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Maddy1

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About Me

Diagnosed Celiac July 2009

Blood Test Positive

Biopsy Positive

Mother Diagnosed 1989

  1. Maddy1
    Poor kid. I can’t imagine dealing with this at such a young age. I swear I have PTSD from being so sick after being glutened. When traveling, and we eat somewhere I’ve never been before, my anxiety levels are off the charts for the next 3 hours.
  2. Maddy1 started following How Common are Vomiting and Nausea After Gluten Exposure in Celiac Disease?
  3. Maddy1
    I’ve been diagnosed Celiac for 15 years. For the first few years accidental gluten ingestion meant many trips to the bathroom. The vomiting started in year three. Three hours after exposure I become violently ill with vomiting, chills and diarrhea. This lasts about 3-4 hours. I get so weak I can barely hold my head up. There is a large history of Celiac D...
  4. icon Mags one reacted to a post in a topic: projectile vomiting when glutened
  5. Maddy1
    Diagnosed Celiac by biopsy 12 years ago. I also projectile vomit when I am “glutened”. I didn’t have this symptom until I was gluten free for a few years. It is horrible. I feel like I am going to die. It happens exactly three hours after I ingest even a small amount and it lasts for hours. It is almost always a mistake by a restaurant. Last week it was T...
  6. Maddy1
    I have suspected DH on my scalp for years. I have never had these lesions anywhere else but my scalp. They become intensely itchy and ooze when I scratch and then a scab forms. I am Celiac and gluten-free for 10 years. I've always wondered if it has something to do with slight cross contamination from restaurants ect. My dermatologist doubted it was DH, without...
  7. Maddy1
    Love Kinnikinnick everything! The English Muffin's are as good as Thomas's. I found a new product this week while browsing the Brazilian section of the local Market Basket. It's called Yoki Cheese Bread and it's even marked Gluten Free. OMG it is so simple to make and tastes like the Pop-over's I used to make. Really Delicious! Just make sure to knead it...
  8. Maddy1
    Nine months Gluten Free and 9 pounds heavier.....I was considered average weight before but if I keep gaining a pound a month I'm going to be WAY above average soon!
  9. Maddy1
    Went to the Ninety Nine a few weeks ago and was thrilled to see French Fries on the gluten-free Menu. I made this remark to the waitress and she said "Why? Potatoes are all Gluten Free". I replied "only if they are cooked in a dedicated fryer that is not shared with breaded items such as onion rings" to which she replied "Oh, onion rings are definately cooked...
  10. Maddy1
    I've only been diagnosed for a few weeks so I'm still craving fried seafood! I already told my hubby to plan on lunch this weekend. Are you in RI or MA Gemini? I'm in MA, about 35 mins North of New Bedford.
  11. Maddy1
    A friend just found them for me in her local Roche Bros. They were on special for 2/$7. It's a little steep when they're not on sale though. But let me tell you.........DELICIOUS and very easy! I've had the brownies and the chocolate cake, which I made cupcakes with and froze the extra for later. Nobody, not even my very picky husband knew they were...
  12. Maddy1
    Thank you Babysteps, I don't know why I didn't check for a web page, must be the "fog" you are all talking about. I was just diagnosed a few weeks ago by biopsy. My mother had Celiac Disease for the last 20 years of her life and I was her caregiver, so I am pretty familiar with it. But wow have things changed in the three years since she has passed and...
  13. Maddy1
    This is such an old post that I am wondering if anyone can update me as to whether this restaurant still exists. I live pretty close to Fall River and would love to go out to breakfast again.
  14. Maddy1
    I am a very newly diagnosed Celiac. My Mom had it for the last 20 years of her life and I was her caretaker so I am pretty familiar with it. But.....things have definately changed in the gluten-free world during my hiatus of 3 years. Now on to my question. I read that ALL Vodka's were gluten-free because they were distilled. Am I mistaken? I hope...
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