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beebs

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Everything posted by beebs

  1. beebs
    Last time I ate a full gluten meal, 6 wreks after going gluten free, this was 9 years ago, within 45 minutes I was projectile vomiting, then bile, exrutiating belly pains, cold sweats etc, taken to ED. I am very careful with gluten now as I react badly to CC, but don't have that kind of severe reaction to it.
  2. beebs
    So we put him gluten free after the negative bloods, we didn't want to push for a biopsy unless we had a bit more evidence. Belly pains stopped 100% . He has just gone back on gluten for a challenge and yep, belly pains are back with foul stools. I rang the coeliac society, and they said the new test they are working on that would only require 3 days of eating...
  3. beebs
    I have EoE as well! Stupid disease, it really is horrid!
  4. beebs
    You're story sounds like mine, expect my mother took me to specialist for years and they all thought she was "over involved". But yeah, symptoms as a child, always feeling ill, always vomiting, chronic nose bleeds, ulcers etc. I was only after she as diagnosed at 65 that we started looking at me. Hindsight is amazing isn't it?
  5. beebs
    I've since found out that the stomach acid not being able to swallow thing is due to Eosiniphilic Esophagitis. They are co-morbid conditions, and there are a few people on this forum who also have both.
  6. beebs
    I'm not sure why, but red wine seems to be very bad for me. I can't work out why, I am fine with whites, champagne, cider, other spirits. But for some reason, if I have a couple of glasses of red I will puke all night long. I don't think it is gluten related, but I'd love to know why it happens!
  7. beebs
    Yes, I started getting episodes of small bowel intussusception (which is a life threatening emergency) the last time I had it was after going gluten free for 6 weeks and then going out to dinner with friends to a Vietnamese and deciding I didn't want to be "one of those people", so I shared the same food as everyone else, and within 45 minutes I was projectile...
  8. beebs
    I know this is an old topic, but i have both EoE and Celiac as well. No food allergies at all though, my specialists (who are doing clinical trials with EoE) also say they see a lot of people that don't have allergies, but that it may also be caused by intolerances.The weird thing is one of my main triggers for EoE is gluten/wheat.
  9. beebs
    I've never come across a cider with gluten in it. Alcoholic ginger beer however is a different story, I haven't found a gluten free one yet!
  10. beebs
    My 3.5 year old complains of stomach aches multiple times a day every day and it has been going on for months, he has had a negative coeliac panel, but is positive DQ2. Just wondering if anyone else's child has had just stomach ache and they turned out to be celiac? I have celiac, as does my mother, suspected in my (deceased - Bowel cancer at 45) grandfather...
  11. beebs
    I am trying to get into a GI asap for testing of my little boy, who has had issues for years and years. He had a biopsy when he was 18 months which was borderline and not enough for a diagnosis because he had projectile vomitting, bad poos an severe reflux his whole life. Fast forward to now and he has been having chronic belly pains for the last 6 months...
  12. beebs
    Wow, he had a very bloated tummy didn't he. Sounds so much like what my son went/is going through - over the last 4 years.
  13. beebs
    Thansk for your responses, and thanks nvsmom for the info on the marsh scores. Well, I think we are on the right track, the kids have only been gluten free for a week, went to a cafe today and we let DS have a burger, didn't even think about gluten to be honest. I forgot all about it. Within an hour he was white as a sheet and complaining of belly pains which...
  14. beebs
    He is one of the best GIs in the country, so I am reluctant to leave him. But they redid his bloods recently before he was gluten free and they showed up negative again. Which really, my bloods have always shown up negative and I am deffo coeliac - so I don't really trust the bloods anyway. What does Marsh 2 changes mean in terms of coeliac? Can it...
  15. beebs
  16. beebs
    Hi everyone, I need to pick the brains of the people on here who know heaps about coeliac. A bit of background information, I am coelaic and also have EOE, my mother is Coeliac and my grandfather developed bowel cancer in his 40s after a lifetime of sick bellies. Two of my sons have been seeing a GI for almost their entire lives, one had a...
  17. beebs
    Oh my goodness, I just came on here to post something about this very thing. I have just been diagnosed with EE on friday. I was reading this study that is on this site about how it is more common among celiacs to have EE than the general population. The plot thickens. Anyone any good at data analysis? Standardized incidence ratio was 35.6 (95% CI, 9...
  18. beebs
    Hmm, he stayed of gluten the whole day yesterday and it all settled down, I gave him gluten for breakfast and within an hour his achy tummy is back. Doh.
  19. beebs
    I have psoriasis in my finger nails and being gluten free doesn't help with. It seems to get worse when I am in an AI flare though -so I know it is all connected.
  20. beebs
    He has been eating gluten for two weeks, on the first day his reflux came back and since then he has a few bad bellies, saying it hurts and burny feeling etc. Yesterday he had an achy belly the whole day and then last night he vomited, he woke up in the night and vomited and then he vomited this morning. It could be gastro even, but he has no other symptoms...
  21. beebs
    HOw long was it until they showed symptoms or started feeling ill or in pain?
  22. beebs
    Connective tissue disease. Possible RA or psoriatic arthritis - time will tell. I believe it was probably trigger by eating gluten my whole life when I had celiac symptoms as far back as 6 or 7 years old.
  23. beebs
    Wow, this is fascinating stuff, I have autoimmune arthritis and celiac and two of my kids have ASD and are both suspected celiacs. We all have asthma. I always thought there was probably a connection.
  24. beebs
    One of my main symptoms was really bad GERD, so yes, it can be a symptom of Celiac. I think you should get him tested.
  25. beebs
    really don't see that is that big a deal changing the labels on food to include a statement about gluten "this food contains gluten", "this food may contain traces of gluten". I for one am very thankful that I live in a place that has labels like that on all food made in this country.
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