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gf-soph

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Everything posted by gf-soph

  1. gf-soph
    Your insecurities point is a good one, and one that had a big impact on me for quite a while. I think some of your concerns may relate to how you see your gluten free status. When I tell people that I can't eat gluten their first reaction is usually 'you poor thing!' etc. It's easy to hear that and follow that thought pattern, to start thinking about all...
  2. gf-soph
    There are things besides celiac that could be part of the problem, but your symptoms certainly could fit. I don't know all that much about the genetic testing, but I understand that there are both common and uncommon genetic variations associated with celiac. They may have only tested for the most common variations, or it is possible that they will find...
  3. gf-soph
    My mouth ulcers took 1-2 weeks maximum to heal after going gluten free. When I was accidentally glutened I had a flair-up of multiple ulcers coming up at once, but they healed pretty quickly (before going gluten-free they would take weeks to heal even with treatment). It may take longer for others depending on their general health, but it was quick...
  4. gf-soph
    You've probably seen here that the list of possible symptoms of celiac/gluten intolerance is long and varied. I had some obvious ones (gastric upset, pain etc), but the mouth ulcers was one I never thought about until they disappeared completely within 2 weeks of going gluten-free. The only time I've had them since is after a glutening! As a general recommendation...
  5. gf-soph
    hi again thanks for further comments - it's a complicated decision! I am definitely leaning towards trying it, as I do really trust my dr, I know it's a low (non-antibiotic) dose, and i know she doesn't want me on it for a long time - she said a few weeks should be a test of whether it starts working. I have tried modifying my diet so much, things...
  6. gf-soph
    thanks for your comments ravenwoodglass - all my supplements are definitely gluten-free, I have check this with pharmacists/companies along the way. I don't eat any wheat starch, and don't eat many processed foods currently. I am lucky to live with family who offered to take the gluten out of the kitchen (after about 9 months , i have my own toaster...
  7. gf-soph
    Hi all
  8. gf-soph
    Hi The clue may be in the name...high fructose. Those are both things that my dietician told me to avoid when I started a fructose balance diet. Coincidentally I gave up all artificial sweeteners ages ago as they made me sick and tasted really odd. Your symptoms sound pretty consistent with fructose problems, as undigested fructose stays in the...
  9. gf-soph
    Hi I had recurring mouth ulcers all my life before I went gluten free, they came and went at different times seemingly without a pattern, but dissappeared completely within 2 weeks of going gluten free. I am NCGI as well. Interestingly, they reappeared a couple of times after being glutened, with the gluten exposure being confirmed by raised blood tests...
  10. gf-soph
    Hi. I was on a fructose diet for a while recently, so I can tell you what I know about it. Everything below is based on my dietician's explanation and a little research I did to clarify. Hope I can explain this properly.... Fructose is a multi-chain sugar which needs to be actively absorbed across the intestinal wall through special channels. People differ...
  11. gf-soph
    Just my thoughts, but perhaps it has something to do with what can be absorbed when your gut is damaged by gluten? We hear a lot about the malabsorption that can happen (iron, b12, protein, vitamins), but my understanding is that simple sugars can be absorbed very early on in digestion. So perhaps the body is absorbing some of the calories in the food...
  12. gf-soph
    Hi I don't want to make things harder than they already are for you, but I was recently on an elimination diet. It's a lot harsher than a lot of ones I have seen, but it has been designed and tested by the RPA (Royal Prince Alfred Hospital) here in Sydney over a number of years, and seems to be a widely accepted method here. If you don't get clear...
  13. gf-soph
    it's interesting you mention this as family members have commented on the dark circles under my eyes, they have been particularly dark after gluten exposure, and also when I am anaemic. They do get lighter when I am well, but they are still darker than for most people.
  14. gf-soph
    Hi Kathleen I went gluten-free about a year ago, and have been majorly glutened twice since then. The second time I decided to do a deliberate gluten exposure so that I could pinpoint if I had any tell-tale symptoms. I can tell you that for a full 2 months after that I had almost no appetite (amongst other problems). Not nausea like you, but I just woudn...
  15. gf-soph
    I do eat quinoa, though not as much as I should. I will definitely grab the packet out of the cupboard and get back in to it. My dietician has advised me to give up eggs and soy for the moment based on my food diary and symptoms after eating them. I think I will be able to have some egg, but based on horrible brain fog after 3 serves of tofu I'm not sure...
  16. gf-soph
    Wow - that's some hunger! I had quite a different pattern, in that even after going gluten free I had a lot of trouble with my stomach not emptying so I was almost never hungry, and not eating enough. I have recently been seeing a dietician, and after cutting out soy I have had a couple of days where I am getting ravenously hungry, and it's really surprised...
  17. gf-soph
    I definitely found it addictive - I used to jokingly say that bread was my crack - specifically white, very fresh, very high gluten. I could eat slice after slice, and I had an addictive relationship to it that I haven't had with anything else. I even worked in a bakery for a couple of years! I have heard it said that you often crave the things that are...
  18. gf-soph
    I was in a similar situation a couple of years back. I got really sick when I was in my fourth year of university, trying to complete my thesis. The pain and nutritional problems were bad enough, but the brain fog really messed things up. I kept going and didn't tell anyone at uni how sick i was, and I didn't do anywhere near as well as I know I could have...
  19. gf-soph
    Hi again sorry for not replying earlier, but I had a horror weekend. ang1e0251 - I realise that I wasn't at all clear in my message...damn brain fog! I am struggling mostly with eating meat at all (by that I mean the chicken and fish), as I have never eaten meat the idea of eating red meat just grosses me out, I really don
  20. gf-soph
    I have been gluten free a year, and despite significant improvements I am still not that well. Because of this I am currently doing a chemical elimination diet (under supervision of a dietician), based on the RPA elimination diet, so only eating foods low in amines, glutamate and salicylates. Due to other suspected food issues at this stage I am not eating...
  21. gf-soph
    I can totally understand the desire to rebel, but I was so sick prior to going gluten-free that deliberately cheating wasn't an option for me. We can all understand the hassle eating out, but it does get better over time. I was lucky enough to find a totally gluten-free Japanese restaurant that has food tasty enough that my gluten-eating friends are happy...
  22. gf-soph
    I took it (known as roaccutance here in Aus) years ago, i also didn't last the full course as I rapidly slid into depression (resolved very quickly once off the pills thankfully). My GI problems didn't start until a couple of years later, but it is such a nasty drug it wouldn't surprise me if there was a link. It didn't even fully fix my skin as I wasn't...
  23. gf-soph
    I know exactly what you are talking about. Within a few hours of being glutened I get teary and emotionally erratic. It settles down a bit after a few days, but I still feel some effect for several weeks. It took me a while to realise this, so now I know to go easy on myself for a while after.
  24. gf-soph
    It sounds like the nurse was commenting on what they could observe with the camera only. Celiac is diagnosed based on villous damage, which is microscopic - this is why they take biopsies. The fact that everything looked normal under the camera doesn't mean you don't have celiac, they were probably just reassuring you that they didn't find anything else....
  25. gf-soph
    I was anemic for 2 years before going gluten free, both iron and B12. My levels were always perfect before the onset of severe GI symptoms in 2007, I was totally unable to absorb nutrients properly after that. I also couldn't tolerate iron pills, so had to resort to injections to get any iron in my system. Since going gluten-free I can absorb iron again and...
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