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sb2178

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Everything posted by sb2178

  1. sb2178
    Kinnikinnick has some good pseudo oreos as well. If you can still do dairy, you can eat something like cannoli cream (ricotta and whipped cream) with fruit. Puddings (rice, chocolate, tapioca, etc) are also an option. Squares of dark chocolate or toffee may also be an option, or hard candies. Dried fruit could do it too. Mini-Larabars are available but...
  2. sb2178
    two months gluten-free-- i go down for 4-5 days, but might be more on the 3-4 day level these days. cumulative exposure to my reaction level leads to diarrhea for 1-2 days with joint pain for 2-3 days and fatigue/sleepiness (suddenly sleeping 12-14 hours a day? well, I ate something I shouldn't have) over days 3-5 or so.
  3. sb2178
    You can definitely spin it towards the "i was getting us settled into a new place" and now towards the "i'm looking into returning to my interrupted graduate studies, but haven't determined the best way to do so" route that can then be followed up by the discussion of how challenging it can be to move somewhere new OR what you were /are going to study. if...
  4. sb2178
    If the ice cream place tells you they don't have the ingredient list, make them pull the canister out and look at it. Hershey's definitely has it printed right there. Sorbets are also an option if dairy is an issue. And, can you get hubby to cook? or at least clean up? Sounds like you usually do the cooking at home too, so maybe YOU need the vacation...
  5. sb2178
    I think you generally need to wait at least 10 days to be sure that there is still a reaction even without gluten. Also, he may be having issues with dairy as well, so you could eliminate that as well. Two days is definitely very very early to see any significant improvement.
  6. sb2178
    If you've been diagnosed with DH, you have Celiac. Can you get a letter from the immunologist or a copy of your record? Or the next time you get the rash, get a skin biopsy done correctly?
  7. sb2178
    There is a hispanic cheese that you can grill too-- queso something (surprise!). My mom used to always make rice burgers with cooked brown rice, egg, PB, sunflower seeds, chili garlic sauce, tamari, and maybe some mustard/ketchup and/or flour (gluten-free) to make it stick together. Bake, freeze, and then you can reheat on foil on the grill. If you're...
  8. sb2178
    Yeah, I was famished for about 3 weeks. At that point, my weight was pretty close to normal again and it started to back off. After over two months I can finally delay meals or eat a light meal and not be hungry to the point of crankiness. You'll also want to make sure that you are eating from various food groups-- try to get three food groups per meal...
  9. sb2178
    mashed potatoes! I also ate babyfood for about a week when I had my wisdom teeth out.
  10. sb2178
    I think this was posted up a while ago, but I have been wondering if my problems with sorghum flour are not the sorghum but rather contamination. Hard to know, and frustrating as I bought rather a lot of it. It also explains why some people react to processed gluten-free foods... I have started washing whole grains a lot more carefully (millet, quinoa...
  11. sb2178
    I think the general suggestion on the board is a solid 2-3 months (very carefully done) when your symptoms include non-GI problems. I felt much better after 10 days, but again, was not GI symptomatic for very long. My fatigue and joint pain really has taken 4-8 weeks to resolve. I've only been able to run again in the past month, and only short distances...
  12. sb2178
    Well, elimination diets vary, based on what your suspected issue is. So, you can be eliminating a few major suspects (soy, dairy, egg, nuts, fish, corn) or you can do a more comprehensive strict diet looking at food groups, classes of chemicals (fructose, fructans, lecitin, etc.), and so on. If you have a hint of what your problem might be, that helps in...
  13. sb2178
    You can still do the burger! Just have to make it yourself. Go to Trader Joe's-- they even have them shaped and all you have to do is throw it in a pan. Keep some frozen french fries (Ore Ida seems to be pretty safe) in your freezer. Or get brown rice or a sweet potato that you just have to microwave. Switch to bean salads instead of pasta salad. ...
  14. sb2178
    I have one cup of black tea, on Sundays. It's delicious. Also, when you're designing your diet, it very helpful to make sure you can make something portable that will do for snacks. An RD can also help with designing a good elimination diet, and, depending on your insurance situation, could be cheaper and more helpful with the psych issues. Investigate...
  15. sb2178
    I would call to see if the blood work is back and find out precisely which tests were ordered. If it is, communicate your misery and say you want to be put on their cancellation list or squeezed in earlier. (Got any lightheadedness? Dizziness? Additional weight loss?) After your follow-up, you can go gluten-free if there is no biopsy, but if there is...
  16. sb2178
    Hard boiled eggs, but you should keep them cold. A jar of peanut butter/sunflower seed butter and a spoon. The tiny cans/packets of tuna? All of the powdered things I've tried have been awful beyond belief, and I don't even know which are gluten-free.
  17. sb2178
    Yeah, I'd think that he's slowly coming around in a weird non-linear path to trying to support you. But, definitely have a discussion that you need to shift your diets more to the beans, sweet potato and rice path instead of the pricey replacements if you're both going to eat that way. Or, the grocery budget has to be higher. That matters, and is easily...
  18. sb2178
    I kept really wanting to eat cereal or something with wheat in it and was also irritable beyond belief. If you can, be sure that you truly eliminate gluten products from your kitchen to make slipping up harder. A lot of people are very hungry-- part of it will probably be the ability to absorb nutrients again-- so just go with healthy foods.
  19. sb2178
    Well, the major reasons for the formal diagnosis: - medical letter stating diet required - repeat testing to confirm the diet is working - follow up on other risk factors (nutritional deficiencies, early osteoporosis, thyroid, etc) - ensuring you don't have any other digestive issues that need txt (Crohn's, fructose malabsorption, etc) - making YOU...
  20. sb2178
    I would not assume that getting into upper class dorms with a shared kitchen would be safer than being on the meal plan. I was in one dorm where the shared kitchen was AWFUL and another with friends where it would be have been a problem had I been symptomatic at the time. For a truly safe environment, a studio apartment would be your best bet. Especially...
  21. sb2178
    Gluten free only-- no other problem so far (crossing fingers). But I mostly do my own cooking and am going easy on the corn and soy. B'fast: pancakes with apple and flaxseeds (123 Gluten Free's Allie's Awesome Buckwheat) with maybe PB/cheese/nuts OR eggs with veg/potatoes. Breakfast foods find themselves made into lunch and dinner kinda often. Lunch...
  22. sb2178
    If you're going to be somewhere hot without air conditioning, I'd plan on a cold meal for either lunch or dinner each day. So, something like substantial salads with meats/beans/cheese/nuts as well as vegetables or sandwiches and light salads or fruit. There was a thread recently on cold meals for hot weather... check it out.
  23. sb2178
    Yes, definitely get official testing. Blood work and/or biopsy. BUT, be aware that false negatives are pretty common, particularly if you eat a "gluten light" diet. After your testing, try eliminating gluten and dairy to see if that helps with your symptoms. Official testing is helpful in knowing how to direct your care in the future and to be sure that...
  24. sb2178
    I had a normal biopsy, but I had still lost almost 6% of my bone density in about 14 months. That's an enormous loss considering that I should be gaining or at least losing none. High rates of bone density loss are 2% per year, and those are typically found in eating doisorders, perimenopausal women who don't get enough calcium or have steroid exposure...
  25. sb2178
    1. Definitely get the thyroid under control. Can you make an endo appointment sooner OR just call? You are clearly symptomatic and should be treated. 2. Eat a lot of gluten for a few weeks (~ 4 slices of bread/day) and then get your blood drawn. Even if you have to talk a doctor into ordering the blood work before an appointment! To get a semi-accurate...
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