Googles
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Latest Celiac Disease News & Research:
Everything posted by Googles
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I found a sign at one store that had been put in the wrong place (on a food that was obviously not gluten free). I pointed it out to a store employee who didn't seem to care. After that I ignored all those signs. I'm sorry this happened to you. You should let the store know if you haven't.
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ARCHIVED Doctors Still Not Diagnosing Me, Need Advice!
Googles replied to Kirstie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
As you are 19 I would suggest going back on gluten (as soon as possible) and get the testing. If you are in college or want to continue school, you will need the official diagnosis for accommodations. There are also work places that may require this also. You don't know where you are going to end up, so it would be good to have this. -
ARCHIVED Deeply Frustrating LGBT Issue
Googles replied to tuxedocat's topic in Coping with Celiac Disease
Hello. I have the same worries. Since the lesbian dating scene is already so much smaller than the straight dating scene it makes it a lot harder. I'm afraid I wont be able to find anyone who will be willing to go gluten free at home which I am going to need to have that to stay healthy. And how do you deal with things with like the other person's lipstick... -
Hi Sacredblossom, Are you over 18? If so, no matter what position your mother has at your doctor's office, she should not have access to your files. If something needs to be done with your files, someone else should be doing it unless you have signed a release for your mother to have access to your file. Your mother should not have access to your file, especially...
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Hi. Your situation really sucks. It sounds like there was miscommunication here. (Thought during the meeting with the boss that was just plain rude). Sadly, there are steps that are required to get accommodations. You can't just come in and say that you have something and go about what you want. If the childcare facility has an HR department that is who...
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I had pressure/pain in that v spot below my rib cage when I had acid reflux. It made me feel so awful. Sometimes it felt like something was trying to burst its way out of my chest. I had this really bad when I would eat acidic foods (oranges, tomatoes etc) after going gluten free, and then again if I got glutened then I would be sensitive to it again for...
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I have donated blood, actually only after going gluten free. I did feel weak the next day the first couple times. And still a little now. But I put up with it. Are you making sure to stay hydrated (both before and after) and eating well? Those are important.
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He has picked the restaurant. I am going to call them, but I'm worried about eating out. He seemed to become very insistent that I don't bring my own food. He said it would make him uncomfortable if I brought my own food. How much should I push to bring my own food. If I don't feel safe, should I just get a drink and leave it at that as I know he wont make...
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I am finishing up my internship. My supervisor has been great during my internship. However, a problem has arose. He wants the interns to go out for dinner before we all leave. He wants to take us somewhere that I can eat because he knows about my celiac. I told him not to worry about it and that if I didn't feel like the place he picks would be able to feed...
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Excuse ME! I can be pissed about more than one thing at a time. I can be frustrated with Celiac which I'm usually pretty good at dealing with most of the time. But it is much harder for me when big things come up. I can deal with the questions at pot-lucks when I bring my own food. I can deal with having to do extra planning when it comes to eating out with...
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Some people not only take hours to react, they can take a day or more. I think I respond in about 24 hours.
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ARCHIVED Mood Swings After Contamination?
Googles replied to PadmeMaster's topic in Coping with Celiac Disease
This is totally me too, though I get depression (really really bad) instead of anxiety (at least hardly ever). Though there are some times I get anxiety. I find it much worse than the GI symptoms I get. -
Thank you all for your replies. I think to some extent the food is an issue, but really it is a lot of other stuff going on as well. It is just easier and simpler to be frustrated about the food. It is easier to be frustrated about the food rather than angry that my parents don't think it is important for them to come to my graduation, another major accomplishment...
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I am graduating from my MS program at the end of the month. I am trying to figure out what I want to. For a lot of complicated reasons I'm not sure if I am going to go to the actual ceremony. I have a lot of mixed feelings about graduation. This is the first major milestone for me since I was diagnosed(I was literally diagnosed two months before moving for...
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ARCHIVED Sharing A Hospital Gluten-Free Experience
Googles replied to T.H.'s topic in Coping with Celiac Disease
I got diagnosed at a major north eastern hospital (world renowned). So you would think that the doctors/dieticians there would know about things. However, when the GI doc told me about my celiac diagnosis it was over the phone (and sadly 15 minutes before I was supposed to start an overnight work shift). She told me the diagnosis and that was it. Then she... -
I have dermatitis on my face and something on my scalp. I also get dry hands and have these little red splotches with darker red dots in them. I have never had those identified. I use something called protopic for the dermatitis when it gets really bad. I am lucky that most of it doesn't bother me (I actually have to look into the mirror to tell if there...
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Thanks both of you. So I have decided it is a gluten reaction with a few other possible things on top (including sinus infections), the typical gi symptoms started today. I had been mostly pain free for five years on the back injury, so it really sucks having the pain back and not being able to move without pain. I hope that I don't have to go back to physical...
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I am feeling awful. I am having aches and pains in my joints and muscles. I am feeling tired. My back which I injured about six years ago is inflamed (to the point that any movement sends shooting pain). But I'm not having much (though there is some) GI issues. I don't have a fever, but I have had a sore throat and have a headache (which might be allergies...
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ARCHIVED Family Says I'm Paranoid And Should Go Back To Eating Gluten
Googles replied to llama3's topic in Coping with Celiac Disease
I'm sorry your family is being so awful. I also get suicidally depressed when I get glutened (and anxiety sometimes). It helps me when I realize it is the depression and not my clinical depression returning with a vengeance. Then I know it is going to stop. I didn't know other people experienced the same thing. Have you tried providing your parents with... -
I get their hot chocolate with whipped cream all the time. I have never had a problem with it in the last almost three years (since my diagnosis) (well, unless it is not hot enough for me because I forget to ask for it extra hot )
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ARCHIVED Friends Purposely Glutening Me!
Googles replied to Victoria6102's topic in Coping with Celiac Disease
You need to get your parents involved. You need to tell them about your fears about them putting gluten in your food. This is not a small issue. This is a BIG issue. The exposure to gluten causes your risk of long term consequences to increase. While the reaction to gluten isn't as fast acting as peanuts (and unless there is an allergy on top of the celiac... -
I spent two years after diagnosis living by myself. So my apartment was gluten free. This year I had to have a roommate because of financial issues and so I live in a shared kitchen (a very small one). She is not here most nights (she spends the nights w/ her boyfriend) so it isn't as bad. But I have been glutened more this year than I was in the previous...
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ARCHIVED Problems After Eating?
Googles replied to confusedandlost's topic in Coping with Celiac Disease
Does this happen every time you eat, or only when you eat those two products? If it is just those products it may be another ingredient (non gluten) that is bothering you. You should look and see if there is anything that is in both of them. Good luck figuring this out. -
It isn't that I think he is wrong. I understand that he processes his thoughts out loud. And he wasn't trying to be dismissive. It is just the emotional reaction that I was having. I guess since so many people are "gluten light" and are like it is just the "diagnosis of the time" (I work in a field where there are diagnosis that go in cycles and so over...
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I'm not sure if dismissed is the right word. Sometimes when talking about Celiac with people (especially one person) they will bring up that the rate of Celiac (or it's diagnosis) has been increasing over the last 20-30 years. He will then say that it must have something to do with the environment (changes in wheat etc). I'm not challenging whether or not...
