
PattyBoots
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Everything posted by PattyBoots
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We Need To Start A Thread On Stupid Stuff Doctors Say!
PattyBoots replied to mushroom's topic in Doctors
Which is why I have a list of questions I have to "interview" a doctor I've been told is good before I even get into his "practice". Top of the list is, "Can you listen to a question I have without using that time to think about what you're going to say next?" -
ARCHIVED Genetic Testing-Laboratory Recommendations?
PattyBoots replied to Mrs. M.'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I got an email on April 19 from Prometheus stating that they will discontinue the genetic testing as of April 30 and the myceliacid.com address will be shut down on May 18. Also, directly from the email: "Prometheus will continue to offer celiac genetics testing which can be ordered by your healthcare provider." IOW, you'll no longer be able to order it... -
We Need To Start A Thread On Stupid Stuff Doctors Say!
PattyBoots replied to mushroom's topic in Doctors
Went to dermatologist for ugly, itchy, weepy rash, particularly around my midsection and chest. Doctor walks in and takes one look. Conversation goes as follows: Doc: Nasty lookin' rash. Bet it itches. Me: Uh huh. What is it? Doc: *shrugs shoulders* Dunno. Here's some cream. Probably won't help, but that's all I can give you. Me: *boggles... -
ARCHIVED How Do You Get Your Spouse On Board?
PattyBoots posted a topic in Coping with Celiac Disease
Hubby loves me; this I know. But, he's not especially educated and so doesn't understand the need for COMPLETE adherence to the diet. He doesn't "get" that I don't want to (forgive me) slap tongues with him after he's been drinking beer. He's all for me feeling better, but doesn't understand "just a little bit won't hurt you" WILL. I intend to try to... -
ARCHIVED Chicken Broth----And Another Question....
PattyBoots replied to MEH's topic in Coping with Celiac Disease
Pacific Natural is gluten-free. It is very cost-friendly at Costco but can be purchased at Walmart. It comes in a resealable carton and is delish. -
ARCHIVED To Those Who Understand...
PattyBoots replied to The Glutenator's topic in Coping with Celiac Disease
I wonder if this is why I got to be this old (46) before REALLY having problems. I remember telling one doctor that my idea of convenience foods was frozen vegetables. We've always eaten at home, and FAIRLY simply. I can't do the "cook for the week" thing because if it's not fresh, I can't eat it. Can't stand leftovers unless I turn them into something... -
ARCHIVED For The Love Of God Can Someone Please Help Me?
PattyBoots replied to jasonD2's topic in Coping with Celiac Disease
Please don't think I'm flippant, BUT - Since you're already in Baltimore, perhaps you could call the UM Celiac Center and see if they can help you. -
ARCHIVED Gene Test + Family History + Symptoms + Uncooperative Doctors
PattyBoots replied to PattyBoots's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm reasonably certain I've had outbreaks of DH. Several years ago I had an awful, suppurating rash all across my stomach and down my arms, and another time on my sternum. I went to the derm, who looked at it and said, "Oooh. Nasty rash. Bet it itches." My reply was, "Uh huh. What is it?" He literally shrugged his shoulders and said, "I dunno. Here... -
ARCHIVED Has Anybody Just Tried This?
PattyBoots replied to PattyBoots's topic in Coping with Celiac Disease
I guess since I LITERALLY have no family - they've all died, and I suspect my mother from undiagnosed gluten issues, I really don't give a rat's ass if anyone is offended anyway. Having worked in the food service industry years ago, I don't like going out to eat anyway just because of the filth. Although, there is ONE pizza chain I'm partial to and that... -
I'm new to the gluten-free diet, but not new to the "picky" diet. Whenever anyone has ever offered me anything I didn't want/didn't like/gave me troubles, I just said "No thank you." I never offered a diatribe. I never tried to educate anyone. I just said, "No thanks." They moved on. No questions asked, no questions answered. Even when they "pushed...
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ARCHIVED Gene Test + Family History + Symptoms + Uncooperative Doctors
PattyBoots replied to PattyBoots's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was hoping that my GYN having trained in Canada would make him be more open/sympathetic to ordering the panel. I'm 46 years old, so I suspect I'm probably a good way along the way to ruinous damage if I do have the disease. I forgot to mention a few things - I also have scalp lesions and neuropathy. The neuropathy pretty much came on suddenly a few... -
I had the gene test done and came back DQ2 Homozygous. Alleles detected: DQ2.5 (HLA DQA1*05:DQB1*0201) and DQ2.2 (HLA DQA1*0201:DQB1*0202) From my rudimentary genetics classes in the 80s, along with the Wiki entries, that in and of itself is pretty damning. My teeth are horrendous. My mother, her mother, and her mother before her all...
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ARCHIVED Is It Supposed To Smell Like That?
PattyBoots posted a topic in Gluten-Free Recipes & Cooking Tips
I'm in the midst of baking a loaf of Gluten Free Pantry French Bread and Pizza Mix and the smell is horrific. Forgive me, but it smells like vomit and my stomach is rolling over. I can't open the windows and air it out because it's 90+ degrees here and I do enough air conditioning the outside with three dogs wanting in and out all day This is my first... -
Cherry tomatoes aren't just for salad - sautee them quickly over high heat in butter or olive oil (or a combination - YUM), seasoning liberally with basil (fresh if you have it) and salt and pepper and garlic, until the skins crack. Great by themselves or on pasta.
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ARCHIVED Bread/pasta Substitutes While Still Healing
PattyBoots replied to OliveBranch's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I suspect the "don't eat the freaky gluten-free bread" comes from not wanting folks to pay $5.00 for a loaf of bread just to find out it doesn't really taste like bread. Don't get me wrong - I LIKE Pamela's pancakes. But they'd be a "choice," not a "requirement." They're too damn sweet. -
ARCHIVED Celiac Disease Discrimination
PattyBoots replied to KSUmarlow04's topic in Publications & Publicity
WOW! I can't understand how they were that "gruff". It would seem to me that they would be more than happy to be rid of "a problem child" by letting you eat off campus. I know that would have been the easy route taken by administration at WVU in 1982-ish. -
ARCHIVED Typical Menu...?
PattyBoots replied to Tabasco's topic in Gluten-Free Recipes & Cooking Tips
I don't mean to be evil, but ... think about what you have always made. Was it pre-processed stuff? Then you have a lot of relearning to do. Otherwise, most everything is easily adaptable. For example, I made the most delicious chicken tonight. Chicken pieces with the skin on - pull the skin up and slide fresh basil leaves and garlic underneath (I... -
Well, the deer got the main garden - poor things are so encroached on with all the development our 50 acres looks like paradise to them, I suspect. But what we just said the hell with and put in pots strewed about the fenced-in dog yard seems to be doing well. Lots of cherry tomatoes - off one plant! And we'll soon be overrun with habaneros. Lots of basil...
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ARCHIVED Over The Moon About Tinkyada
PattyBoots posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I finally screwed up my courage and tried the brown rice elbows tonight. First pasta of any kind I've tried since going gluten free June 1, 2009. I was utterly petrified. We've never been big pasta people anyway, so doing without wasn't that big of a deal, except I really, really wanted mac-n-cheese to go with my ribs tonight. So, I did the "boil for... -
ARCHIVED For $10/loaf It Should Be Fresh
PattyBoots replied to NewGFMom's topic in Gluten-Free Foods, Products, Shopping & Medications
It would at least be an ATTRACTIVE doorstop, eh? -
If she's 36, that ain't "Daddy's little girl". That's "Daddy's little b*tch". I'm a firm believer in the mantra a very wise man said, "Be Who You Are and Say What You Feel Because Those Who Mind Don't Matter and Those Who Matter Don't Mind." Stand your ground and tell her that if she's not going to respect you and the way you keep house, she can just...
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ARCHIVED Hubby Cooked Me Dinner.
PattyBoots replied to SGWhiskers's topic in Gluten-Free Recipes & Cooking Tips
That is truly awesome - that he TRIED. I'd be extra special to him tonight *wiggles eyebrows* if you're up to it. Then again, he just might mess stuff up on purpose just because, if you know what I mean. But that is really, really sweet. If he cleans up the mess, that's even sweeter -
ARCHIVED Corn Tortillas
PattyBoots replied to JBaby's topic in Gluten-Free Foods, Products, Shopping & Medications
I'm so glad someone else is in the same boat - I think the corn tortillas taste like unadulterated crap. I'd rather do without ANYTHING. Since I've never been a bread-y kind of person, it's been pretty easy; always eaten like 2 sammiches a month. But egad - the corn tortillas SUCK. -
ARCHIVED Unholy Triad Of Misery
PattyBoots replied to PattyBoots's topic in Coping with Celiac Disease
Thanks, guys! Much better now that the Cipro's kicked in. And, ABSOLUTELY ix-nay on the bubble bath (or bath, period) with a UTI. Besides, I never take a bath - it grosses me out. It just always seemed like I was sitting in a bucket of dirty water, even if I showered beforehand. -
ARCHIVED Against The Grain Type Rolls
PattyBoots replied to NewGFMom's topic in Gluten-Free Recipes & Cooking Tips
I wonder if I could substitute Feta for the oaxaca cheese? I don't know what got into me the other day at Costco when I bought a giant vat of Feta ... The rolls look DELICIOUS!