Googles
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Latest Celiac Disease News & Research:
Everything posted by Googles
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ARCHIVED The Most Annoying Thing About Celiac Is...
Googles replied to GFreeMO's topic in Coping with Celiac Disease
The crushing depression(physical and mental)that comes when I get glutened (even from CC). -
ARCHIVED Why Aren't Doctors Up To Speed?
Googles replied to SarahJimMarcy's topic in Coping with Celiac Disease
Sadly I have talked to two people (not a big sample but telling). One of my friends who just started her residency when I asked her what she knew about celiac and she told me that it was a disease you only have to look for in children. The boyfriend of my friend who just finished his residency in GI said that anyone who hasn't had a biopsy and thinks they... -
ARCHIVED Please Help Me Kill My Acid Reflux
Googles replied to Strawberry-Jam's topic in Coping with Celiac Disease
I wanted to add something. When I get glutened I usually get heartburn/reflux as a reaction. For me it only takes a very small amount of CC to make it happen. But the heartburn/reflux can last for weeks. Last time I got glutened I had heartburn for 2.5 weeks, even when I knew there was no other risk of CC. I haven't been able to figure out how to get it away... -
ARCHIVED So How Did It Start With You
Googles replied to Chad Sines's topic in Coping with Celiac Disease
I was lucky that I think it was caught pretty early in terms of digestive symptoms, though some of the symptoms like knee pain and shin splints (only happens now when i get glutened) goes back to high school. But the D that lead to me going to the doctor was just intermittent when I went in. So I don't know what that means exactly. The doctor tested for celiac... -
What really pissed me off about the reactions I have gotten are from my graduate program. I was told by my adviser that it was inappropriate for me to ask about whether or not I would be able to eat what they were providing at the new student lunch. Even though I didn't ask them to change anything. He said that it was too stressful for them to accommodate...
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Need to Rant: I am feeling really irritated lately. I have been glutened from CC four times in the last month and a half. I'm not sure exactly where it is coming from, but I think it might be my nannying job. So lately I've been really sensitive. I just need to rant about this as when this came up I was talking about having had a nightmare where I...
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ARCHIVED Even At The Hospital... People Don't Understand
Googles replied to DonnaMM's topic in Coping with Celiac Disease
I was working at a hospital when I was diagnosed. I asked the staff about if the hotdogs were gluten free (they were really good so sometimes i would get one for lunch) but they didn't know. I mentioned this to one of the supervisors in my department when she asked me how it was going with being able to find food and such. She was surprised that they didn... -
I hear you all saying I will share, and I did share with one person. I will try being more forthcoming in the future. My experience has been bad with sharing my celiac with my school was I have been discriminated against. My professors said things from that my asking about what was being served at a lunch for new students (shortly after diagnosis and so I...
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I am O+ brown and hazel. I am also a Western Euromutt (sorry had to steal that) with some Native American ancestry.
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My internship had its first potluck today. I found it really uncomfortable because everyone kept asking me why I wasn't eating the "yummy food" that people brought. It made me feel even more awkward. I know in other social situations people have known about my celiac as they have been social situations, but I didn't really want to share this information with...
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ARCHIVED Fiance Had UC/J-Pouch & Now Celiacs, In Over My Head....
Googles replied to learning's topic in Coping with Celiac Disease
Hello, My first suggestion is to take a deep breath. It will take a little while to accept and then change. Mistakes will be made (look at how many posts there are on getting glutened), but it will be okay. There is a steep learning curve, but it will be okay. Take time reading over the board. There are lots of people having gone through this who have a... -
ARCHIVED Heartburn As A Gluten Reaction
Googles replied to Googles's topic in Coping with Celiac Disease
I did get and endoscopy. They didn't find a hernia. I do get hiccups, but I think they are more related to stress than what I eat. I only get the heartburn/pressure when I get glutened, but then it can last for a couple of weeks. Right now with my practicum I am having crazy hours and am lucky if I can get any meals at regular times. Thanks everyone for... -
ARCHIVED Did Everyone Have A Biopsy To Determine Celiac?
Googles replied to michelle5578's topic in Coping with Celiac Disease
I know everyone is saying that you will be given medicine and forget the procedure, but that wasn't the case for me. I remember both the endoscopy and colonoscopy that I got. They did both because there was a family history of Crohn's and so they wanted to make sure that everything else was okay. Everyone told me before going in that my anxiety was unneeded... -
ARCHIVED Heartburn As A Gluten Reaction
Googles replied to Googles's topic in Coping with Celiac Disease
Thank you all for your replies. They really help. It isn't about laying down because it would happen no matter what I did. I would eat at work and have trouble for the next couple of hours. Even when drinking something. It is getting better. I will make sure to eat easier foods to digest when this happens. It would be really nice if the reactions would stay... -
So one of my gluten symptoms is heartburn and nausea and a pressure like my stomach is trying to press up through my diaphragm. How do others deal with it? I take tums for it, but it doesn't help. Do others have things that work better? After I eat I get nauseous (though previously I have had times where I would be nauseous all the time). Why can't it stop...
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ARCHIVED Do You Have Dreams About Accidentally Eating Gluten?
Googles replied to srall's topic in Coping with Celiac Disease
I have these dreams every once in a while (more like nightmares). It really sucks. Once I wake up I have to figure out if it was a dream or real. -
ARCHIVED Ugh! People Just. Don't. Get. It.
Googles replied to zus888's topic in Coping with Celiac Disease
I also suggest that you get therapy. If you are in or near a large city you can look for a therapist who specializes in helping people cope with chronic illness or dealing with serious diagnosis. The best place to start that search would probably be an outpatient clinic in a hospital. If they don't have anyone who specializes in it, they would probably be... -
I was at the store today and bought some gluten free foods (yes the manufactured ones that everyone here says we should never eat). I bought them and got coupons for other gluten free foods that the store has. I thought that was awesome. Most of the time I get coupons for things I can't even buy. So it was nice to get ones for things I can use.
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I just got back from my brother's wedding. They were very helpful. Know that the price of things like a place setting at these types of things are set a head of time, and differences in what is served can cause differences in the final bill amount. I am not excusing the person's behavior, she should have helped you as much as possible, even to just say she...
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ARCHIVED After Being Glutened Do You Ever Pass This?
Googles replied to GFreeMO's topic in Coping with Celiac Disease
I get mucus after getting glutened. It can confirm that the aches and pains I feel without much GI problems are actually from getting CC. -
ARCHIVED Good Reaction To Celiac Disclosure
Googles replied to Googles's topic in Coping with Celiac Disease
I told my other practicum adviser about my celiac. She was very supportive too and knew what it was. She was like, "it will be fine". This is such a much better reaction than I got from my school. It is nice to have support. -
Thank you again everyone. I think I am going to have to get a bigger lunch bag. Sadly I don't have my own office or any way to store anything at my work. (All the interns share an office that is actually a full time employee's office so we only have access when someone higher up isn't using it.) And have no space to put things. I was there for five hours...
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Thank you everyone for your suggestions. You have given me a lot of other ideas of new things to try along with my friend's recipe. Thanks!
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So I have another food question. My schedule does not give me any free time to call companies while they are open so I am hoping you all can help me. I found a rice recipe I like that a friend made, and so am now trying to buy a large amount of plain rice. I was wondering what companies people go with. I can read the labels that say there is only rice in...
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thank you everyone. I have lunch (or an attempt at it for tomorrow.) I will add your suggestions into my shopping list for tomorrow for the next day. thanks.