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captaincrab55

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Everything posted by captaincrab55

  1. IMO, One needs to be be Open about having C D. We all need to take advantage of every chance we have to Educate others about C D... Awareness is what it's all about..
  2. OK Friends, It's time for everyone here to make that call, if you haven't made it yet... Imagine 30,000 plus calls for gluten-free...... I think the Big Hero is General Mills..
  3. I'll second that!.. I just learned to live with all the dis-conforts, but it was the many years of the DH itch that finally got diagnosed 2 months ago.. Life is getting a little better each day..
  4. Did you call today? I called yesterday and was told to epect the coupon in September... btw, I questioned the Store Locator on their Website. I was informed that products need to be on the Store's shelves for about a month for the Store Locator to work accurately.
  5. Check out UTZ QUALITY FOODS, Hanover, Pa. 17331 .... They clearly mark the chip bags, "This is a Gluten Free Food"... Great Chips....
  6. Immune CompleX Flare... Is that another topic or can more be told about that here? For many years I suffered with puffy jaws and a mild grade fever.. Doctors all referred to the mild grade fever as my norm.... Suffered all my life with it... Puffy jaws are gone since going Gluten Free...
  7. I went to awedding 3 weeks ago.. The Bride to be checked with the caterer (Atlantic Caterers / Baltimore MD) and they responded with a list of foods that were gluten-free... They listed foods that contained Gluten too. They did say that request seemed to be a Normal thing anymore and were willing to make a special meal at no additional cost. Just...
  8. The cake mix requires 2/3 cup of water, 1 stick of butter (softened), 2 teaspoons Gluten-Free vanilla, & 3 eggs.. I picked up a box @ Supper Walmart in Aberdeen Md (under $4)... Also picked up a gluten-free muffin mix, but you need to add milk & other ingredients...
  9. I'm not an Insurance wizard, but I was always told it was best if One was diagnosed when they had insurance.. IMO, it would be best to be diagnosed when One has insurance and insurable for that as long as One had insurance. Some health issues do have limits and some coverage changes with different insurance companies.... It would seem that Insurance...
  10. Just clicked on the above Doctor list link and reviewed the Maryland Doctors. I found a Doctor (Therapeutic endoscopy & Gastroenterology) on the list that ran some tests on me about 2-1/2 years ago, but missed CELIAC Disease.. My Dermotoligist that diagnosed me with DH & celiac disease wants me to get my Gut checked out. I wasn't sure that I...
  11. One needs to take the right antibiotics.. I take 1- DAPSONE 25MG daily for DH...
  12. The letter did turn out as a, "WIN WIN for CELIAC Disease Awareness".. It did cost $5.54 to send the letter Certified Return Receipt, but it assured me that my message would be delivered to someone that could be held accountable. In this case, the letter reached the property owner / caterer (same person).. Now I must offer a, "Big Thanks...
  13. The letter I wrote to Conrad's Ruth Villa yesterday arrived today. Fred Conrad called the Local #24 officer that I cc: the letter, so he could contact me.. First off he informed me that he didn't employee anyone by the name of Brad and apologized that someone gave a fictitious name. He then went on to inquire about CELIAC Disease and the Gluten Free...
  14. Do you rest your elbows on a table or desk? That can cause a problem in the pinky, ring and part of the middle finger. Have you ever had a nerve conduction test?
  15. Cooking on the show as I post..
  16. Little Up-date that I didn't include in my last Post. I sent a CERTIFIED Return Receipt letter to Conrad's Ruth Villa yesterday.. I did cc: a few people, including; Friends with CELIAC Disease. They should get the letter today.
  17. Brad is the person @ Conrad's Ruth Villa located in Middle River, Maryland that answered the phone. I did ask for a manager and Brad recommended that I don't attend.. It was like he was afraid of catching CELIAC Disease
  18. cbear6301, I'm not sure which Amusement Park you want to visit, but I can say that Hershey Park in Pa does have gluten-free meals available. I was just there last week with the Grandchildren... Two Thumbs up for Hershey Park!......
  19. Just a newbie here, but IMO when I started reading the article I thought a farmer was writing it.. The author sounded like he wants to put the brakes on gluten-free diets to protect grain sales.. To me the article had more positives then negatives. One doesn't need any negatives at this stage of the fight for celiac disease awareness. With that in...
  20. It's one thing to use the same friers for fries, but do they filter the grease with the same equipment that filters other friers too?
  21. I called CHI-CHI'S yesterday to inquire about their SALSA, if it contained gluten. I was assured that none of their SALSA contained gluten. I inquired as to why the labels didn't reflect gluten-free and Michelle said, "It was just a timing issue till all the old labels were used up and the new labels will list their gluten-free products as gluten-free...
  22. Let me start by saying Thanks to All that chimed in with advice... One could read for weeks elsewhere and still not get the knowledge that one Topic here can bring to one dealing with DH and celiac disease.. After reading the replies, it looks like I'll back off on using the ADA... My State Legislator did send me an ADA link. I did reply to the...
  23. Attending the event is at will and I won't attend unless I get some cooperation from the Caterer (in this case, the Owner too). This event usually brings out (weather permitting) between 2000 to 3000 people of all ages. With a group that size, I can easily see 20 to 30 people (maybe more) that can group together to make a difference in the future... ...
  24. Hi All, New here, diagnosed about 7 weeks ago witn DH (biopsy) & celiac disease several days latter (blood test).. I was planing on attending a picnic for IBEW#24 at Conrad's Ruth Villa in Middle River Maryland on 8-9-09. I called the caterer, spoke with Brad and requested a list of foods that may contain Gluten or are gluten-free. He could...
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