice is absolutely absurd. Although brown rice has less starch than white...
  17. knittygirl1014
    I know what you are going through. I was in therapy and on a bunch of different medications for a long time before going gluten-free, none of which really helped all that much. It did seem to get a little bit worse after I went gluten free. I was starting to think I might be bipolar or something. I don't know if that's the detox or what. But after I cut...
  18. knittygirl1014
    It took me about 4 or 5 months to stop feeling ravenous all the time (even right after eating!) I think what helped for me was to add more soluble fiber and probiotics to my diet. If you can find psyllium fiber, you can mix it right into a glass of juice or some applesauce. It definitely helps you feel fuller. If you don't like the texture of that, try inulin...
  19. knittygirl1014
    I am currently loving these date balls I recently rediscovered. My mom used to make something like them for our hiking trips. I don't have exact measurements, I kind of just throw everything together. Dried dates almonds (or your favorite nut) rice chex (I have also used Mesa Sunrise cereal) honey flax seeds, Enjoy Life chocolate chips, or dried berries...
  20. knittygirl1014
    Everyone has made a lot of good suggestions, but I just wanted to add some products that I like that are safe. I am currently off eggs, dairy, soy and gluten, so I can relate to your troubles. I do eat meat though. When I was still eating all these things I used to get those stabbing pains in my chest too. My doctor freaked out and made me get an EKG,...
  21. knittygirl1014
    My take on this is that successful results that are easy to deploy are probably decades away. But think about it... if it became something that was part of all those childhood vaccines they give you, we never would have had to go through all the pain and trouble of gluten intolerance. It probably wouldn't help people who have already suffered through it...
  22. knittygirl1014
    Hello everyone, This is my first post although I have been lurking about for several months. All the information and support here has gotten me through a very tough time and I don't know what I would have done without it! So I thought it would be a good idea to post my "timeline" and story now that I am feeling better so other people can take some hope...
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