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starrytrekchic

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Everything posted by starrytrekchic

  1. starrytrekchic
    Around nine months after going gluten free, I noticed a couple of new issues. First, I wasn't able to drink any amount of alcohol without feeling awful, and second, I developed crazy heart palpitations. Now, the alcohol intolerance I believe I solved. I dug around (non-scientifically) and discovered that gluten-free diets can be low in molybdenum, which...
  2. starrytrekchic
    Well, you don't have to do the testing, if you don't want. If there are any benefits--like being able to show family members with similar symptoms that you've been diagnosed so they might be tested--then you might want to go through with it, but plenty of people on this forum have never been officially diagnosed. You could take the gene test. 25-30% of...
  3. starrytrekchic
    Well, my knowledge of Bechet's is based on the wiki article I just read, but it says gastrointestinal pain, nausea, diarrhea, and painful ulcerations around the genitals (which may be the rash?) are all symptoms. Could it be you're getting new symptoms of Bechet's since you're not on the medicine anymore? You can have the skin around the rash biopsied...
  4. starrytrekchic
    Are you sure the chicken is wheat-free? Some meat processing companies use wheat as filler to plump up meat, including chicken.
  5. starrytrekchic
    That is typical for me. Depending on the severity of the glutening, I have symptoms lasting up to a week or so. The minimum is about 3 days. But since that's not typical for you, a few things could be happening. Your body might be adjusting to gluten differently now. My responses changed quite a bit over the first year. Also, as you heal, you might notice...
  6. starrytrekchic
    I just had the gluten free pizza at Palio's yesterday. It was wonderful. Open Original Shared Link
  7. starrytrekchic
    Spelt is a type of wheat, so you'd definitely react to that. You might also be reacting to cross-contamination during harvesting. A lot of the grains on the market are at risk of being contaminated, so you may just need to switch brands. If you're early in the diet, you might simply be having problems digesting grains, which should pass as you heal.
  8. starrytrekchic
    Your most recent blood results are certainly positive. You should do the endoscopy & then try the diet regardless. Your genetic tests just say you're not DQ 2 or DQ 8...they don't actually say what you are...were there no other lines? Like a series of what looked like code?
  9. starrytrekchic
    Someone gave me a package of Bueno Coffee Substitute. Ingredients weren't particularly suspicious, but I contacted the company because 1) I've seen both barley and rye in coffee substitutes before, and 2) because they make a lot of gluten foods. Looks like their coffee substitutes aren't safe, but I'm copying and pasting their email, because it was a nice...
  10. starrytrekchic
    The chances of a false positive on a blood test are almost zero. Celiac disease does happen outside the main two genes (DQ2 & 8) but it's uncommon. The best thing to do would be to go forward with the testing (biopsy and gluten free diet). Do you know what all of your test results were? It would be interesting if you copied them over.
  11. starrytrekchic
    When I had my colonoscopy to check for Crohn's, my gastro said Crohn's most often appears in the large intestine right where it connects to the small intestine, so if he's correct, your gastro might not be able to detect it from that procedure. I believe UC can occur anywhere in the large intestine. You really need to push for an endoscopy (which checks...
  12. starrytrekchic
    If he's doing the colonscopy, have him to the endoscopy at the same time. No sense in doing one without the other, especially as you also have upper digestive problems. IBS is not a diagnosis! It's a collection of symptoms. I'm not too sure about your gastroenterologist, especially if he doesn't realize how closely related neurological and gut problems...
  13. starrytrekchic
    The noises in the head is likely this: Open Original Shared Link I have the same thing some mornings when I'm half-asleep. I get the explosions, but static noises are listed too. I don't think it's related to gluten. You should have a colonoscopy and endoscopy both done. The blood could be celiac, but it could also be something like ulcerative colitis...
  14. starrytrekchic
    Yes, some caramel apples use flour in the caramel topping. I ran into this last year when half of the caramel apples in the grocery store had wheat flour in the listing and half didn't (same company, same product.) That's going to be one of those products where you have to read all the ingredients AND contact the company before trying them.
  15. starrytrekchic
    I haven't tried their broth, but they have a lot of gluten free soups which I've tried without problem.
  16. starrytrekchic
    I still get them, though I think they're a bit better. Mine are hormone related (occurring around ovulation) and eating chocolate during that 2-3 day timeframe makes them infinitely worse. Whether she keeps getting them will depend on if gluten helped trigger them & if you've tracked down other causes and eliminated them.
  17. starrytrekchic
    Yes, go back to the doctor. What tests did you have before?
  18. starrytrekchic
    The word "gluten" is used in two different ways. Gluten is a protein found in a lot of plants, including wheat, barley, and rye, but also in corn and rice. Gluten in the celiac world just means the protein found in wheat, barley, and rye, not the type found in any other plants. The difference is what goes into the formation of the gluten--in wheat, barley...
  19. starrytrekchic
    GFMama answered very well. I concur on the gallbladder. Here are a few other things, though. A lot of people feel worse when they start gluten free. The body will go through withdrawal. Also, people start reacting to smaller amounts of gluten, so foods that were fine before might not be after a few weeks. Additionally, your villi are damaged, which limits...
  20. starrytrekchic
    Whoa...whoa, whoa, whoa. You don't need to be losing any weight. 103 at 5'3" isn't healthy--it's underweight. 115 is a very nice, slim number. 120 is normal. 16% body fat is something any athlete would be proud of and it is far below normal numbers. You weren't fit at 103--you were seriously sick (from celiac.) Only 9 months after diagnosis, you need...
  21. starrytrekchic
    He can't rule it out completely until the biopsies are back. At any rate, you should give the gluten free diet a try. You're done with testing, so there's no reason not to. Try it for 6 months or so and see how you feel.
  22. starrytrekchic
    The thing about basing it off the genetic tests without any symptoms is that ~25-30% of the population has the DQ2 genes, while >1% has celiac disease. Different version of DQ2 have stronger relationships with celiac (as do people with double DQ 2 genes), but in and of itself, the gene isn't enough to give you celiac.
  23. starrytrekchic
    What did you come back as? There are a couple of people on the forum who also don't have the classic genes but do have celiac.
  24. starrytrekchic
    You need to get tested for Rheumatoid Arthritis. It often co-occurs with Celiac, and the hands are one of the first places hit.
  25. starrytrekchic
    *hugs* Don't let celiac isolate you! It's not your fault! Have you checked everything to make sure it's not being cross-contaminated in factory? Things like nuts can be particularly problematic--lots of trail mixes and nuts are processed on the same equipment as wheat. Has your doctor checked for other problems that might be causing the gas? Like...
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