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sb2178

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Everything posted by sb2178

  1. sb2178
    Yes, adapt and deal with less than ideal when necessary. But, look for the difference between no motivation and sick. Not feeling like it because you haven't been absorbing calories is different from just feeling..."eh..." Biking is nice because it is lower impact and easier on the digestive system. Weight training, as much as I dislike it, allows you...
  2. sb2178
    If you haven't been eating totally gluten free for very long (two weeks? hard to tell from your post but this sounds like the diet shift was very recent), I'd add it back in full force and just accept that you will likely need to use sick time. Hopefully you have that to fall back on. If it's been much longer than two weeks, there probably isn't much...
  3. sb2178
    And, before you get cancer, you'll be really anemic and lose most of your hair. You'll also probably develop weird looking fingernails. Then you'll have not much hair, funny fingernails, and you'll have to take iron supplements (which, quite honestly, SUCK). REALLY. You can get a baked potato and chili at Wendy's. Take your lunch or get your parents...
  4. sb2178
    Yes, the cancer is really unlikely. more likely, you'll go on vacation, eat something that wasn't quite what you were told it was, and be sick for half your vacation. But with care, you'll figure out who will actually be careful enough for you. And, if you are lucky, you'll be less sensitive and just get a slightly knarly tummy if someone screws up in...
  5. sb2178
    I use homemade soap, courtesy of my mama. Face wash, i've also used neutrogena.
  6. sb2178
    Ditto the not particularly accurate. They are useful for a starting point. Eliminate and add back to see what is actually associated with symptoms. My doc said two+ weeks without before adding. I've found that my "1" reactions cause no clear symptoms that I can find. I haven't tried all my "3" reactions yet, but dairy really doesn't seem to do much...
  7. sb2178
    There are also ways to manage prices so you aren't paying $7.00/lb for pasta (on sale!). Mail order bulk, use alternate foods (boy do I eat rice), make your own mixes/foods, or sub in different foods. Want a cookie? Eat an apple. Or some dried fruit. Or flan. REALLY want a cookie? Time to bake. In some ways, pushing down on your grocery bill also...
  8. sb2178
    Make sure you are examined for Crohn's and colitis as well. Which is not to say that your symptoms aren't celiac, just that the nighttime issues are pretty common in those diseases. The whole process of elimination... Some people have found that gluten-free helps with those as well.
  9. sb2178

    ARCHIVED Flour

    sb2178 replied to Rowena's topic in Gluten-Free Recipes & Cooking Tips

    I like corn and buckwheat flours for flavor. For something more innocuous, I use a little corn with white rice and sorghum flour. And, add couple of tablespoons of starch to any flour blend (excpet for cornbread). Too much sorghum gives me a stomach ache though. Then there is the whole gum thing... I've mostly been generous with the eggs and ground...
  10. sb2178
    Oh, and sometimes the neuro folk (see "brain fog") only carry the antigliadin antibodies in their blood. DGP is a newer "version" of that test, but I haven't read anything about neuro celiac and the use of DGP.
  11. sb2178
    Ditto that, but double the cocoa powder and decrease the agave. I've used soy, coconut, and hazelnut faux milks. Alkalized (dutch cocoa) is a but smoother.
  12. sb2178
    It depends on whether you want to cook to impress or just go with basic sustenance. Risotto is pretty dressy and reheats well with a bit more broth if you don't add anything green or cheese until you are about to serve it. That plus the salad bar deal... and a fruit salad or good chocolate covered strawberries or something and you've a feast. BBQ with...
  13. sb2178
    I reacted more on the IGG testing to some things (+2 and +3s on a 0-3 scale). Eliminating yeast, peanuts and dairy recently did help cut down lingering pain. I did eliminate dairy at the same time as gluten and then reintroduced with negligible differences in symptoms about 6 months ago. I've sort of accidentally reintroduced dairy (eating elsewhere and...
  14. sb2178
    I actually think that mesa sunrise made me sick, FYI. I also switched to soy milk that week, but the soymilk lasted longer than the cereal and I was better once off the cereal. Cooked mixed grains like rice/millet/quinoa with something milk-like, dried fruit, spices, and nuts/seeds does quite nicely for a cereal substitute. Also, can cook ahead and freeze...
  15. sb2178
    diarrhea, acid reflux, anemia/iron deficiency, low D and B-12, low magnesium (sleep issues, muscle pain/twitches), abdominal pain, joint pain, barely noticeable bloating and gas (noticed once it was gone)... at its worst: dizziness/fainting, weight loss, bruising, bloody noses, major fatigue (not leaving the apartment sort of fatigue)
  16. sb2178
    You could also talk to the doc to see if you can get a diagnosis based on dietary response + genetics. Or, at least a medical note stating that he must eat a completely gluten-free diet for life. A diagnosis/note would probably be helpful when it comes to dealing with schools and colleges and such. A biopsy or more blood tests are a hassle, but it does...
  17. sb2178
    yeah, i meant the food pyramid "whole grain" category, not botanical designation. Sort of like tomatoes as a vegetable... There are definitely people on here who make replacement products a regular part of their diet, especially for lunch. Especially when first diagnosed, I think people tend toward replacements. And change is hard. Replacements are...
  18. sb2178
    Wellness dry cat food (at least the yellow bag) contains barley! The wet Wellness cat foods that I've bought have no obvious gluten ingredients. i've never called to confirm the source of their vitamin E.
  19. sb2178
    Well, honestly, the list of ingredients on many of the "replacement" foods is depressing. Lots of the ingredients have a low nutrient density. Nutritionally, a lot of them are more along the lines of non-fortified/enriched wonderbread than steel cut oats or sweet potatoes. One serving a week wouldn't do any damage. But, if you're eating replacement...
  20. sb2178
    i've finally given up dairy and PB (sigh). and, unfortunately, i am feeling better. The random occasional pain is pretty much gone. I have been eating some goat cheese, not a whole lot, but will probably stop that too.
  21. sb2178
    Snacks: flan, larabars, fruit, PB, cheese, trail mix, chocolate, rice crackers, crudites, hummus breakfast: rice cakes, pancakes (homemade), frozen waffles (Van's better, Trader Joe's okay), scrambled eggs, homemade muffins, leftovers (generally with fruit, sunflower seed butter, and/or fake milk) lunch: homemade soup (leftover, usually) or stew with...
  22. sb2178

    ARCHIVED Poll Time:

    sb2178 replied to Aphreal's topic in Coping with Celiac Disease

    Thin crust crispy-chewy NY-style pizza. or seriously good german rye bread.
  23. sb2178
    You should be able to get a "medical" IEP, which it sounds like you probably already have something along those lines with the asthma, too. Spring roll wrappers are another fun lunch option, but rice in bulk along with beans and corn is cheaper than just about anything processed. Sweet potatoes are better than white rice if your kids aren't really into...
  24. sb2178
    i'm impressed with you as a patient. most people wouldn't be all that interested or willing to follow it, and I don't know that it would be typical to lay out a spreadsheet of numbers for a first celiac consult. Basic information is available at blood tests are useful baseline evaluations, but to generalize from what I've read, celiac patients need additional...
  25. sb2178
    rash... lupus? sorry to suggest it, but autoimmune diseases can cluster.
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