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RoseTapper

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RoseTapper

  1. RoseTapper
    There are actually lots of regular candies that we can eat; for example, Reese's Peanut Butter Cup, Dark Milky Way, Payday, Junior Mints, Hershey's chocolate, See's Candies, Almond Joy, etc. There's a full list on Dr. Holland's gluten-free list: Open Original Shared Link You'll find that many candies are gluten free--I have no problem finding sweets...
  2. RoseTapper
    As for vitamins and minerals, when I've had trouble absorbing them, I use transdermal A, D, E, K, and magnesium, and I use sublingual (under the tongue) B vitamins that I purchase at Trader Joe's. The transdermal fat-soluble vitamins are purchased online, except for Vitamin K, since I can find a creme at any supermarket or drugstore. I also take magnesium...
  3. RoseTapper
    Your doctor clearly believes that the biopsy is the "gold standard" for diagnosing celiac, but Dr. Alessio Fasano, a leading celiac expert, recently spoke at a conference and clearly stated that this should NOT be the case. He and his colleagues will be publishing an article shortly on this subject that he hopes will convince many doctors that there is another...
  4. RoseTapper
    You may wish to know that, although almost all doctors still consider an endoscopic biopsy to be the "gold standard" for identifying celiac, it is oftentimes negative due to a number of reasons: the doctor doing the biopsy doesn't really know what he's doing, the pathologist may not be competent to read the biopsy, and the damage to the intestinal lining...
  5. RoseTapper
    I attended a conference last weekend where Dr. Alessio Fasano spoke on celiac at length. During a question-and-answer period, someone asked if an endoscopic biopsy was absolutely necessary for a celiac diagnosis. Dr. Fasano explained that he and several other doctors would be publishing an important article very soon on how a biopsy is NOT required for...
  6. RoseTapper
    Your gluten-free journey sounds so familiar. When people first try going gluten free, they're so accustomed to having processed foods in their diet, they look for gluten-free versions. It gives them comfort to eat like "they used to." Unfortunately, we continue to crave our old eating patterns, and it's difficult to change that without feeling deprived...
  7. RoseTapper
    You seem to have described facial DH quite well--and it DOES take months sometimes for them to go away, and they leave purple scars that take even longer to disappear.
  8. RoseTapper

    ARCHIVED Itching

    RoseTapper replied to choker28's topic in Dermatitis Herpetiformis

    It's possible that there's gluten in your shampoo--Organics makes gluten-free shampoos. I know that when I've used shampoos that contained gluten, my DH comes right back.
  9. RoseTapper
    Yes, my grown son and I both get this symptom when we've been glutened. It feels a bit like carpal tunnel syndrome.
  10. RoseTapper
    Hi! I live in Martinez and work in Pleasant Hill. I've been gluten free for six years and have attended numerous conferences all over the country on celiac. Let me know if you'd like to meet up for lunch sometime. I attended the celiac conference at Stanford last Saturday, and I learned from someone that there's a support group for celiacs in Walnut...
  11. RoseTapper
    Do you want the honest truth? I would be extremely hurt if my husband and daughter chose a special restaurant knowing full well that I couldn't eat there safely. If they really want to eat at that particular restaurant, I agree with the others that they should go alone and spend time together. It would be hurtful and degrading to require you to sit there...
  12. RoseTapper
    Forgot to ask--any tall guys with celiac out there who live in the S.F. Bay Area?
  13. RoseTapper
    I soooo agree with Megan on this! I've decided that my next mate will definitely have celiac--it's too complicated otherwise. As for where to meet these people, celiac conferences are a good place to start. David, did you attend the GIG conference in Seattle last year? Lots of single folks! I met someone there who set my heart on fire...but I was so...
  14. RoseTapper
    Okay, it's time to check the shampoo, conditioner, and lipstick. Remember, you can easily ingest small amounts of shampoo, etc., and a lot of that stuff has gluten in it. Wheat is a biggie in shampoos. There are a number of great gluten-free shampoos and conditioners out there. AS for lipstick, I own gluten-free ones, but I don't bother to wear the stuff...
  15. RoseTapper
    Yes! As a matter of fact, I get the numbness exactly where you do (between the left side of my upper lip and my nose (right in the crease). My hands also go numb. My feet, unfortunately, are almost completely numb, and I wasn't diagnosed until I was 47, so I guess that's not going to go away....it's been over six years of gluten-free eating.
  16. RoseTapper
    It used to be a problem when co-workers would invite me to lunch because they would invariably choose to go to a Japanese restaurant = bad news for a celiac when you're also allergic to seafood. I now keep wheat-free Tamari sauce in the fridge at work and bring it along to use on the salad and meats. The restaurants never protest. Likewise, when my family...
  17. RoseTapper
    For me, DH presents as blisters surrounded by inflamed skin (pink or red). The area itches for a while before the blisters form, and then the blisters themselves are extremely itchy. The worst of the itching continues for about 48 hours after the blister pops, and then the tissue underneath kind of hurts in addition to itching. The pain lasts for about...
  18. RoseTapper
    I usually react rather quickly--within 30-60 minutes or so. However, the blisters form one by one over a period of days after I've accidentally ingested gluten. By any chance, do you take thyroid meds? If so, they contain iodine, and even the smallest ecposure to gluten will cause DH to recur.
  19. RoseTapper
    I would like to add that I also react to iodine when squalane or another transporting oil is combined with iodized salt. When such a mixture has been applied to my skin, the underlying tissues (muscles and tendons) feel as though they've been battered with a baseball bat. When a manicurist used an iodized salt mixture on my hands, I could barely move my...
  20. RoseTapper
    west coast natural, Yes, this is the predominant thinking on the matter, but, again, no studies are cited. I think that it might be possible for gluten to be absorbed into the skin if it is part of a product that also contains squalane or some other oil that encourages absorption. With so many people who can attest to developing DH after using a product...
  21. RoseTapper
    Good grief! You sound so ill! First, from my personal experiences and those of my son (and from reading other postings on this forum), I believe that DH can appear on only one side of the body even though what little medical data there is out there states that it must be mirrored on both sides. I get it on both sides of my face and neck but only on the...
  22. RoseTapper
    It was the pain in my left side and constant anemia that drove me to see a doctor in the first place. Of course, the doctor had no idea what was wrong and didn't order the right tests. After two years, I self-diagnosed for celiac and became well again. The pain in the side took quite a while to go away, and it comes back if I get inadvertently glutened...
  23. RoseTapper
    brizzo, I won't scream at you, but I do question your opinion on this matter. I started having a DH problem after being gluten free for over three years. After three months of sheer torture with my face covered with blisters, I finally contacted several gluten intolerance associations for help. They each advised me to check whether my shampoos, conditioners...
  24. RoseTapper

    ARCHIVED Flare Ups

    RoseTapper replied to brizzo's topic in Dermatitis Herpetiformis

    I've been gluten-free for 4-1/2 years, but even the slightest contamination results in lesions within 30-60 minutes or so on my face, and I'll continue to break out in new DH every day until I have about a dozen, and they take a couple of months to completely disappear. I then develop blisters on the sole of my right foot by the next morning. If I've been...
  25. RoseTapper
    I'm Swedish, Danish, Irish, Scottish, and English; however, my celiac probably came from my Danish great-grandfather. He and ALL four of his brothers died of digestive cancers, and my grandmother had symptoms of celiac her whole life. My mother, her brother, my son and daughter, and I all have celiac, and I think we owe it all to the Danes (and, of course...
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