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Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995
Everything posted by The Fluffy Assassin
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ARCHIVED Cross Contamination
The Fluffy Assassin replied to Nancy Kotlowski's topic in Coping with Celiac Disease
We are just random yoyos on the Internet; there's no particular reason he should believe us. This is the freaking Mayo Clinic: Open Original Shared Link Maybe he'll buy it from them. He can never eat gluten again. At all. Ever. Some of us are silent celiacs, having little gastroenterological effects from gluten. I never did until my 40s, though I did look... -
ARCHIVED I'm Going Insane...
The Fluffy Assassin replied to Liveenjoylife's topic in Coping with Celiac Disease
You're absolutely sure that your pots, pans, utensils, dishes and implements are gluten free, right? I ask because that's a pretty unusual constellation of foods to be reacting to. If you're absolutely sure, then I'm sorry there's not a lot in the way of direct substitutes for any of those. Canola oil is fine, but it certainly doesn't taste like olive oil... -
ARCHIVED Non-celiac Gluten Sensitivity?
The Fluffy Assassin replied to Headache-free's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Tofu doesn't have gluten in it. It's possible that they used soy sauce (which contains wheat) for some reason. It's also possible that you're sensitive to soy. You may wish to consult an allergist to be on the safe side. You may also want to take B12 supplements, as you're probably years or decades low, at least if you're celiac. Other nutrients we can... -
ARCHIVED Handling Extended Family's Dinner Hostings When They're Not gluten-free Careful
The Fluffy Assassin replied to lobita's topic in Coping with Celiac Disease
Bring your own food and smile a lot. You aren't the one creating a wedge; she is. Don't worry about it. Some people are ignorant; some people are stupid. You can't change them. Just do what you have to do to be healthy, keep as much of a sense of humor about it as you can, and enjoy yourself as much as you can. (In the longer run, you can invite her over... -
ARCHIVED Not Sure What To Do - Going Gluten Free Now Or Later
The Fluffy Assassin replied to stick03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It is your decision to make. If you want to be tested in October, going gluten free beforehand (as has been pointed out) will likely give you a negative result regardless of whether or not you're actually celiac. Moreover, if you want a definitive diagnosis, you would have to continue to eat gluten until you have a biopsy of your small intestine. Many of... -
I agree that you have it tougher than most of us, but you still have to focus on what you can still eat. Even staying vegetarian, you have potatoes, the Three Sisters (corn/maize, beans, squash), tofu and other soy products (including gluten-free tamari to make it all taste better), fresh fruit other than citrus, and a wide range of grains such as quinoa...
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ARCHIVED Allergy To Wheat Is That A Gluten Allergy ?
The Fluffy Assassin replied to talula2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Not necessarily. Mayo Clinic (speak of the devil) says persons allergic to wheat may be allergic to any of four proteins in wheat, one of which is gluten: Open Original Shared Link Of course, two pages back they call celiac disease an allergic response (which it isn't, it's an autoimmune disorder) so even the Mayo Clinic staff isn't infallible. What kind... -
ARCHIVED Periods Off Diet Do They Really Have An Impact?
The Fluffy Assassin replied to UnhappyCoeliac's topic in Coping with Celiac Disease
You risk dying painfully of intestinal cancer. Up to you, of course. -
ARCHIVED Is It Celiac Disease? Please Help.
The Fluffy Assassin replied to Simbus23's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If any of the doctors who saw you as a child are still practicing, you need to try to get a hold of your medical records and see whether or not they did allergy tests and what the results were. Doctors can be fairly clueless about celiac sprue, but don't usually just declare that you have allergies with no evidence. If you can't find records, your first move... -
ARCHIVED Sort Of Confused And My Story..and Question.
The Fluffy Assassin replied to Matt007b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
By tingling, do you mean pins-and-needles? If so, that's the classic sign of B12 depletion, which is in turn a classic sign of celiac sprue. (Or you might be Spiderman, I don't know.) As to sandwiches, go get soft corn tortillas and make wraps. They're cheap, they're wonderful, they're versatile and they're gluten free. I truly have completely forgotten... -
ARCHIVED Sort Of Confused And My Story..and Question.
The Fluffy Assassin replied to Matt007b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome Matthew, Actually there are three different possibilities (revolving around wheat): wheat allergy, gluten intolerance, and celiac sprue. The latter two require the same gluten free diet: no wheat, no barley, no barley malt and possibly no oats. Wheat allergy is just what it sounds like, and so the dietary approach is just to cut out wheat. As you... -
ARCHIVED Ne Cola. Sc
The Fluffy Assassin replied to snowygiraffe's topic in Introduce Yourself / Share Stuff
On the remote chance that anybody surfs in between now and tomorrow, I note that there is not in fact a meeting tomorrow (the picnic having taken its place); next meeting is July 20, 2009. -
ARCHIVED "millet Is A Gluten Free Food"
The Fluffy Assassin replied to The Fluffy Assassin's topic in Gluten-Free Foods, Products, Shopping & Medications
Egg-zackly! (Eggs are a gluten-free food, too.) -
ARCHIVED "millet Is A Gluten Free Food"
The Fluffy Assassin posted a topic in Gluten-Free Foods, Products, Shopping & Medications
This is on the Eden Organic millet label. No doubt true, but does it actually say that this particular package is gluten free or is it a way of weasel wording a way out of making such a declaration, or is it a way of sounding like you're saying it's gluten free without actually saying anything? This is a continuation of a discussion from another thread I... -
but... they didn't recall the old ones that aren't necessarily, so you still have to check on a case by case (or is that carton by carton) basis. But I'm thrilled to death, because I think their Peanut Noodles are one of the truly great products I've found. It was the first thing I found that made me say, yeah, I can survive going gluten free. I'm sure that...
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ARCHIVED I Can't Figure Out How Gluten Would Be Sneaking Into My Millet Couscous
The Fluffy Assassin replied to The Fluffy Assassin's topic in Coping with Celiac Disease
My soap removal skills aren't sufficient for that sort of thing; I have enough trouble just doing the dishes. I think I'd give up millet first. -
ARCHIVED I Can't Figure Out How Gluten Would Be Sneaking Into My Millet Couscous
The Fluffy Assassin replied to The Fluffy Assassin's topic in Coping with Celiac Disease
Grain free and gluten free, but thanks for the suggestion. Given the problems with cross-contamination in people food, I would suspect that these would be many times worse for pet food; I think I'll follow your advice. -
ARCHIVED I Can't Figure Out How Gluten Would Be Sneaking Into My Millet Couscous
The Fluffy Assassin replied to The Fluffy Assassin's topic in Coping with Celiac Disease
Sure, I do that. I could use a finer mesh strainer or sieve so I could wash the millet better, but I definitely wash it. Thanks for the reply. -
ARCHIVED I Can't Figure Out How Gluten Would Be Sneaking Into My Millet Couscous
The Fluffy Assassin replied to The Fluffy Assassin's topic in Coping with Celiac Disease
Thanks, I'm pretty sure the puffed millet is ok, but given your experience I don't think I'll be trying any other Arrowhead Mills products. I'll look into the other grains you recommended; I'm continuing to find gluten-free living a non-stop adventure. I crazy mad love quinoa; maybe I'll switch breakfast cereals to quinoa flakes. Strictly speaking,... -
ARCHIVED New And Overwhelmed
The Fluffy Assassin replied to MaggieMay's topic in Coping with Celiac Disease
Hi back, and welcome. Beginner tip one: Relax, breathe. Going gluten-free is a lot easier than you think. Gluten really isn't in everything; it just seems that way sometimes. Take it meal by meal. Breakfast is easy if you're an eggs-and-bacon type person; you don't have to change anything. If you like cereal, you'll probably be making changes, as most... -
ARCHIVED I Can't Figure Out How Gluten Would Be Sneaking Into My Millet Couscous
The Fluffy Assassin replied to The Fluffy Assassin's topic in Coping with Celiac Disease
Thanks. Amelia gets Evo dry, which supposedly has no grain at all. So I think I'm safe at that end. What she might be plotting is a different question. -
ARCHIVED I Can't Figure Out How Gluten Would Be Sneaking Into My Millet Couscous
The Fluffy Assassin replied to The Fluffy Assassin's topic in Coping with Celiac Disease
It's non-stick. I guess I can just try giving it a very very thorough cleaning. However, as I use it to heat everything (no microwave), I have to be very sure it isn't contaminated. It occurs to me that I might still get a new one and keep this one for the next accidental cross-contamination fiasco. I try hard, but they're nearly inevitable, aren't they? -
ARCHIVED New To Gluten Free
The Fluffy Assassin replied to Bebop's topic in Coping with Celiac Disease
Depending where you are in Kentucky, there may be a support group you can join. A cursory Google search indicates there's one in Louisville, for example. A support group would help enormously in both coping and not wanting to scream, because you can feel so alone. This board has a forum on support groups (admittedly slow) and a meeting room for meeting... -
ARCHIVED I Can't Figure Out How Gluten Would Be Sneaking Into My Millet Couscous
The Fluffy Assassin replied to The Fluffy Assassin's topic in Coping with Celiac Disease
You may have something there. In fact, she just prevented me from replying for ten minutes by jumping on my chest and demanding scritches. You gotta watch those cute ones. Seriously, I'm pretty sure the right answer was suggested above, the one about contaminated pots and pans. I'm still going to eat the entire batch (I ate gluten for 45 years; I'm pretty... -
ARCHIVED Do I Have This?
The Fluffy Assassin replied to fairycake's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Let's start with the skin. Dermatitis Herpetiformis (DH) Open Original Shared Link is a comparatively common side effect of celiac (coeliac) disease. If the description at the link above sounds like what you're experiencing or if any of the following look like what you're experiencing Open Original Shared Link you might want to visit a dermatologist first...