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afreeclimber74

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Everything posted by afreeclimber74

  1. afreeclimber74
    I had terrible iliotibial band pain (runner's knee) for years, even after going to physical therapy. It got to the point of hurting even when I walked, and after PT I still couldn't run more than a 1/4 before I was out of commission. After going gluten free for maybe six months, my IT band pain disappeared completely. Now I can run for miles and have no...
  2. afreeclimber74
    Last time I looked, Taco Bell's hot sauce packet had wheat in the ingredients
  3. afreeclimber74
    Me- I'd like to order off the gluten free menu. I'll have the steak. staff-what side do you want: veggies, potato pancakes, side salad... Me- are the potato pancakes gluten free? staff- no Me- I'll have the veggies then staff- do you want bread with your meal? Me- (puzzled) no. I am ordering off the gluten free menu. My meal has to be gluten...
  4. afreeclimber74
    You do have that tiara on your head.
  5. afreeclimber74
    It's good to talk about our embarrassments in life, because it helps us to get over them and stop giving them power over us. So, I figured there must be other celiacs on this forum who have had embarrassing moments like me, and might like to laugh at mine and share their own. A really good one for me was last September, while I was on a multi-day camping...
  6. afreeclimber74
    My doctor swears that the antibodies stay in your system for many years, even after eating gluten free. Same as the immune antibody response to the flu, etc. I took the blood test after being gluten free for about 8 months and the results were over 100 for both.
  7. afreeclimber74
    Not me, but a local girl wrote about her trip to the ER with an entire side of her body paralyzed and it lasted many hours. Turns out is was gluten that caused it. She recovered 100%.
  8. afreeclimber74
    From what you wrote in your post, I could understand how your husband might feel defensive and put up a wall, instead of being the supportive partner you needed.
  9. afreeclimber74
    It sounds like your family wants to spend time with you. Don't bow out because you think you'd be doing them a favor. If hubby is upset about your intended absence, then why would you think you're doing the right thing? Bring some food in your purse and order an empty plate.
  10. afreeclimber74
    I didn't know La Choy was gluten free, so after reading your post I Googled it, hoping to try some. Without looking very much at all, I saw quite a few complaining that they got glutened by the supposedly gluten-free La Choy. Maybe the factory had a cross contamination issue?
  11. afreeclimber74
    I'm pretty sure she burps, farts, and poops too.
  12. afreeclimber74
    I can't imagine anything worse than having to eat natto. That stuff is on my list of foods that I'll never eat again, by choice. I took probiotics here and there at different times before I knew I had celiac. I used to make my own kimchi and kombucha. The only thing I ever took that made a difference was the Digestive Advantage for IBS, which I started...
  13. afreeclimber74
    It came right from the manager of the restaurant, who added that wheat was in all their sauces as thickeners and in all the meat marinades as soy sauce. Personally, I've never seen wheat in shredded cheese at the grocery store.
  14. afreeclimber74
    My favorite chocolate brand is Lindt and almost all their products have barley malt powder. The other shocker was being told that there was wheat as an anti-caking agent in the pre-shredded cheese at a Mexican restaurant.
  15. afreeclimber74
    I know many on this forum have had symptoms all their life , while others started later in life, and I'd like to hear about it. My story is that I was eating anything I wanted with no symptoms at all (that I know of) until age thirty, when I traveled to Peru on a climbing trip. I got just a little sick from the local bacteria and took a single dose of...
  16. afreeclimber74
    At the time of my initial blood test I was concerned that having been gluten-free for 8 months would cause a false negative result, because I had read everywhere that I needed to be eating gluten regularly for the test to work. But, my doctor has insisted all along that once a celiac person's body creates the antibodies they stay around forever "like when...
  17. afreeclimber74
    According to my doctor, my test results only indicate that I have a "bad case" of celiac, meaning that the high level of antibodies shows that my body has had a really strong reaction to gluten, that I am extremely sensitive. He also stated that the level of antibodies in no way indicate whether a person is currently eating gluten or not. Once the body...
  18. afreeclimber74
    The lab results were all emailed to me. There is no footnote or other info beyond what I cut and pasted into my post above. Maybe there's a footnote on the version that my doctor received. Could those high numbers have been from a recent gluten intake, although small? There were times when I messed up, maybe even a time near the test date, but I was well...
  19. afreeclimber74
    Component-------Your Value-------Standard Range GLIADIN IGA----->100-------------seefn- U/mL GLIADIN IGG----->100-------------seefn- U/mL My doctor claimed that it didn't matter that I was off gluten for almost a year before my blood test. The above results are what he used to give me the diagnosis of having celiac disease. Is he right, or could...
  20. afreeclimber74
    I was off gluten for almost a year and my blood test came back positive for celiac. Get another test, another opinion.
  21. afreeclimber74
    I've read that drinking lots of fluids is supposed to help get the gluten out faster. If I knew I ate the wrong thing before too much time had passed, I'd make myself throw up. A product called Digestive Advantage for IBS can be bought over the counter at drugstores and is worked amazingly well at reducing symptoms for me. It was like night and day within...
  22. afreeclimber74
    I was gluten free for almost a year before my blood test and it confirmed my celiac anyway. I asked my doctor about needing to have gluten in my system for the test to work, but he explained that antibodies are formed when the immune system senses a threat and those antibodies will always be there. I had read otherwise and didn't believe him, but my test...
  23. afreeclimber74
    Couples that share diarrhea together stay together.
  24. afreeclimber74
    Celiac makes you cool. Not everyone can be in the club.
  25. afreeclimber74
    +1 on the dehydration. Most people walk around dehydrated and don't realize it. Rachel, I had the same things going on as you: stand up too fast and see lights, dizzy, etc. For me the answer was iron supplements. Blood test showed me to be anemic. If you haven't had a full panel of blood work done, you should.
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