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lynnelise

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Everything posted by lynnelise

  1. lynnelise
    I understand the frustration this disease causes. You really need to try to find safe foods because keeping nourished is important. Larabars are always in my purse when I travel so I have a quick meal on the go. Fruits are handy and portable. Raw nuts. Minute microwave brown rice is gluten free and comes in single size cups, pair with tuna and a veggies...
  2. lynnelise
    While I had good reason to believe that I did not have MS I was a little bit prepared to hear that possibility due to symptoms but this wasn't on my radar at all so it really did kind of shock me. Then the more I read, the more it seems the only relief for the neurological issues is decompression surgery which sounds pretty unpleasant. I'm just trying to...
  3. lynnelise
    I had my follow-up with the neurologist today. The MRI showed that I have a Chiari Malformation. The doctor still did the nerve conduction study as scheduled because he said a lot of the time Chiari malformation has no symptoms so he wanted to rule out carpal tunnel and pinched nerves as causes of my symptoms. Since those tests were fine that pretty much...
  4. lynnelise
    Celiac disease isn't an allergy, it's an autoimmune disease. I honestly don't think this idea would work and while you may not exhibit symptoms right away you would probably end up with damaging inflammation. The best way to have your cake and eat it to is to buy gluten free cake mix! Pamela's and Betty Crocker are both good!
  5. lynnelise
    I love that Amy's mac and cheese. Maybe it's for the best that other people think it's "not real". If they discover it tastes better than the gluteny Kraft kind they may buy it up! There are a few ladies at my work that inspect my lunch. They always crinkle their nose up and ask if it's good. I always wonder why they think I would bring it if I...
  6. lynnelise
    I get these burning feelings like someone has put a match to my skin mostly on my lower back and legs. I get random tingly but not really burning spots all over my body, face, and scalp. My hands go completely numb a whole lot and part of my feet go numb. I also get a sensation that I can't really describe. It feels like the nerves in my legs are vibrating...
  7. lynnelise
    My tongue burns and goes tingly all the time! That actually didn't start until after I went gluten-free. Probably within the last year. I'll definitely report back after my follow-up. I wish I had a little more faith that I'd get an answer but after seeing a rhuematologist, endocrinologist, and immunologist as well as a few GPs I'm kind of out...
  8. lynnelise
    I like the Annie's with the pack of cheese sauce in it better than the powdered sauce. I also like the Amy's frozen mac and cheese with rice noodles.
  9. lynnelise
    So glad to have your input as I consider you guys to be two of the most helpful on the boards! I personally feel that the issues are probably caused by the years of undiagnosed celiac. I will print some stuff to show the doctor at my follow-up! My blood sugar has always been really good so I don't think that is the cause. I have been on the diet for almost...
  10. lynnelise
    Yesterday I had a brain MRI due to continuing problems with parathesia, peripherial neuropathy, and extreme fatigue. These problems did start before diagnoses when I was deficient in B12. I have supplimented and my levels are now normal but not so high that too much B12 could be an issue. Could these problems be long-term damage from the deficiency and...
  11. lynnelise
    I bet! Poor guy! Thank goodness he found a source for real gluten-free! I know a lady who has an autistic grandson on the gluten-free/CF diet and they give him potato bread exclusively. She was pretty alarmed when I suggested that it most likely wasn't gluten-free!
  12. lynnelise
    I get the whole white bread is ok thing a lot. Also people tell me how good potato bread is and suggest I try it when all the varieties I see are a mix of wheat and potato. Some people just don't read ingredient labels. A lot of people just don't have an interest in learning about foods and make assumptions. I know for instance my brother-in-law avoided...
  13. lynnelise
    Everyone seems to react a bit differently. For me I'd have D, bloating, joint aches, rashes, and worsening fatigue for the next few days. Others get constipated, anxious, depressed, heartburn, ect. Some people have no reaction other than internal damage. Maybe add more fruits and non-gluten carbs to your diet in the coming weeks so this sort of thing...
  14. lynnelise
    I don't get angry when people try to understand. I get angry when people like my inlaws say they "just can't keep up with what exactly gluten is" despite my explaining it 100 times. My husband even gets frustrated with them at the holidays because they literally make every side dish a casserole w/ ritz crackers and tell me I have to try it because it's...
  15. lynnelise
    My doctor always advises I take it with the antibiotic!
  16. lynnelise
    You really need to sit down and have a talk with your husband about why he is acting this way. Celiac disease is a medical condition and it's not something to be embarrassed of. I can't understand why he doesn't want you to discuss it and gets upset when you do. Another factor is that it can be genetic so there is a chance your kids may inherit it and if...
  17. lynnelise
    If your pots and pans are scratched then yes you should buy new. Definitely a new colander, toaster, and dish sponges. My house is 95% gluten free. For the most part if my family wants gluten they can eat it outside of the house. Occassionally my husband will buy a gluten snack but it's always in single serving containers and he is careful not to contaminate...
  18. lynnelise
    Good luck at the doctor! I'm late in seeing this post but I think I have had every single test for fatigue there is! Definitely request the complete thyroid panel, the ANA, SED rate, CRP, and rheumatoid factor in addition to checking vitamin levels and CBC. They can do a skin biopsy for lupus as well! I know how awful unrelenting fatigue can be so...
  19. lynnelise
    Most of my casseroles I stir in cream cheese instead of a can of soup. The gluten free cream soups are a bit too runny. Cream cheese mixed w/ a touch of broth and sauteed mushrooms works good. I second the recommendation above for crockpot365.blogspot.com. The Indian butter chicken is my favorite dinner ever! She has so many great recipes.
  20. lynnelise
    These are expensive but they make these Go Picnic boxed meals that would work. I keep them in the car for emergencies. Open Original Shared Link
  21. lynnelise
    Before diagnoses: B12 deficiency, IBS-D, non-functioning gallbladder (had it removed), gastritis, arthritis, DH. After: Chronic mono, raynauds, having an upcoming appt regarding neuropathy. Since going gluten free my gastritis, B12 deficiency, diarrhea, and DH have resolved. Arthritis pain has lessened.
  22. lynnelise
    This exactly! I love New Orleans more than any place I've visited!!! I know I could make the dishes at home but it's not the same as being there and having the experience of trying all the good restaurants. Celiac makes you lose a lot the carefree attitude that makes vacation fun. So to answer the overall question I guess what I find hardest is the...
  23. lynnelise
    Rum is made from distilled sugar cane so it is safe to drink!
  24. lynnelise
    A co-worker had an ablasion in September and will be having a hysterectomy this Friday. The bleeding has already started again!
  25. lynnelise
    So glad to hear you are doing well!
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