Jump to content

sb2178

Advanced Members
 View Profile  See their activity

  • Posts

    744

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by sb2178

  1. sb2178
    I did choose to have a biopsy, which came back negative, but also had another round of blood work which came back as positive/equivocal. So the biopsy may or may not be helpful. Based on a dietary response alone, I was choosing to go gluten free, but it was nice to have the blood work results in my record and for discussing with family. At this point...
  2. sb2178
    Oh bah. (I'm whining, because I can.) I just instigated a fight w/ my gluten-free not because i was irritated at her, but because I'm hot, really really tired, my stomach hurts, and CRANKY. and she happened to be present and sort of screwed up dinner when i said "here, i forgot to call my parents, can you finish cooking?" i mean, she used my good olive...
  3. sb2178
    Definitely do all of the above! Anemia (get ferritin checked as well as hemoglobin) especially might be an issue, along with other nutrient deficiencies. And be prepared for just plain being hungry all the time for the first few weeks-- you've done this, and you will get through it. Chocolate is yummy and gluten-free. Fruit is sweet... and there are options...
  4. sb2178
    Beans/legumes can also be contaminated on the farm or in harvesting. Are you making your own soup? Make sure you look through the lentils for any grains of wheat and wash them well before cooking. If it's canned soup, you should probably try cooking your own. I also second the food diary and rotating in some new foods instead of the CIB, rice, and bread...
  5. sb2178
    A second biopsy after 4 months? that didn't leave you much time to heal. I'd be inclined to just get blood work done at 6 months and then, if there is no change, to consider a second biopsy at one year. (But I tend to wake up during such things and remember them as rather uncomfortable.) Especially since you feel good! If you still felt awful, that would...
  6. sb2178
    So, are you celiac? Gluten intolerant? Have you had any follow-up bloodwork since your diagnosis? If your bloodwork is still abnormal, you probably aren't actually gluten-free and need to eliminate other exposures. You can see a dietician or nutritionist to determine if your diet does lack something (grains have things like B vitamins, fiber, etc) that...
  7. sb2178
    Honestly, for quick meals I go back to elementary school snacks. Like: rice cakes, PB, and fruit. Or carrots, cheese, and trail mix. Sort of assembling a couple of different food groups-- like I had leftover steamed veg mixed with cheese and canned white beans for lunch today. No cooking, but healthy and safe. (It was also a step in my exploration of...
  8. sb2178
    Stop n Shops often have a gluten free section which is terribly designed and frequently has organic wheat and spelt pastas in it, or high gluten specialty flours. Stores vary dramatically in what they carry in terms of gluten-free cookies/bread/crackers/mixes. Don't know about a list, but this is just a warning. The Dekalb farmer's market in Atlanta...
  9. sb2178
    Spontaneity. You can't just randomly go out with friends or drop by for lunch unless you carry around back-up food or are willing to be the one to just get tea. You have to plan on being stuck in the airport for an extra 6 hours. I'm finding that I have to limit on how much I can eat at other people's houses/restaurants because I have mild CC problems...
  10. sb2178
    In 1990, that was! The blood tests have improved even since I was first tested about 10 years ago, so the combo can be close to definitive if there are no conflicting results (4/5: genes, diet response, + bloodworks, symptoms, positive biopsy). Still not perfect though... and not enough work looking at the development of the disease. It's sad that your...
  11. sb2178
    I sent a mass e-mail to parents, grandparents, aunts, and uncles. (Figuring cousins would be mostly caught as minors belonging to their parents.) I didn't include a lot of info, just a summary of what I can and cannot eat, a short list of potential symptoms, and the recommendation that due to the genetic links, symptommatic and first degree relatives be...
  12. sb2178
    From what I've seen elsewhere, the "die off" from the bacteria can be an awful process. Don't know much about it, but changing your gut flora can definitely affect your overall well being, not just your digestion. What are the side effects of the medication? Some of the antibiotics can be as rough as the disease. I think the two week diet trial is an...
  13. sb2178
    Nice little parade, lovely swimming with cook-out that I brown bagged it to (pancakes and cheese... way better than hot dogs and packaged cookies), and then, sadly, a trip to the ER w/ grandmother after a child knocked her over pretty badly. But as trips to the ER go, not bad, and no major damage. And I now have a delicious flourless chocolate cake recipe...
  14. sb2178
    white bean, tuna, and roasted red pepper salad. (can use artichokes too, basil delicious if available). throw together a vinaigrette of choice-- i usually like white wine with a touch of balsamic, lots of mustard, garlic, and light on the olive oil. lettuce can be used, or not. chickpeas with fennel and cabbage. (savoy cabbage is better than green....
  15. sb2178
    Not in MS... but, hey, sweet potatoes? My mother and grandmother (from MS) were very happy to hear that I could eat both sweet potatoes and cornbread. And flourless chocolate cake. (woohoo!)
  16. sb2178
    I found licorice, ginger, and lemon teas to be soothing. It sounds complex, but could you also have h pylori or other ulcers too? Starting an elimination diet might be another option. I really needed a couple of weeks of bland and boring food to pull down the pain (bland as in rice, millet, lamb, turkey, carrot, zucchini, cooked fruit, salt, oil, and a...
  17. sb2178
    My dr. said to be free at least 10 days, but preferably two weeks. Basically, you want to give yourself plenty of time to recover significantly to make it easy to tell if there is even a mild reaction. Potentially, you could wait longer, particularly if you are still noticeably improving. And depending on how much you dislike avoiding them...
  18. sb2178
    Autoimmune thyroid disease is pretty common in celiac patients, especially those who weren't diagnosed for years on end. It's also a cheap and easy test that can greatly improve your quality of life IF there is a problem. Some doctors just do TSH, others also do T3 and T4 tests.
  19. sb2178
    I've found that sorghum flour is likely a problem (serious tummy aches). Argh... will have to try it again at some point. This probably explains why commercial AND homemade gluten-free cookies have not gone over well so far. Don't know if that is sorghum itself or contamination. Thoughts? But I do just fine with veg-based carbs, beans, and small amounts...
  20. sb2178
    1. You're not IGA deficient, so the values of the tests are reasonably accurate. 2. Your antigliadin (anti-gluten) antibodies are somewhat elevated but not enough to definitely diagnose you as positively celiac. 3. Your anti-tissue (TTG) antibodies are still normal, which means that your intestines aren't destroyed. See normal biospy. (This is...
  21. sb2178
    But for a diet trial, I would just live without toast. A new cutting board is helpful. Otherwise, you can stir with metal cutlery and hopefully you have some stainless steel pans that you can scrub down well to use for the diet. Non-stick pans are a bad idea. Foil can be put over baking pans. Just put what you can't use in one cabinet (or what you...
  22. sb2178
    Sandwich fillings. Lettuce, turkey, cheese, onion, etc. Salad, with dressing. Peanut or sesame dressing over salad fillings. Maybe egg or tofu. Salad that travels well, basically. They fry well (just make sure your oil is hot enough to look wavy). I've done Asian chopped cabbage with pork/shrimp filling. I would think that more European fillings...
  23. sb2178
    I was being facetious/silly. But, figuring out the exception to the "rule" is always an interesting way to continue to learn about anything and could contribute to better understanding what the rule is neglecting to cover. So, yes, if anyone were to get the money and volunteers to do some genomics/bloodwork, it could reveal some info. Maybe. Well, the...
  24. sb2178
    I find that when it's hot I have to make sure that I get some salt as well as water. Since going gluten-free, I went from low prepared food intake (already salted) to basically none (larabars & canned tuna). Otherwise I'm constantly lightheaded/dizzy. I've passed out doing low key gardening because I can't keep my BP up. Today, for example, it been...
  25. sb2178
    Exactly. Almost all of celiacs have certain genes. Note, that's ALMOST. There are between 1-5% depending on which study you look at that do not have the genes. So the genes make it more likely that someone does have it or will develop it but there are also unknown pathways. You're a lucky exception. Someone should study you ;-).
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.