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starrytrekchic

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Latest Celiac Disease News & Research:

Everything posted by starrytrekchic

  1. starrytrekchic
    Glad you're doing better. One thing I didn't see mentioned was pet food--I've cc'd myself with catfood, so if you have pets, check their food ingredients. Also, things like instant and flavored coffee can be a problem.
  2. starrytrekchic
    The problem is any stress on the body can increase the risk/severity of celiac. My symptoms actually increased (significantly) when I started a running program (before I went gluten-free). As to why water helps--the water helps flush out the gluten and keeping hydrated would lessen the severity of some symptoms (like diarrhea).
  3. starrytrekchic
    I also second the thyroid check. Also any other medical conditions or medications that could be causing problems with losing weight. The best thing you can do is to count (accurately) the number of calories you're taking in every day. Depending on how far advanced your celiac was, your body may be in starvation mode, meaning losing weight for the first...
  4. starrytrekchic
    The best thing for you and your husband to do is to pick up an extensive book on celiac disease and start learning everything you can. There's a LOT that goes into learning how he can and can't eat. He's going to be more sensitive right now. This means no crumbs anywhere. Anything added to food must be made from dedicated gluten free jars (in the case...
  5. starrytrekchic
    You have a few options. You could just go ahead and try the diet to see if it works. That means no wheat, rye, or barley, and probably no oats. You'd need to check all of your spices, condiments, anything pre-made, your supplements and medications, your pet food, and your personal products, as well as thoroughly cleaning out your kitchen (and not using...
  6. starrytrekchic
    Being constantly hungry is a sign of being glutened for me (had it before going gluten-free and when I get glutened now.) You might make sure you don't have any lingering gluten in your food/products/etc anywhere. Also likely your body went into starvation mode. Make sure you're eating enough calories everyday (1600+). Fill up on high fiber foods to...
  7. starrytrekchic
    Hi, nothing to worry about as long as your sensible with what you eat (your replacement foods.) I also gained a lot of weight in my 20s, fought it off, then went gluten free. And since being gluten free my weight has finally stabilized. I think the people who gain weight gluten free tend to be either those who needed to or those who try direct substitutes...
  8. starrytrekchic
    Add me to the group initially diagnosed with IBS...but didn't really have that. My doctor didn't even test for anything! He just listened to my tummy, listened to my description, and told me I had IBS. I was a freshman in college and clueless--no idea I should have pursued it further. 11 often miserable years later and finally everything has resolved...
  9. starrytrekchic
    It's possible...but I don't think likely because I've been using the same jar of coffee for about a month now. Seems unlikely that it would only gluten me twice, when everything's mixed together and I've had it on a lot of days. Coffee can definitely be a problem though. I'm not sure about pure versions (like mine is), but I've been glutened by instant...
  10. starrytrekchic
    I'd start by writing things down--a list of reasons why you became vegetarian--and see which of those reasons still apply. And make a list of reasons you don't want to be vegetarian. Writing everything down will clear out your thought process--it'll also help point out what's actually important to you and what isn't really worth considering. Do make...
  11. starrytrekchic
    Yeah, I eat a ton of dairy--no problems with it. I also compared this coffeemate to another that I use regularly (and have no problem with), and they both had sodium caseinate listed, so I don't think it's that.
  12. starrytrekchic
    I second the recommendation to skip it for now. Give yourself a few months to adjust to the diet and get a handle on it. I'm one of those who reacts violently to anything distilled. You may react to it, you may not, but early on, I'd recommend erring on the side of caution.
  13. starrytrekchic
    I got glutened *very* badly a little over two weeks ago (felt like I was going to die.) I'd added two new products to my diet that day--gum and honey vanilla creme coffeemate. I finally decided it was the gum, since everything I've read lists coffemate as gluten free (liquid variety) and I've used their products in the past (though not this flavor). ...
  14. starrytrekchic
    It can show up the next day--it just depends on you and your reaction time. I would check the coffee--instant coffee and flavored coffees can both contain gluten. Pure coffee *should* be fine. What about all the utensils/pans you used to make this? Also, given how long you've been gluten free, you may be in the period where people typically develop...
  15. starrytrekchic
    Hi, sounds like you're going through a lot. I think you may be taking on too much trying to figure this out yourself--that's what you pay the doctors for! Obviously you should be doing plenty of research, but until you've seen your GI, I'd put off making yourself feel like *you* have to figure out what's wrong. If he doesn't help you, then, sure, launch...
  16. starrytrekchic
    It was definitely the pizza. I've eaten Amy's twice since going gluten free and I was glutened (badly) once. Amy makes food on shared lines, and though they clean them and test to make sure they're below the 20ppm required to label foods 'gluten-free' their food isn't by any means safe, especially for the more sensitive celiacs. Open Original Shared...
  17. starrytrekchic
    Since you're feeling marginally better, I'd stick with it, but also eliminate everything else you're having problems with for 2-4 more months. And spend that time investigating any other possible sources of being glutened. However, if you want to go back to eating gluten to see how it makes you feel, that's fine too. Normal people don't have any problem...
  18. starrytrekchic
    First...are you sure you're entirely gluten free? It can lurk anywhere--spices, natural flavors, etc, in the ingredients list. Also, things like barley and rye don't have to be listed on the allergy alerts at the bottom. The manufacturers also don't have to list cross contamination (some do), so you could be getting glutened there. In addition there are...
  19. starrytrekchic
    They're completely separate illnesses, but because celiac can affect moods (and people with it can be lacking in certain vitamins/minerals necessary for proper brain functioning), celiac might exacerbate bipolar symptoms. A gluten free diet might clear up some intermediate mood swings, some mild depression, and some other symptoms you may be associating...
  20. starrytrekchic
    Yes, I used to get ravenously hungry, especially after eating a high-gluten meal. After going gluten free, this has dropped off, but I still get it if I get glutened. On those days, I just can't fill up. One thing for me...sometimes I was hungry--felt like I was starving on a more mental level--and sometimes it was also more physical, like you said,...
  21. starrytrekchic
    Do you need it to be outside the home or just quick? At home, cereal, cottage cheese, fruit, yogurt are all quick fixes. Yogurt you could take with you. You could also try gluten-free bars. If you're looking for something a bit more substantial--you may want to see if there are any gluten free bakeries or delis in your city (if you live in a larger...
  22. starrytrekchic
    I would start by talking to your boss or manager, whichever is appropriate. Explain that you're starting to feel isolated and harassed. But specify you don't want any special treatment--just that you need help explaining to the others what their comments are doing. Your boss or manager (or other coworkers) would have better insight, since they know the...
  23. starrytrekchic
    I would get rid of wheat, barley, rye, and oats--but I wouldn't worry so much about cross-contamination if I were you. However, you may find your reactions getting worse as you go gluten-free. A lot of people have increased sensitivity after the diet change; if that happens, you'll have to be a lot stricter. You should definitely get follow-up testing...
  24. starrytrekchic
    It could be, but it could be other problems relating to your period. You have the blood/iron loss, which could be affecting how you feel overall. Diarrhea (moderate amounts) is common during periods--has to do with the stimulation of the muscles in that area--they respond to the same signals your body is giving to your uterus. Even completely healthy women...
  25. starrytrekchic
    Thanks, I'll see about Vitamin D. I try to eat balanced and get all my vitamins, but seeing as it's winter and all--besides the celiac thing--that could be the culprit. I looked into it and Vitamin D seems to be pretty high on the vitamin deficiencies that cause exhaustion. Guess it's not too common as no one else replied, though! I know what you...
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