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sb2178

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Everything posted by sb2178

  1. sb2178
    Canned pineapple and pears (in juice, not syrup). Gets me through the first bit of morning. Baked apples, delicious. Kale, well cooked, is both digestible and awesome source of bio-available nutrients. The flat leaf varieties are easier to deal with. In soup, with potatoes, perhaps? Or simmered for 20-30 minutes with a smoked turkey wing and rice...
  2. sb2178
    Low iron levels also delay it. My doc says 6 months w/o is when I should come in, but the general guideline is 3 months. Make sure you are eating some fat-- if you have fat malabsorption, that could also be a contributor. Fertility issues are very common among women w/ undiagnosed celiac disease. And yeah, losing as little as 5 pounds, being stressed...
  3. sb2178
    4-5 days and I've started to considerably less joint and abdominal pain. Fatigue, mildly improved, but still nowhere near normal. GI tract is moving at a normal rate but absorption is not normal-- that'll probably take a while. GERD milder, but that varies normally anyway. I think I was diagnosed pretty early on though. And most of my nutritional deficiencies...
  4. sb2178
    Hey, I'd really make a Dr. appt-- you could be seriously iron deficient, probably with anemia. It's very common in undiagnosed celiac and could give you symptoms like that. But, because iron supplements can be poisonous at high levels when you are not deficient, having baseline blood work is essential to treating it. Just be aware about the whole...
  5. sb2178
    BTW, tuna salad is pretty easy to make in a dorm room. A packet of salad dressing or a couple of mayo/mustard packet or packet a soy sauce plus mustard plus PB, maybe a little chopped onion and celery all stirred into a can of tuna and you're good. Packets of seasonings can be snagged from fast food restaurants etc or you can see if you can get some in...
  6. sb2178
    I'd even suggest a biopsy if the blood work comes back questionable or negative-- false negatives do occur and you have to cross a certain threshold of gluten intake for it to be accurate. I'm in favor of the biopsy because it's very certain, and I at least am not tempted to "cheat" on the diet the way I would be without it. You HAVE to be on gluten for...
  7. sb2178
    I don't have a full-on eating disorder, but have had some bizarre disordered eating habits at various points. And, honestly, I'm pretty sure it's always been when I've been really deficient, particularly in minerals. Just diagnosed, so not sure how new habits will affect eating habits. BUT, historically, when I've been faithfully supplementing and...
  8. sb2178
    I forgot... onigiri! Japanese rice balls-- you make a pot of short grain brown rice, with a little too much liquid and cook it a little too long (I usually do this accidentally) so you get a very sticky result. Add a little salt, pepper and roll into oblongs, triangles, or balls. I like to add a can or two of tuna, or maybe lots of toasted ground sesame...
  9. sb2178
    Late response, but this is a great post. I would welcome updated detailed ideas! Also: - crustless quiche slices - spanish tortilla - beans and rice (I add spices, veg, sometimes cheese-- totally lived off it in college) - white bean and artichoke dip with veg - "nibbly bits" i.e. 4 or 5 little containers with snacks you like (umm, just not straight...
  10. sb2178

    ARCHIVED Boston, Ma Pcp (Not Gi)

    sb2178 posted a topic in Doctors

    Hi all, I'm looking for a new PCP (lost current one due to a move into admin) -- currently use Faulkner Hospital and generally like the set-up. Any suggestions? Would prefer a woman, and one who has already had any children she's going to (lost two to pregnancy/children). Also not someone who's going to retire or move in the next two years ;-) You...
  11. sb2178
    I like risotto-- and have always used that as a night before meal. With winter squash, if it's the fall or winter. With kale, and sometimes some non-fatty fish. Any suggestions for pre-race substitutes for the good ol' PB & honey sandwich?
  12. sb2178
    That's my question! I've been off running for almost 3 months now-- joint pain, digestive issues/uncertainty-- and am really hoping to be able to get back into it. Vaguely want to do a fall half or full marathon, but unless I can get the energy and feel confident that I won't be banging on someone's door to borrow a stranger's bathroom, it's not going to...
  13. sb2178
    Join pain, definitely a problem. Hands and feet are the worst (sometimes I even avoid walking), then hips and occasionally a shoulder. No popping and only very mild swelling, though.
  14. sb2178
    I think you can get the rash biopsied too, not just your intestines during the endo. Ask about it, maybe easier than anything else. Good luck!
  15. sb2178
    If bloodwork comes back negative, you can also have an endoscopy done anyway. Particularly if you have any sort of nutritional deficiency combined with current problems. There is always lab error, and a subset of people do not test positive on the test due to a genetic quirk (IgA deficiency). Cold turkey. Definitely cold turkey. But not before finishing...
  16. sb2178
    Typically, 50,000 IU/week brings you back into normal range in less than 12 weeks. 4 and 8 weeks is pretty common. If it took you 6 months, I would bet that your absorption is less than ideal. Depending on how badly your intestines are damaged, you could still be absorbing a lot. Like poster above said... long, long intestines. Given that your bloodwork...
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