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gf-soph

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Everything posted by gf-soph

  1. gf-soph
    Hi Crystal Sorry to hear that the celiac diagnosis has not helped with the immune problems. I certainly don't have a complete answer, obviously it may not be related at all, but a couple of things caught my attention, particularly the hives and the mention of annatto. I am currently on an elimination diet developed by the Royal Prince Alfred hospital...
  2. gf-soph
    I second getting along to the dr, a friend of mine had a quick onset virus which basically hit her with vertigo for a couple of days, then wore off. She couldn't really walk for the first day or two, it was pretty dramatic, and she needed treatment to get better as it was affecting her inner ear.
  3. gf-soph
    Is it too weird to say I'm glad the gluten challenge gave you such clear (yet unpleasant) results? I'm glad it's given you the confidence to trust what your body is telling you, and that you have so much self-awareness to pick up on problematic thinking beofre hitting a full on replase. As much as I understand wanting a definite diagnosis, I have been sick...
  4. gf-soph
    I have had the breath and I think biopsy for hpylori come back negative, but I didn't realise it was something you could get false negatives for. I will ask my dr about stool testing for it. I have had a recent endoscopy and colonoscopy that came back clean, so it can't be a hernia, but I know there is something not working right in there. The stomach...
  5. gf-soph
    Is there anyone here who has been diagnosed or treated for low stomach acid? I try not to self-diagnose from the internet, particularly sites that are trying to sell you things, but I saw a description that fits me so well it has got me interested. I have had a lot of trouble with my stomach cramping up and not feeling like I can digest a normal sized...
  6. gf-soph
    Personally, I wouldn't share the oven. I am very careful as I have had trouble getting my antibodies back to normal, and it seems like a fairly high chance of cc. I wipe out the oven before I use it, and there is always some grime that can be wiped off easily. It's not from spills, but from small amounts of the food that gets airbourne. Saying that...
  7. gf-soph
    I know your relationship with food and appetite must be a complicated one, but I can assure you that gluten can cause a total loss of appetite in someone with no preexisiting ED. I used to enjoy food and am desperate to get my health back (which includes a full and nutritious diet), but I can go months without any appetite at all. It's like my stomach doesn...
  8. gf-soph
    I have had a somewhat similar problem - I had acne as a teenager, only on the face, and it was well controlled with the pill. Nothing changed when I went gluten free, but when I started a chemical elimination diet last year within a couple of days my scalp, neck and back all broke out in a horrible painful rash that I had never had before. It looked like...
  9. gf-soph
    I had the colonoscopy recently, and I won't lie, the prep is nasty, but the procedure was fine as they had some really good drugs! I had a slightly different experience, felt awful during the clear diet before, but felt amazing afterwards. The day after the procedure I sat down to breakfast and realised that I had a nice hungry stomach (which I don't...
  10. gf-soph
    Well, there are a few options. One is that is it directly related to the gluten, in which case it could go tomorrow or take a while longer to lift. I had depression arising from gluten, and it lifted very obviously about 3 months after going gluten free (with 1 or 2 known glutenings in that time). Other options are secondary problems. Have you had your...
  11. gf-soph
    The first thing I thought of when I started reading was B12, the tingling/burning is classic. I have had problems with B12 for years now, and I needed injections for a couple of years as my levels could crash hundreds of points in a month. If the tingling gets better after the injections, and you start to feel it coming back, get an injection. My levels got...
  12. gf-soph
    I'm not sure about the sore lump, but at least you have had some recent testing to help you get some answers. The anaemia is definitely common in celac/gluten sensitivity. You mention that you have had previous biopsies but not bloodwork. There are a lot of posts about the pros and cons of the bloodwork and biopsies, but basically you can have false negatives...
  13. gf-soph
    I can sympathise with you, I am currently about 3 weeks into an elimination diet. Sorry to say but there are no easy answers, as people can be sensitive to such strange things sometimes. I think you need to pick something with a sound logic to it and just try it out. Try to see the elimination diet as a short term deprivation in order to not unnecessarily...
  14. gf-soph
    One of the best bits of advice I've been given is to get copies of ALL blood tests, as the reference ranges for some things are far too low. e.g. B12 reference ranges are contentious - here in Australia the recommended minimum is 145, in Japan apparantly it is 500 - a pretty big difference. I have learnt from experience that if my B12 is below 300 I will...
  15. gf-soph
    Just take it one step at a time. Australia has extremely good labelling laws, so we have it better here than in many other countries. Join your state celiac society, they have so much information about being gluten free. Here in NSW they have celiac shopping tours of the supermarkets, as well in introductory sessions. There is a big gluten-free expo coming...
  16. gf-soph
    It could well still be the anaemia - do you know what your blood levels are? If so, if you post your level (and the reference range of the test) it can give us an idea of how bad it is. I have had a lot of problems keeping my iron and B12 levels up for about 4 years now, and I have become an expert on my symptoms. For me, the iron deficiency starts off...
  17. gf-soph
    That is such a hard situation for you! Honestly, if it were me, there is no way I would ever work in an environment where they make products using loose flour. I don't even go inside bakeries if I can help it, and I walk past them quickly when I don't have a choice. While you can wash your hands and clothes, the main issue is that you are breathing...
  18. gf-soph
    My grandmother, 84, went gluten free a couple of months ago. Although she is not celiac (negative blood tests & biopsy) she had GI problems all her life, as well as bowel cancer in her 50s, and osteoporosis. I was unsure if she would see much benefit as it is likely it has been a problem for her all her life, she was a fussy eater as a child as so many...
  19. gf-soph
    I have a lot of sympathy for where you are now. My GP first suspected celiac when I had been quite sick for a just few months. I had above normal blood antibodies, but a negative biopsy. I was told not to bother cutting out gluten, and I remember the huge sense of relief as I was well and truely addicted to bread. If I had looked into things a bit more at...
  20. gf-soph
    I am going through something similar - I am non-celiac gluten intolerant, have been gluten-free for over 18 months. After about 6 months of being gluten-free I had some significant improvements but still wasn't great, I got glutened a couple of times early on so I waited a while before doing more testing. I also can't get my blood levels back in the normal...
  21. gf-soph
    My dad and his sister are already over 50, so both have had colonoscopies that came up clear. I spoke to my GP and she did confirm that my sister (26) needs a colonoscopy now as she has a higher risk of these polyps, and we have also informed my cousins as they may have a higher risk too. From what I know, there are 2 main conditions where someone my age...
  22. gf-soph
    I saw my dietician yesterday, and she has put me on a low chemical diet, that is, low in amines, salicylates and glutamate (as well as preservatives, articifical sweeteners and general processed junk). These are the three food chemical groups that the RPA (Royal Prince Alfred Hospital) elimination diet targets. They way it is viewed is that there are varying...
  23. gf-soph
    thanks for the suggestions - I will look in to it. The pain is that the testing hasn't given me a direction for future diet, this is the result of a process that started in October last year when I started an elimination diet and got worse! I have been back to see my dietician and we are trying a low chemical diet (low in amines, salicylates and glutamate...
  24. gf-soph
    I'm not an expert at all, but I had a 3 hour GTT done a while ago. I think the reason they take the tues of blood is that they are monitoring the insulin levels in your blood too, not just the glucose. My glucose stayed normal, but my insulin got a little too high at the one hour mark, indicating I am starting insulin resistance. They wouldn't have picked...
  25. gf-soph
    I just got back from a follow-up appointment with my gastroenterologist, who conducted an endoscopy and colonoscopy a month ago to check for Crohn
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