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gf-soph

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Everything posted by gf-soph

  1. gf-soph
    Great to hear you found a good GP - was it Dr Hardy or did you find someone else who knows their stuff? In answer to your questions - While it is probably ideal to just cut out everything at once, I think do the best that you can about the other grains/dairy without driving yourself crazy to start with. Keeping away from a lot of the gluten-free replacement...
  2. gf-soph
    You certainly have a few areas to look at already, and it could be gluten, but I thought I would chime in - if I am feeling relatively OK to start with, I can handle 1 cup of coffee max. If I am not too well to start with, even 1 cup can make me feel dizzy, unwell, and give me stomach cramps too, and sometimes not for a few hours. It's a good idea to drop...
  3. gf-soph
    Just to second the other posters - give up the gluten!! There is a VERY real chance that it is a significant part of your problems. Gluten can directly cause all of the problems you have mentioned. Many doctors are ignorant of what gluten can do to you, but the combination of your son having celiac and your symptoms means you should definitely try for at...
  4. gf-soph
    I found that I had a dramatic and sustained improvement in my depression 3 months after going gluten-free. It was a bonus as I thought the depression was more about life events and not coping with the illness, but almost exactly 3 months after giving up gluten I woke up one day and felt a lot better. Not perfect, but far more in control of my emotions and...
  5. gf-soph
    You may have found a keeper there - not only sensitive to the food intolerances, but doesn't run away from a bad patch! Hope you have a great second date
  6. gf-soph
    I think that if you feel a massive craving for gluten, it may be because it isnt doing you any good. I know how hard it is to give up the gluten - I used to say that bread was my crack. I craved it like nothing else, not even coffee came close. I also used to work in a bakery!! My recommendation on giving up gluten would be to make a last chance list, and...
  7. gf-soph
    Go easy on yourself. You are not a doctor, and gluten problems can manifest in so many ways it can be extremely hard to pin down. Psychological effects like depression are common too, so if you are feeling really down on yourself the gluten may also be influencing your emotions. It is possible to take the energy you are using being hard on yourself and...
  8. gf-soph
    I am a life-long vegetarian who started eating meat for a short period of time last year as I needed to do a strict elimination diet. I can't eat most legumes already, was told to cut out soy and nuts and any vegetarian protein really, it left me with nothing to live on. The only reason I did it was because I thought that without trying to cut out everything...
  9. gf-soph
    I was seeing a psychologist for depression during the time that I went gluten free. I'd had plenty of things happen in the past that I coped with fine at the time, nothing bad was happening at that point but I just wasn't able to cope. Almost exactly 3 months after going gluten free I woke up one day and it was gone. It was a strange feeling, I described...
  10. gf-soph
    My grandmother is 85, she too thought that a lot of her problems were age related. She went gluten free as she know about my gluten intolerance and noticed that she felt sick after eating more whole grains. She survived bowel cancer in her 40s that nearly killed her, has osteoporosis and anxiety and didn't enjoy food much. A few weeks later she feels...
  11. gf-soph
    That's amazing, well done on fighting to get to the right person! It can make such a difference to just be taken seriously. I'll be interested to hear what the testing shows, I've had a lot of balance problems and clumsiness for a while now, and I've no idea what area to pursue other than keeping gluten-free and trying to get decent nutrition. Keep...
  12. gf-soph
    I used to be able to tolerate alcohol fine, but alcohol was the first thing to consistently make me sick after my first GI problems surfaced 5 years ago. I still can't really drink, I have managed 2-3 drinks on just 2 occasions in the last 3 years. Most of the time if I even try to drink the first sip just sits wrong and I can't drink it, or I will get...
  13. gf-soph
    Hiya - just happened to see it My GP is Margaret Hardy, works at Gladeville Medical - 3A Pittwater Road Gladesville 2111. 02) 9817 2522. They don't bulk bill unless you have a health care card, but she is worth it gap payment. She got me to go gluten-free after being told not to bother by a gastroenterologist. She is also very good at listening and...
  14. gf-soph
    It doesn't sound crazy to me - I get this face flushing occasionally and it's awful. I got it a lot more before I went gluten free, now I only get it when I am otherwise unwell and totally exhausted... like now. I always get a headache with it too, so you're not alone. My entire face flushed dark purple for 2 days one time, the dr got me to take antihistamines...
  15. gf-soph
    thanks for posting this, it got me inspired to get back in to quinoa! I can't do onions and garlic but cooked up the quinoa in veggie stock, added fresh cucumbers, tomatoes, bocconcini and mint - it was delicious!
  16. gf-soph
    It's worth looking at. I have been gluten free over 18 months, before then my iron and B12 were shocking for over a year. I tried supplements and injections, but it just didn't need to stay in my system. I was glutened twice in the first 6 months after going gluten free, and each time my iron and B12 levels crashed - B12 went from over 1100 to less than...
  17. gf-soph
    I hear you, I am still unwell after 18 months gluten free, and undergoing more testing looking for secondary problems. Practical stuff first - Have you looked in to your blood sugar? Insulin resistance could cause problems losing weight, as well as the exhaustion. Have you looked in to small bowel bacterial overgrowth? My dr thinks that my symptoms may...
  18. gf-soph
    I've had similar problems at times. For me the worst time was due to low B12. You say it is normal, do you know the exact amount the the reference range? These ranges are often totally inadequate, e.g. in Australia the miniumum is 145, in some countries it's several hundred points higher. From 18 months of yo-yoing B12 I know I feel unwell if I am below ...
  19. gf-soph
    I also have problems getting enough protein, so I know your pain. Are you able to eat soy? It can be a problem for some people, but if you can tolerate it I find tofu quite digestable. What about other vegetarian sources of protein? Beans and pulses - chick peas, lentils etc are good (though I have probelems with them). Do you eat eggs? It may seem odd...
  20. gf-soph
    It could really be either, though a big reaction to reintroducing gluten would point to celiac. Celiac can cause a huge range of symptoms, but some of your symptoms also overlap with crohn's (inflammation, diarhhea, fever, eye pain). I would say keep eating lots of gluten up until the endoscopy to give the best chance of detecting celiac if it is there. ...
  21. gf-soph
    The best thing you can do is exactly what you are doing - being considerate, taking her needs seriously, and asking questions If she's anything like me she would happily answer the same question 10 times (does this contain gluten, do I need to etc etc) to know that people close to me are taking my health seriously. Cross-contamination has already been...
  22. gf-soph
    Fresh red blood could be from piles or fissures, but clots may have formed higher up. You definitely want to get checked out thoroughly for the blood. It could be crohns disease, polyps, I think bleeding ulcers etc. A colonoscopy and endoscopy sounds like a good idea to rule these out, you don't want to leave it. I'm sure it's really frustrating not to be...
  23. gf-soph
    Here in Australia there is a very thorough elimination diet developed by the allergy unti at the RPA (Royal prince alfred hospital). It is extrememly thorough. There is a handbook for the diet, but not sure how much online. You can search failsafe diet i think which has food listings for Australia, or RPA elimination diet.
  24. gf-soph
    Don't even buy in to the question of is it too much - that's not really the issue. It's about respect, and her outburst in the restaurant clearly shows she is lacking in it. Your spending is a matter for you and your husband, he is the only person whose concerns I would listen to. Mind you, going out 5 nights a week to eat doen't sound like a budget...
  25. gf-soph
    It's a good idea to test for celiac, but I would also get them to check for Crohn's disease. I am non-celiac gluten intolerant and about to go through more testing, looking especially for early stage crohn's. My new gastro has said that in young people the blood tests can come out normal, but you can sometimes see things using the colonoscopy. The fissures...
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