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beebs

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Everything posted by beebs

  1. beebs
    I always think its best to if you can, what if it isn't that? What if it is that and something else? What if the years of eating gluten has done damage etc?
  2. beebs

    ARCHIVED Marmite!

    beebs replied to Mateto's topic in Introduce Yourself / Share Stuff

    NSW!
  3. beebs

    ARCHIVED Confused

    beebs replied to amberlink09's topic in Related Issues & Disorders

    There are connections with autoimmune diseases, once you have one you are more likely to have more. If you are getting joint pain you should get referral to a rheumatologist - they do autoimmune diseases of the connective tissue variety (RA, Lupus, Sjogren's etc)- and your symptoms along with your ANA could point to that.
  4. beebs
    My grandad got bowel cancer at 45 after a lifetime of sickly tummy - and a family full of coeliac's. Go through life with no ill effects my foot! Sorry your family aren't supportive. It must be awful, mine are because they are all coeliac's so they get it. I'm sure that your daughter would get through and endo with flying colours - but you have...
  5. beebs
    Open Original Shared Link
  6. beebs
    Hiya - I'm from Sydney. There is a woman in Balmain who is both a GP and Coeliac researcher - she is meant to be really good. Her name is Dr Carole Hungerford. Good luck I believe her waiting list is quite long.
  7. beebs

    ARCHIVED Celiac And Lupus

    beebs replied to Dino's topic in Related Issues & Disorders

    Having any other autoimmune disease is higher with those with Coeliac - especially those in the connective tissue group - which lupus is. Joint pain would make me think connective tissue - could be anything though -there are heaps of diseases in that group, RA, sjogren's lupus - and more. Can't remember them all.
  8. beebs
    Hello, my little one was given a 90% change of CF, due to panreatic something or other, anyhow long story shore. It wasn't that (thank god) it was gluten! He was the same, like seriously sick ever single day of his entire life until he went gluten-free.
  9. beebs

    ARCHIVED Gastritis

    beebs replied to raea2002's topic in Coping with Celiac Disease

    Not sure if this is helpful, but my LO has been gluten free for about 18 months and he still has really bad gastritis, it comes and goes - and now it is back!
  10. beebs
    YES, I had multiple middle ear infections that ended in perforations - I mean - like at least two a year, chest infections all the time, I'd always get whatever was going around. AND I know have more Autoimmune diseases, that may very well have been triggered from eating gluten. Also - I know have to go for another endo because there may be long term damage...
  11. beebs
    I was booked in for an endo, and then a few days before I found out I was pregnant. I was secretly thrilled as I was so scared to have one. I went gluten free - with the purpose of doing the challenge later ( higher rate of miscarriage etc is undiag coealics etc) phew. But now its all catching up with me - I have has some really bad symptoms lately and now...
  12. beebs

    ARCHIVED Marmite!

    beebs replied to Mateto's topic in Introduce Yourself / Share Stuff

    This thread just inspired me to email masterfoods about promite - haha!
  13. beebs

    ARCHIVED Marmite!

    beebs replied to Mateto's topic in Introduce Yourself / Share Stuff

    I am a promite girl, it is the only thing I truly miss, with sweet and sour rye, lashings of butter and just a thing spread of promite - my all time favourite comfort food:(
  14. beebs
    What if its negative? There is a 40% false negative rate in kids under 5 and a 15% negative rate in adults.
  15. beebs
    Yeah, the bloods are notorious for being negative in children, its far more likely to show up in an endo - although that can be negative too, they need to take at least 11 samples, people come on here all the time saying they are negative and then revealing that the dr only took 1 or 2 biopsies. I swear - the medical profession need to get with the program...
  16. beebs
    Yeah, my son had that - I think if we are talking about Mash scores, 1 & 2 is beginning stages (borderline) and 3&4 are diagnosable as coeliac, so annoying - it means there is damage there - but not enough to be conclusive - so he shouldn't send you on your way as there is obviously something going on.
  17. beebs
    I'm undiagnosed too - but I know its not intolerance, do you think maybe you were just one of the 15% false negatives? I never trust those tests anymore, I only had the bloods done, went gluten free with the knowledge that I was going to do a challenge - I was really, really looking forward to it, my first stop KFC chips with gravy and chicken salt - haha...
  18. beebs
    DAMN! I was just going to go and buy some gluten free oats- now I am too scared!
  19. beebs
    That was a huge thing for me, one day I was fine with dairy - the next I couldn't tolerate it at all, I am fine with dairy now that I am gluten-free. The problem with this kind of testing is it can take ages, it took over a year from the time we first went to the Paed GI for my little one to the time he gave him an endo. I feel your pain - it is very hard...
  20. beebs
    There is lots of talk about them on here, alot of people can't handle the products, they use the same production line for gluten products and then wash them down when doing gluten free. That is totally not done here in Australia - if its Gluten free its gluten free - end of story. If its on the same production line it has to say on the package "produced on...
  21. beebs
    One of my main symptoms of eating gluten was severe acid reflux.
  22. beebs
    As far as I have read the only reason we can't have oats is because generally they are co-grown and co stored with wheat. But if you find oats (like freedom) that are grown and stored separately then they should be fine, having said that - the coeliac society says no to all oats. Also - you the gluten free oats that you get are like 8 or 9 dollars for 5...
  23. beebs
    I hope they took biopsies???
  24. beebs
    Hiya, sounds similar to what we went through - down to the cystic fibrosis testing. There is a higher false negative rate on the bloods that on the biopsy - however biopsies like anything else -can be false negative too. If you do want him to be tested you need to put him back on gluten (remember that just cutting out wheat does not mean that he isn...
  25. beebs
    Oh yes, you need to be forceful, ask for the tests and make sure you read up as much as you can on here. There is a high rate of false negs - so if it is neg you need to know what you are talking about. Also - undiagnosed Celiac disease can trigger other autoimmune diseases, so its possible that those other symptoms you have are another autoimmune disease...
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