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beebs

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Everything posted by beebs

  1. beebs
    :lol:
  2. beebs
    Maybe you should show this peer reviewed study to the Paed Surgeon - Celiac can very well cause I/S as can polyps! Open Original Shared Link
  3. beebs
    :blink:
  4. beebs
    Thank you Skylark! You always know the scientific stuff!
  5. beebs
    I totally get you raven, what I meant though was - don't we only have two copies of HLA DQ genes? One inherited from each parent? So are you HLA DQ 9/HLA DQ 9?? I am also DQ 6 - which I heard was associated with RA also - but I could be wrong! This gene stuff is way too smart for me
  6. beebs
    Hello, I also get intussusception - it is directly related to when I eat gluten. I have had it 5 times within about 18months but luckily for me it has become "unstuck" each time, the last time I ate gluten it was very hairy and almost didn't become "unstuck" I was violently ill and rushed to hospital. And it was all because I had gone gluten free for 6 weeks...
  7. beebs
    This is here in oz - we only recognise DQ8 & DQ2 - man genetics is so complicated!
  8. beebs
    We get Schar and I love them - but serioulsy- its like 10 dollars for a loaf of bread:(
  9. beebs
    They can go hand in hand together. The pressure in your upper abdomen and gassy feeling could also be a stomach ulcer...hmm. THey don't just do an endo for crohn's, they do things like colonoscopy, barium tests, xrays etc etc.
  10. beebs
    I was reading on facebook and someone said that their husband tested positive for 3 coeliac genes??? I thought we only had two copies of HLA DQ genes? What do you suppose it means?
  11. beebs
    Wow - I had never even considered someone would end a relationship over something like coeliac - just seems such a non issue. Shame on your mum - if he is the man you love and coeliac is the worst thing you guys ever have to go through then I think you'd be having a brilliant life!
  12. beebs
    My joint issues (which are deffo autoimmune) have so far not resolved on a gluten-free diet - its been a year and they just get worse and worse So bad, cause I sort of assumed they would after reading so many success stories here! Doh!
  13. beebs
    I suppose I am self diagnosed- in that I don't have a formal diagnosis -(I haven't had an endo) having said that all my drs and specialists agree that I am coelaic - there is just no way I'm not. Because I haven't had a biopsy - I always have this about 10% doubt, I'm 90% sure I'm coeliac - but what if I'm not? What if its something else and I'm gluten free...
  14. beebs

    ARCHIVED Why, Oh Why?

    beebs replied to mushroom's topic in Doctors

    Ah Mushroom - I have a great rhuemy, she told me alot of her clients feel much better gluten free in regards to joints! I think you need some new doctors!!
  15. beebs
    That is a very interesting theory - I am no help because I haven't had the biopsy - but I have had completely negative bloods, but my reactions are so severe that they are considered life threatening. I have always wondered how that is possible - how can I test negative when if I eat gluten I get intussusception and am rushed to emergency. It just doesn't...
  16. beebs
    I in regional australia - too many to mention to be honest, lots of poisonous spiders around red backs, white tails, black house spiders, funnel webs. Haven't seen any snakes this summer yet though, so that is good. Hate spiders though - I get the heebies really bad. The other night I shone a torch to open up the back fence and there were 20 little eyes glowing...
  17. beebs
    No, not life threatening for him, just annoys me in general - that just because its rare its like it doesn't exist, and it does! Its almost like one of those It's rare, therefore it doesn't matter thing. Grr. And someone posed a thing here the other day about the person who went into Coelaic shock and all their organs shut down! This stuff does happen sometimes...
  18. beebs
    I received a pamphlet to send to my sons school as he is starting kindy this year. And in it it states that consuming gluten is "never life threatening", as some of you know my reaction to eating gluten IS life threatening. And It makes me so mad when I read stuff like that from the people who are supposed to know all about it! Am I over reacting? I know...
  19. beebs
    It just takes time and practise - seriously- he is 3, soon he will start to feel better and eventually won't even remember what gluten foods are. Make sure you get some good gluten free cookbooks - I ve been doing it for a year and still have days where I can think of nothing to make!
  20. beebs
    I thought I had nail fungus that I just couldnt' get rid of my whole life - but then found out it is psoriatic nails - which is psoriasis but it only attacks your nails, its autoimmune. If I were you I'd be asking to see a rheumy about that -you are celiac which means you are more likely to have other autoimmune diseases etc.
  21. beebs
    Yeah I have, some people can tolerate it - he just cant, there are still other things he can't tolerate which I can't work out...its a minefield - just give it a try I reckon.
  22. beebs
    Braised lemon, chicken and rice stew with Thyme and smoked paprika.
  23. beebs
    Aha - lots of newfies go there for work:) Bleeding cold there- NFLD is a walk in the park compared - but the awful thing about the weather in St John's is that it rains and everything turns to slush and then freezes all in one day - so sometimes you are walking around in knee deep slush and others sliding down the street on your bum The weather in Canada...
  24. beebs
    I absolutely agree with you, 3/4 of Australians claim Irish heritage.
  25. beebs
    I am from Australia my dad was Welsh/Irish (who emigrated here in the 60s) and my mum is Irish/Australian. I lived in Ireland for almost 4 years and Newfoundland for one and now I live in the central west of NSW. I have traveled to 18 countries -all before I was gluten-free - I dread to think of what it would be like in some of those place gluten-free. But...
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