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starrytrekchic

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Latest Celiac Disease News & Research:

Everything posted by starrytrekchic

  1. starrytrekchic
    I've been eating Old Dutch products for a while without problem, but last night I picked up a bag of red and white tortilla chips (labeled gluten-free) and had a reaction within minutes (blinding migraine--still here this morning.) I don't remember Old Dutch having a labeling problem when I first researched the company. I believe at the time only some of...
  2. starrytrekchic
    Do you know what your typical reaction is to gluten? Knowing that will narrow down whether this is a gluten problem or not. I also first thought 'anxiety' when reading this. I have a similar situation happen to me during my once a week club visit, but I've been gluten free long enough to differentiate my anxiety symptoms (constant D throughout the day...
  3. starrytrekchic
    Most cookware is fine. I'd replace anything wooden (spoons, rolling pin, cutting board) and anything with a fine mesh (strainers, collanders.) The toaster will have to be replaced. The only reason I'd replace pans is if they had cooked on grease that won't come off...and in that case, you can delay replacing them by putting foil between them and the food...
  4. starrytrekchic
    My symptoms definitely went from chronic to acute. Before, I constantly felt bad. Diarrhea, eye-ataxia, a whole host of stuff attributed to low vitamin levels (covered in bruises, no night vision, brittle/thinning/faded hair), random migraines, bloating, constant hunger, weight gain. My stomach area would hurt most days, leading me to be curled up in...
  5. starrytrekchic
    You won't like this...but you MUST eat more! And I'm saying that as someone who successfully lost 80 pounds and who has kept it off for several years. Any diet that restricts your calories to 1200 will fail, even if you didn't have celiac disease (I'll tell you why this complicates things later). It's not a maintainable amount to eat, because you will not...
  6. starrytrekchic
    Anyone have any personal experience using these? I understand the pure spices are gluten free, but not made on dedicated lines. I'm sensitive enough to react to something made on shared lines. The spice in question is ground nutmeg, but I'd be interested in knowing people's experiences with Safeway brand spices in general. Thanks!
  7. starrytrekchic
    Hi, welcome. A couple of things: celiac disease can be triggered in people with the right genetic profile. Pregnancy is a common trigger. The reason you're feeling better after cutting out gassy/fatty foods is that they're difficult to digest. When your intestines are damaged, like yours are, they get really difficult to digest. The good news is, once...
  8. starrytrekchic
    I just moved here, so I'm still learning places to eat. We ate at Sofra once--it was very good. Also at Col Mustard's on 124th--that food was different from any thing I've had, but good. The Dish and the Runaway Spoon didn't have too much both veggie and gluten free, and what I got was too salty, but you might have luck with something else. There are a...
  9. starrytrekchic
    I haven't...I've eaten at a bunch of places here, but none of those. I'm vegetarian too, so I don't think the fish and chips place would work (but I might be able to find something.) I'll look into the rest of them, thanks for the suggestions!
  10. starrytrekchic
    I have low cholesterol. The first time I got it tested was a few months after going gluten free & it was at 135 total. It went up to 150, but the last time I tested it (almost 3 years gluten free) it was back down to 143. I can't seem to get it up in the normal range--it really needs to be above 160 to be healthy. Celiac can trigger it since you can...
  11. starrytrekchic
    It could be...or you could be having any of the normal digestive problems other people have. It took me months to figure out most of my symptoms & their timing, and about 9 months before I had a full grasp on reactions. Reactions are very specific to individual--including how long they last, if they get worse, if they change over the days, etc. So...
  12. starrytrekchic
    Both booths I went to were, but they were both Indian food places & those tend to be easily Celiac friendly. You can get a menu for all the booths when you buy tickets at the front, and it has "C" written next to anything we can eat. (I think there was one mislabel on it--Chef's Grill and Bar had a "C" next to their pie, but I think it was supposed...
  13. starrytrekchic
    If you are in Edmonton, the Taste of Edmonton festival has things labeled as celiac friendly or not. The festival runs through next weekend (July 28th - downtown), and there are 14 different gluten-free foods available. I've eaten twice with no problems. Very fun to be out and about and be able to order booth from a food festival like normal!
  14. starrytrekchic
    Restaurant, bar, whatever. Preferably near the pike place market, but any place will do.
  15. starrytrekchic
    It made me feel much worse for about a year, then things started getting significantly better.
  16. starrytrekchic
    Yes, mouth sores are one of the symptoms that can come up. There also seems to be an adjustment period bowel-wise in the months after, but that should even out. Maybe try some higher-fiber veggies?
  17. starrytrekchic
    I went 11 years undiagnosed & like you, felt like several years are just blurs (my twenties for me.) It DOES get better. You'll have a lot of up and downs, but as long as you're trending up overall, you're doing things right. It does take time. I was one of the 3 days into the diet people, but that was followed by lots of downs, too. I would say the...
  18. starrytrekchic
    I was also going to ask about Crohn's as it most often shows up on the lower right side (where the small and large intestines connect). You would need a colonoscopy to check for that, and as said above, an endoscopy to check for Celiac. Once you go gluten free, further tests will be invalid for celiac, so if you want the endoscopy, you'll need that done...
  19. starrytrekchic
    Sounds wonderful...I'll try them sometime.
  20. starrytrekchic
    Don't change your diet gradually! That may actually increase your misery, as your body starts reacting more strongly to smaller amounts of aggravating foods. Don't worry about soy or casein. Do cut out gluten and eggs (you may be able to reintroduce eggs in 6 months or so). Otherwise, try to get a healthy selection of food (you probably don't want to go overboard...
  21. starrytrekchic
    According to a celiac who toured the JD distillery, the sour mash has gluten. Open Original Shared Link (scroll down to the first other answer) I'm one of the celiacs who can't have any alcohol distilled from gluten containing grains, but if you're drinking other bourbons then that's probably not your problem. I'd skip the sour mash and go back to something...
  22. starrytrekchic
    Migraines are one of the first signs I've been glutened. Is she getting them after she accidentally eats some gluten? Early in the diet, reactions can vary and even get worse (and the symptoms can change) so that may be what's happening.
  23. starrytrekchic
    Lay's aren't necessarily gluten free. Some products they test to 20 ppm, but some people are sensitive below that. Other products are not tested & are run on the same equipment as gluten-containing foods. See this list (for the US): Open Original Shared Link I'd also make sure the chicken wasn't injected with a wheat/water mixture before they grilled...
  24. starrytrekchic
    I go to the local Starbucks several times a week. The staff has been wonderful. My favorite barista also can't have wheat, and they've had no problem with giving me the bags of syrups and such to read. However, there are a lot of gluten containing drinks there. The light fraps, java-chip fraps, vanilla bean frap, vanilla chips, and several of the Tazo...
  25. starrytrekchic
    Thank you both for your responses. It's not soy, though. I can eat soy fine, including tofu & things with soy lecithin in them. It's one of the things I checked during the six months I was looking into what caused the problems. I've stuck with wine throughout.
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