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KaitiUSA

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Latest Celiac Disease News & Research:

Everything posted by KaitiUSA

  1. KaitiUSA
    Yes, they have a nice selection available. We get their products at any local health food store where we live.
  2. KaitiUSA
    I would definitely try the diet. Which blood tests were done? Some are very specific. Also, a biopsy can rule celiac in but it can't rule celiac out. If there is sporadic damage they can easily miss it and if it is in beginning stages you may not have damage yet.
  3. KaitiUSA
    I think it depends on which tests and which labs do it and also which insurance companies. I had the celiac gene test as well as the full panel for celiac done by Prometheus Labs(one of the best ,if not the best ,labs for celiac testing) and I also had tests for other things run. We ended up having to pay quite a bit but the insurance company did help some...
  4. KaitiUSA
    Well here is the full panel that should be run in check for celiac: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) Total Serum IgA You do not have to have it from birth...most people with celiac have a gene that predisposes them to celiac. This gene can activate at any point in life...
  5. KaitiUSA
    There are over 200 symptoms with celiac and everyone differs as to which symptoms they get. In fact, some people do not get symptoms at all so that makes getting a diagnosis worse. They really need to do regular screening for celiac because it is very common...as many as 1 in 90 may have it in the US but only about 1 in 4900 I believe are actually diagnosed...
  6. KaitiUSA
    If the diet is ignored many other problems will arise. Most people who have other issues is because the celiac was undiagnosed for so long and other problems then started to arise. If the diet is ignored you are 40-100 times more likely to get cancer, diabetes, osteoporosis and other life threatening and disabling things. It also knocks an average of 10...
  7. KaitiUSA
    I believe Miracle Whip is a Kraft brand and that is a brand that will clearly list wheat,rye, barley, oats right on the label or they are safe. There is a list of brands that won't hide anything even under otherwise questionable ingredients. They are found all over this site but you are welcome to email me and I can send them to you if you would like.
  8. KaitiUSA
    I used to use that product and I think it's wonderful. Now, I use something similar but it's called IntestiMax...also has L-Glutamine in it and it works well for me. I still take vitamins and supplements even though I feel good. I would give high recommendation for these supplements.
  9. KaitiUSA
    any lack of nutrients would indicate a gluten problem? I mean it can be a symptom but if it is in beginning stages where you don't have that problem yet they may show up fine. You really need to have a celiac panel done in order to get proper results for celiac.
  10. KaitiUSA
    Wow you are so sweet to do all that for her! Ok well here are some things that may help: Here is a link you can get lists of safe and forbidden foods and ingredients: https://www.celiac.com/st_main.html?p_catid=12 Here is a recent list of mainstream brands that will not hide anything even under questionable ingredients. These brands will list...
  11. KaitiUSA
    Celiac is not an allergy so celiac would not pick up on allergy testing.
  12. KaitiUSA
    You could. Alot of people get more sensitive but some people just never get symptoms. I personally got more sensitive.
  13. KaitiUSA
    Yes it is gluten free. I love their Frappucinnos!! Believe it or not...most of their drinks are gluten free
  14. KaitiUSA
    It's not hard to live with when you get used to it. It was overwhelming at first and you need to learn alot because products like makeups, shampoos, lotions, soaps,medications and that kind of stuff needs to be changed in addition to food. Feel free to contact me and I can give you a few lists that would be helpful. My email is in my signature. Also...
  15. KaitiUSA
    Welcome! I am 18 and diagnosed almost 2 years now....you can email me anytime...my email address is at the bottom of my signature.
  16. KaitiUSA
    Well everyone heals in different times but you have to be 100% gluten free for that to take place. For symptoms to go away it also varies. Took me 8 months to get back to normal but for some people it may take less time then that and for some it may take longer. Even eating the smallest bit of gluten as frequent as once a month is just like not following...
  17. KaitiUSA
    This this guy is new he may be more open to learning than others. Try to educate him and push for celiac tests even if he does not think it is celiac. Also, the test he ordered will not show for celiac.
  18. KaitiUSA
    Yes, most of us here agree that products are high risk for contamination. Think about it....if you wash your hands with gluten containing soap or have some kind of gluten containing lotion on your hands and then prepare your food then you now have traces in your food. How many times a day do you touch your face or hair subconsciously? If you have gluten...
  19. KaitiUSA
    This is a recent response from Herbal Essences: I used their products pre diagnosis but I stick with a brand I feel safe with(Dove) now. Not so sure how I would feel using a product where they do not know for sure whats in it and that they are admitting can potentially contain gluten. Someone had asked me about Herbal Essences so I thought I would...
  20. KaitiUSA
    Since January 2004 so coming up on 2 years here soon
  21. KaitiUSA
    Sounds like she has it. Even if there is negative bloodwork I would say she has it. Obviously she has damage so even if negative bloodwork comes back she still has that damage. She would need to go gluten free then get a followup biopsy like 6 months later (after being 100% gluten free) to see how the progress is coming along with the damage. Most people...
  22. KaitiUSA
    There are alot of mainstream things that we can still have and they are not too expensive. There are a list of mainstream brands that will clearly list wheat,rye,barley,oats on the label or they will be safe...this may help you out if you do not have them and they are as follows: Aunt Nelly’s Balance Baskin Robbins Ben&Jerry Betty Crocker Blue B...
  23. KaitiUSA
    The tTG is still a very specific one for celiac...that should not be the only test done though but is highly specific because it detects damage. The other tests in the panel should accompany it though. The tTG in stool would most likely indicate damage to the intestines....I am thinking that this can be found in people without the celiac gene but with...
  24. KaitiUSA
    Jennifer- It took me 8 months gluten free to get back to normal. I had up and down days for months on the diet. Some people take longer than that and some people take shorter than that. It varies from person to person so I really don't think that 7 weeks is enough. You can do the gene test because being on or off of gluten will not affect that. The tTG...
  25. KaitiUSA
    Many doctors are wrong when it comes to celiac because not many are informed. If you are gluten free the damage heals and it will be hard to get accurate results after being gluten free. If he had a positive biopsy and now a negative one..it would be because of the diet...if it is still positive he most likely had major damage. Do you know what blood...
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