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teresasupermom

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Everything posted by teresasupermom

  1. teresasupermom
    I agree with the others. I would have the blood test done to screen for it. If it comes negative you can always do a gluten challenge to see if she's intolerant to gluten, but if it's positive it will be easier to get accommodations and such at school. For me there were just a ton of reasons to formerly test. I have also had most of my other kids screened...
  2. teresasupermom
    Has she had her antibody levels rechecked? Our GI doc has been checking every 3 months to see that they go down. To our surprise my dd's levels initially went down, but have steadily been going up. We have had to really change things more than I thought and are still trying to pinpoint all the sources of glutening. We've found a few things in the past...
  3. teresasupermom
    We are going through similar problems with my dd. Her antibody levels have progressively gone up her last 3 checks in spite of us being stricter and stricter with things. We at first were only having her meals gluten free, and then the whole house has gone gluten free. I would start looking at that. For us I believe her primary problems have been cross...
  4. teresasupermom
    I have 2 kids with type 1 diabetes and 1 child with celiac disease. None have both. We just follow the same meal plan for everyone. I also am an identical twin myself so I've read up a little on this. Your other twin is definitely very high risk for getting both type 1 diabetes and/or celiac disease. My other non celiac kids do eat gluten at school,...
  5. teresasupermom
    Yes, we've found a couple places that she has been being exposed to gluten still so we're still working on this. She's getting contaminated out of the home I think, but still working on pinpointing all the sources. It's very frustrating.
  6. teresasupermom
    Those test strips are too expensive for that. I am only testing things that we eat regularly that I am suspicious of. My family goes out to this restaurant every week and my husband was not convinced that it was contaminated. Since we haven't been able to pinpoint the source of why my dd's antibody levels were still up I ordered 5 test strips to test a...
  7. teresasupermom
    French Meadow makes some pretty good gluten free frozen cupcakes Open Original Shared Link You can check out the store locator to see if they are available near you. If I get in a pinch on time I will pick those up. My dd likes Kinnikinnick cookies too. We are lucky that there is another kid in her class that has major food allergies. My dd goes to a small...
  8. teresasupermom
    My dd hates lunch meat or any meat that is cold at all so that eliminates a lot of the roll up type foods or lunchable ideas. We do a lot of leftovers from dinner that get popped in the microwave for her. We also send in gluten free chicken nuggets which also go in the microwave. The only thing that she will eat cold is pb&j on Udi's bread.
  9. teresasupermom
    Interesting that you post this. We ordered EZgluten test strips so we could test our favorite breakfast restaurant. We eat there every Sunday after church and I have been suspecting that my dd's food was contaminated. They have shown me the food labels and even gone to the trouble of cooking her food in a separate skillet. (She was eating hashbrowns,...
  10. teresasupermom
    I agree with the advice above. I'd start with doing as much naturally gluten free options as you can. We buy one new gluten free food to try a week. (Well we aren't doing that much any more, but that's what we were doing.) We wound up throwing a lot of food out at first. By doing the naturally gluten free stuff you give them a chance to forget what gluten...
  11. teresasupermom
    While I get what you are saying a lot of the kids are having poor growth and poor weight gain. My dd for example hasn't ate dinner lately because she's so darn picky. She will just not eat. Some of these kids will choose not eating at all and they don't all eventually eat. Some will just lose weight and become more malnourished.
  12. teresasupermom
    We are still working on my dd gaining weight. She has not gained any weight in a year and I am very concerned about that. She is 7 soon to be 8. She has been completely gluten free for a year, but her antibody levels are still high indicating she is getting contaminated somewhere. Was she tested for antibodies at all? For us the antibody check has been...
  13. teresasupermom
    I agree with the others on getting a diagnosis if you can, especially if he is fighting you on this. If he has celiac then he will have to accept this no ifs, ands, or buts. Without a formal diagnosis it is going to be harder to keep him safe from gluten with others working against you. If you have celiac he definitely is at risk for it. As far as keeping...
  14. teresasupermom
    I've read a bit on this as I have a 6 month old. There are some new studies out saying that the best time to introduce gluten is between 4-6 months to reduce the risk of celiac. Because our whole house is now gluten free I am finding it hard to do that, but I have been trying to expose her to gluten. This is a very personal decision so I don't think there...
  15. teresasupermom
    I can sympathize on this one. My dd celiac antibodies were not going down so we finally made the switch to the whole family being gluten free almost a month ago. We have a large family as well - 7 kids, 6 living at home. I got picky eaters to boot so it's been interesting to say the least. You don't realize how much you live on bread and pasta until you...
  16. teresasupermom
    It definitely could be celiac. I would start with seeing about getting the blood test done ASAP. If you get a positive blood test then you got your answer. The blood test only takes about a week to get back, maybe sooner. If it's negative you can start a gluten free diet and see how he responds. If you have a history of autoimmune disorders and allergies...
  17. teresasupermom
    Yep, our pediatrician caught this. Blood test takes anywhere from 4 days to a week or so to come back. I'd go in and ask for a blood test if you are concerned. If it's elevated they will get you in much faster to a GI.
  18. teresasupermom
    Right now I am trying to eliminate everything because my dd's celiac antibodies are still highly positive and I really think she is not directly eating anything with gluten in it. It's so hard for me to explain to people and even my dh is frustrating. He thinks the problem is just that my other kids are messy and getting our house gluten-free will fix all...
  19. teresasupermom
    Well that was my dd's symptoms. Well not the inattention, but the constant complaining of stomach hurting. And she didn't really act sick. I thought she just was trying to get out of doing things because she'd say it on days she didn't want to do stuff. Then as soon as she got to stay home she'd go right back to playing. I felt awful once she got diagnosed...
  20. teresasupermom
    Yes? I am guessing more handwashing is in order. I could probably rearrange things so she is in her own room if I had to.
  21. teresasupermom
    She's only 7 so if my inlaws bought her something she would eat it if they told her too. She's not quite old enough to speak up for herself yet. She's almost there though. But having her working with me sure helps. I sure wish I could figure out what is triggering her. Getting my family on board was tough, but they are coming around. Besides they can...
  22. teresasupermom
    Hopefully now that you have a diagnosis and are gluten free you will be feeling a lot better. I know for us my dd misses a lot less school now that she is gluten free. I certainly think if you explain to your teachers and keep up with your late assignments they will understand.
  23. teresasupermom
    I am beginning to think my dd is super sensitive. She definitely can't handle living in a gluten house. We have gone gluten free for everyone, but I really am suspecting she is super sensitive. How do you define super sensitive and how do you go about figuring out someone's threshold? (Obviously not exposing her to gluten, but I mean restaurants, processed...
  24. teresasupermom
    It certainly could be celiac. Does he have any other symptoms? I ask this because I have 2 kids with diabetes and one with celiac and the rapid weight loss is a red flag for diabetes as well. But if he's not having other symptoms - frequent urination, excessive thirst, I wouldn't be concerned about that. I definitely would see a GI doctor. Have they done...
  25. teresasupermom
    Right now I am beginning to think she is super sensitive. I'm not 100% sure, but we've been at this a year and her levels are still "highly positive". We just recently (not quite a month) switched the whole house over to gluten free. We have one restaurant we eat at and they cook her food in a separate skillet. Even with that I am paranoid, but dh thinks...
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