Jump to content

nmlove

Advanced Members
 View Profile  See their activity

  • Posts

    200

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nmlove

  1. nmlove
    Hi there. I second cyclinglady. For what it's worth, my sons were diagnosed at 2 and 4 (VERY positive). The oldest was the only one who had an endoscopy, but GI doc at the time diagnosed my youngest son due to numbers and brother's diagnosis. Fast forward a few years and I was positive. I check my daughters annually and a little over a year ago, my oldest...
  2. nmlove
    Hi there, You've had such wonderful responses! I just wanted to support the "keep on gluten and see the GI doc first" point of view. Having had to see a variety of specialists for a number of years, two months is quite decent and such a small window in the larger picture of life. My third child was diagnosed with a "weak positive" (by weak her...
  3. nmlove
    Thanks HannahR67! From the very little I know and have experienced, the healthiest (for anyone) is more veggies and fat, then protein, fruit, carbs in moderation. Due to celiac, we definitely eat better than the average Joe but I have a feeling his T1D diagnosis will clean us up more. Pasta seems ok for him. Lots of insulin that he typically doesn...
  4. nmlove
  5. nmlove
    Thanks so much!
  6. nmlove
    I have heard both for the test and it isn't necessary from the doctors. My oldest had it done around the same age. The doctor said he likes to make sure they have time to play catchup before puberty. My son never had fractures, broken bones, etc. and it was found he had ostopenia! The endo wasn't overly concerned as he had celiac and was still healing get...
  7. nmlove
    Is this a pediatrician or a gi doctor? I could see the reply from the one and not the other. My kids saw the gi doctor every 3months for awhile and then every six months until normal labs and now they go once a year. Doc checks not just celiac stuff (adherence to diet) but vitamin levels (particularly d and calcium), and also thyroid. Adult doctors...
  8. nmlove
    I say chill. She's four. ☺ - says a mom to four kids. If it persists she will let you know it's a problem.
  9. nmlove
    So sorry you're having to deal with this! My boys took awhile to go down - year and a half. For the most part it was a gradual trending down. However, they spiked back up and had symptoms return. Like you, we homeschool and we're strict. My kids don't react much to one glutening so to have symptoms return was so frustrating. I looked at what they ate...
  10. nmlove
    Thanks cyclinglady! I know eating clean and lower carb helps me (not diabetic thankfully but have too many risk factors). It is definitely hard to rethink carbs, fats and whatnot with my son. While I know a roll will spike blood sugar more versus an apple, is it normal to keep it elevated for that long? It maybe that in that case he needs more insulin...
  11. nmlove
    I'm sorry! When you find a person who tries and gets it, you will feel even more appreciative. Even with three kids with celiac - because people seem more concerned when one is a child rather than an adult - it was a huge learning curve. Even now, over six years later, I trust three people to feed my children: my mom (who later finally tested and was...
  12. nmlove
    My 11 year old son was recently diagnosed with type 1 diabetes. He was diagnosed with celiac disease at 4. We eat a fairly clean diet, with many of our higher carbs coming from potatoes or fruit or similar. But we do have occasional baked goods or pizza. My question is eating such gluten-free items and having blood sugars go higher and remain high for...
  13. nmlove
    I'm in the camp that thinks it was awesome of your son to have such a great attitude about it all and know not to eat it if he doesn't know the food. That's how my oldest has been from the get-go, and now his two younger siblings are as well. Sometimes you just can't do what others can. Simple. No drama. That said, I think the teacher should have given...
  14. nmlove
    Skullgrl, thanks for the info. I am in the middle of reading the article. I love personal stories as it helps me visualize symptoms. A list of symptoms can really bring out the hypochondriac in me. Food bothers me neurologically as well - diagnosed celiac and dairy/egg/soy issues - so I shouldn't be too surprised if my son is too much like me. Who knows....
  15. nmlove
    Yes, Colleen! I am so glad you mentioned this. I should have but wasn't thinking. My son is 9. It's very normal to have spots as you age. Heck, you can have a ton of neuro symptoms and have a normal looking brain. (I did when I had an MRI when I started experiencing hemiplegic migraines for the first time last year!) Nicole
  16. nmlove
    Nicole, thank you. I will not be surprised either. It's just so darn frustrating, especially when it's your kid. His GI doc talked about calcium deposits and looking at seizure activity because of it. Apparently you can have seizure activity and not know it. Hopefully this neuro doc is OK and not a waste of time. Nicole
  17. nmlove
    This question is about my son but I thought perhaps I would get more response in the general celiac community vs the parenting forum as this deals with the brain, abnormal MRI possibly due to celiac (his GI doc thinking out loud to me). I was an active member of this forum during my sons' first years after diagnosis but dropped off for a bit as life got...
  18. nmlove
    Hand sanitizer does nothing for gluten CC. The only way to clean gluten off your hands is to wash with soap and water. That's what I always thought and it was confirmed by my kids' GI doc (my husband and I brought up for debate with him). In our experience, blood levels can take awhile to get back to normal. Both my children, especially my oldest (4 at...
  19. nmlove
    I agree with having a long talk with the doctor. Follow-up tests are important, not just to keep an eye out on the gluten-free diet but from a nutritional standpoint as well. My boys are checked every 6 months: ttg levels, vitamin d, iron among a few other things (depending on the exam and what we go over). The doc did say this last time that once their ttg...
  20. nmlove
    I forgot to say that I made sure our cat's food did not have obvious gluten (whether it's CC on the line or not is another story!). We feed him wet and dry food (history of UTI issues so can't do just dry): Purina Fancy Feast Classic flavors (wet) and Purina Fancy Feast Gourmet Cat Food Filet Mignon Flavor with Real Seafood & Shrimp. Sure, it costs a...
  21. nmlove
    Just supporting you. As someone else said, no symptoms doesn't mean no damage! It's harder to see if you're CC or not (without the bloodwork) but you still need to eat gluten-free. As for telling family, it takes time and lots of it and sometimes even then they don't get it totally. Because they're not living it. We explained celiac disease and things...
  22. nmlove
    Wow, great responses! My four year old seems to have a hard time occasionally with never eating gluten again (like he can even remember eating it!). I think part of if it is a stage at that age. It's a huge realization to think of forever. You know? My 6 year old was diagnosed at 4 and just really went with the flow and seems to have a grasp on the fact that...
  23. nmlove
    Thanks for the replies! I'm going to try him on the Carlson for Kids. I take a chewable wafer and though it is chalky (like a Tums) I love the flavor. I think he'd be ok with the texture if the flavor is yummy like mine. I completely forgot about Tums having calcium! He can eat dairy but his intake is so irregular(milk daily on cereal but otherwise, sometimes...
  24. nmlove
    If it's potentially coming from his food (and yes, it's possible), try going as whole food as you possibly can. Stick to potatoes, fruits, vegetables, plain meat, etc. Then you could add in more of the "processed foods." We've been lucky so far but my boys ttg both went up at 9 months out (July of last year was when they were tested). We ate mostly whole...
  25. nmlove
    My son needs to take a chewable calcium supplement per his endocrinologist (he's six so no pill swallowing yet). He mentioned Carlson's chewable calcium. Yet when I looked at reviews, parents said it was chalky and tough to chew and the kids didn't like them. Anyone have a supplement their kids like? He suggested 250mg x 4/day. Thanks for any help!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.