Jump to content

lynnelise

Advanced Members
 View Profile  See their activity

  • Posts

    470

  • Joined

  • Last visited

  • Days Won

    5

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by lynnelise

  1. lynnelise
    I find it's relatively easy to eat gluten-free in most any city. Grocery stores in urban areas almost always have gluten-free sections and several restaurant chains (Chili's, Outback, Ruby Tuesdays, ect...) have gluten-free menus. Here are some links that will hopefully be helpful in finding restaurants. Open Original Shared Link Open Original Shared...
  2. lynnelise

    ARCHIVED Applebees

    lynnelise replied to Googles's topic in Coping with Celiac Disease

    I hate to be a Debbie Downer but I have got glutened at Applebee's every single time. The last time I spoke to the manager and just had a salad and a burger w/o a bun that was supposedly cooked on foil. I got sick within 30 minutes! Edited to add: The manager said the ground beef is the only fresh meat item they have. Everything else is pre-seasoned...
  3. lynnelise
    I can't fathom someone actually telling a person who knows their body after years of exerience to go to the doctor or change their signature line to say they are diagnosed. This is the Celiac AND Gluten Free forum. Not everyone is gluten free for the same reason. Some are autistic, some have Crohn's or colitis and find relief this way, others fibromyalsia...
  4. lynnelise
    Maybe try Rudi's? That and Udi's are the only gluten-free breads I enjoy!
  5. lynnelise
    I picked I might have reacted. I was eating Bob's for awhile and kept getting stomach aches so eliminated oats. Recently I was tempted by the Udi's granola and have been eating it for over two weeks without issue! So basically either just the Bob's didn't agree, the stomach aches were random or caused by something else (very likely), or I wasn't healed...
  6. lynnelise
    I had my gallbladder out 5 and half years ago. It was very frustrating because it hurt for years and the doctors kept ordering ultrasounds and saying it was fine, no gallstones. Finally I switched doctors and the first thing he ordered after seeing no stones on the ultrasound was a HIDA scan and sure enough it wasn't functioning! I only wish someone had...
  7. lynnelise
    I don't know if it's related to celiac or a seperate issue but I get diarrhea EVERY single time I have any prolonged sun exposure! I also get crazy rashes. I sometimes wonder if I'm allergic to sunlight! lol
  8. lynnelise
    I suffer from gastritis and I pretty much never vomit either. However when I'm having a flare-up my stomach burns and hurts. I also feel a lot of pressure in my ribs. They gave me Carafate which is an ulcer medicine that protects your stomach from acid and allows it to heal. It worked wonderfully!
  9. lynnelise
    Honestly two days is not nearly long enough to test positive after so long on the diet. If you doctor promised you that it was then I seriously advise you get another doctor. This one appears to be completely clueless about celiac disease!
  10. lynnelise
    I realize you are shocked and upset by the diagnoses, but this is not the fate worse than death you think it will be. I go out to restaurants and occasionally bars with friends, I travel, I go to concerts, parties, cook-outs, amusement parks, hiking, and so much more! In fact I'm hard pressed to think of anything I did before than I can't do currently perhaps...
  11. lynnelise
    The blood tests seem to show false negatives fairly often...especially if you haven't been on a full gluten diet for several months. I say if you feel better on the gluten-free diet then you need to keep it up. Regardless of what the blood tests says, if you get unpleasant symptoms when you eat gluten then your body is sending you a message!
  12. lynnelise
    Just a quick update. My immune system checked out fine. No sign of immune deficiency. He said something seems to be stressing my immune system, hence the repeated illnesses. I do have a surgical consult to see if I need an enlarged lymph node biopsied so that may or may not provide answers.
  13. lynnelise
    Takala: Thanks for your response. I hate that you've had such trouble too! I'm so frustrated with doctors! I have not been tested for lyme disease. It has been mentioned but I was told it was a difficult process and that unless I knew for sure I had been bitten it wouldn't be of help. I quit taking birth control two and a half years ago because I...
  14. lynnelise
    The allergy is very mild and the only symptoms are that my gums and mouth will tingle...if I drink cold coffee or coffee with regular milk. No reactions to hot coffee with soy. The allergist says it is fine to indulge on occassion so I go to Starbucks once a week and have a coffee. That's all the coffee I drink. I probably do get a lot more soy than...
  15. lynnelise
    The RF, SED rate, and Creatine Kinase are all in low/middle of the range. As for thyroid my TSH is 2.14 (range .45-4.5). Last year it was 3 so that has improved. My doctor pretty much told me that there is nothing else she can do but send me to the rheumatologist, though she admits that he probably won't help either. She said I probably have something...
  16. lynnelise
    I have a previous post that describes the symptoms I am having here: I'm still waiting for my follow-up on the Immunology tests but honestly don't expect them to show anything amiss. My June 29th bloodwork shows my ANA, SED rate, RF, and thyroid and all were perfectly normal. My symptoms most closely match lupus, but I've been told with a negative...
  17. lynnelise
    I would send an email to Starbuck's customer service and make them aware of the issue. My local Starbucks never has a problem showing me labels and such. So far I've never gotten sick at Starbucks and I go at least once a week with a friend. I don't do fraps though. They made me terribly sick before I went gluten free so I won't chance it now! Cold coffee...
  18. lynnelise
    Both links opened without issue on my work PC. All sorts of innocent sites trigger warnings with our scanning software but these opened perfect, no warnings. I now really want those See's chocolates though! Like for breakfast!
  19. lynnelise
    False negatives are much more common than false positives. So to have a positive blood and a borderline positive biopsy seems pretty certain that you need the diet.
  20. lynnelise
    Thanks for the suggestion TH! I'm open to any theories. Valley Fever seems unlikely since of all the illness I manage to catch I rarely catch lower respiratory stuff or cough. Also, I don't travel very far from the East Coast. IL or LA is the furthest West I've been. While I'm pretty sure that isn't my issue it does look like that needs more awareness...
  21. lynnelise
    I tend to agree. Also speaking as someone who keeps a seriously packed fridge and has little kitchen space I would have a really hard time finding room if a guest came with bags of groceries and I wasn't prepared! So yes, your MIL could have been more sensitive but really the whole gluten CC issues is kind of a big deal and someone should have given her...
  22. lynnelise
    I love those potatoes. Especially the sweet potato fries! What a letdown. You'd think more companies would be moving towards gluten-free instead of away from.
  23. lynnelise
    It is not at all uncommon for people to be intolerant to gluten yet the tests to be negative. Tell your doctor that you've trialed the diet and have seen improvement. Sometimes doctors will give you a diagnoses based on that alone.
  24. lynnelise
    Just saw this post and wanted to say I hate that you've been through so much! I'll be praying you can get on to the next stage of treatment without delay!
  25. lynnelise
    This does sound familiar. My stomach symptoms are under control but the fatigue, body aches, and general malaise are out of hand! I will say that I know some of my immune system is still working because I had an allergic reaction to that vaccine. That was fun...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.