Jump to content

sb2178

Advanced Members
 View Profile  See their activity

  • Posts

    744

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by sb2178

  1. sb2178
    Oh yes, eliminate gluten. Why develop severely damaged cells if you can prevent it? She also runs of risk of nutritional deficiencies and developing lactose intolerance. Increased infections are not uncommon in celiacs, as are other allergies/intolerances. And, you don't want to slow her growth from lack of nutrients. Positive EMAs really are pretty...
  2. sb2178
    I would also say no. It should take about the same amount of research unless you're looking at organic gluten free foods by reliable companies. Which is not to say that there aren't very good other reasons for buying/growing organic. Environment, worker/environmental health in rural areas...
  3. sb2178
    Yeah, I'd work on pushing for testing. I'm working on my Dad now-- mom's feeding him gluten-free food when she's home but then he goes and has a beer with dinner. *sigh* So neither potential bloodwork nor a diet trial would work now! I think I may give him the genetic test for Christmas, and then he can decide what to do from there. (No health insurance...
  4. sb2178
    I was reading an older cookbook not very long ago and remember her description of a successful casserole as: 1) starch (rice, potatoes, millet, quinoa, etc) 2) protein (chicken, pork, beef, lamb, beans) 3) juicy vegetable OR vegetables plus sauce (repeat 1-3 until full) 4) topping of bread crumbs with butter or cheese As to more helpful ideas,...
  5. sb2178
    Don't be. I had two docs convinced that celiac was the issue despite negative tests. And then a sensible one who did more comprehensive testing and found more nutrient deficiencies that were also issues, as well as pushing me to do an elimination diet. I also had an incompetent GI years ago who lost blood and never sent me any test results. But hey...
  6. sb2178
    If you eliminate gluten and feel better, yes. If you eliminate gluten and do not feel better, no. This assumes that you have received other celiac tests that are negative. If they were positive, then that's a whole different study. Lots of people have slightly positive IgG reactions to gluten. Other GI diseases like Crohn's can also lead to elevated...
  7. sb2178
    Some, but I'm actually a spinner. So I make the pretty yarn...
  8. sb2178
    He's probably low in fiber and magnesium. Maybe a little low on potassium, protein and calcium, depending on how much dairy he eats. A multivite would take care of vitamin concerns. Some ideas: beans chili tofu edamame eggs? other grains (teff, quinoa, millet is high in nutrients) in pilafs or porridges dried milk in pancakes, muffins homemade...
  9. sb2178

    ARCHIVED Protein Ideas

    sb2178 replied to Gluten-Is-Icky's topic in Sports and Fitness

    I'd just go out and buy 5 or 6 different kinds to see what you like best. Taste very so much, it's hard to predict what you'll prefer. I usually have black beans, navy beans, and chickpeas on hand. Elephant beans, pinto beans and kidney beans I buy as needed. Dried lentils and split peas, almost always. Black eyed peas, New Year's Day only. Really...
  10. sb2178
    Yes. I tested negative in 2004 and then again this spring, only to have a very weak positive in May. Diet is working wonders. Give it a good strict try if you have negative tests to see if it makes a difference. I even tried re-introducing wheat, and was miserable afterwards, so it's pretty clear that gluten is the issue whether or not I have full blown...
  11. sb2178
    I am delighted that I know what my health problems were caused by and that I can avoid it without too much effort. And yes, I was someone who had significant pain as well as a constellation of additional issues. So, am I proud that I avoid pain? Not particularly. But it's something I have to do, so I do it faithfully. I think it view it sort of like...
  12. sb2178
    Are you getting enough total calories and fat? I found that to be more challenging on the elimination diet that might be expected. I really need 25-30% fat (think 500-750 cal/day or 5-7 T fat from foods that contain fat with fat sources) to function well, even when I'm less active. Can you try adding in sunflower seeds or something, or watch your oil intake...
  13. sb2178
    I'll soak cornmeal for a bit before using it to make sure if softens up for muffins, pancakes, cornbread, etc. Helps keep it moist (the cornmeal doesn't absorb extra moisture from the corn flour part). But, they all have eggs, so I doubt it helps in terms of keeping it together, just in moisture balance.
  14. sb2178

    ARCHIVED Protein Ideas

    sb2178 replied to Gluten-Is-Icky's topic in Sports and Fitness

    Take a basic vinaigrette and toss it with two-three types of beans and diced onion if you like it. Maybe add some lemon juice or fresh chopped herbs. Chopped veg like cucumbers optional. Generic Vinaigrette: 2 T olive oil 1 T white wine vinegar (balsamic, red wine, cider, etc) 1/4 t salt black pepper to taste 1 t dried herbs (thyme, oregano, etc...
  15. sb2178
    If you want to get family member tested, or on the diet to see if their health improves, a diagnosis can be persuasive. The blood work may be worth the effort if you haven't been off gluten foods very long; whether you want a biopsy is up to you. The major benefit for me is that I KNOW that I cannot eat gluten, as I will develop some malabsorption complications...
  16. sb2178
    I've been on two dates in the last week and neither person freaked out about gluten nonsense. If you're calm about it, she probably will be too. Definitely offer to go lipstick shopping with her. Buy a travel size mouthwash for her purse. If she likes you, mouthwash/new lipstick aren't going to be a big deal. Especially if you explain that you *really...
  17. sb2178
    You could also try to get put on a cancelation list for a biopsy sooner. If you've only been gluten free for a couple of weeks, or a month, you could possibly still have visible damage. The danger with that is that you end up with a negative biopsy and then possibly have a harder time taking the diagnosis seriously. Yes, it's miserable at first. I was...
  18. sb2178
    The blood is worth repeating. The tests have changed in the last 15 years, and there are false negatives. Pursue the biopsy if you need the piece of paper to stick to the diet. You should also have nutrient levels checked-- especially B12 with your neuro symptoms! (One of the things that made me nudge until I got answers was a weirdly high loss of bone...
  19. sb2178
    well, slightly off-topic, but here's rant about stores that separate their wheat bread from the gluten free bread, but then add a row of organic WHEAT bread over the separate gluten free section. Bah. Humbug. Went and accidentally bought wheat rolls. Because I was tired and not reading labels. Brought it home, and THEN read the label. Whoops. On...
  20. sb2178
    I like Larabars, but they are made primarily from date paste, so it's not wonderfully low on the GI scale. Kind bars and Soyjoy are also options, but double check the soy joy before you eat them. Most of the "straight out of container" foods I can think of are pretty processed, so you're not going to get low GI options. Or, they are technically fine but...
  21. sb2178
    Vegetables! There are lots out there to choose from, so hopefully you can tolerate some. Cooking and tossing with a vinaigrette has been my new thing of the summer. If you haven't tested things on a second rounds, maybe it's worth the effort and potential misery to try some easy to digest options again? Beans? Don't know if there is a tolerance issue...
  22. sb2178
    So, it's generally helpful to talk to your doctor about your specific blood levels. But, celiac patients often need: calcium vitamin D vitamin B12 magnesium essential fatty acids (fish oil, flaxseeds, borage oil) iron (but don't take this without bloodwork!) probiotics A good multivitamin is one option. In terms of food, go with whole simple...
  23. sb2178
    I don't think I'm hypersensitive-- basically, eating out is fine once a week at a couple of aware places but if i go visit someone who bakes/eats toast/cereal etc and doesn't have an obsessively clean kitchen, I'll be sick after a couple of days. I have not had any problems in my own kitchen (no sharing) and I haven't gotten around to replacing cutting...
  24. sb2178
    Do you have your own toaster, keep bakery/flours in a separate area of the kitchen? That can help too. Kitchen equipment that has lots of texture (like colanders/holey items, wood, scratched plastic or nonstick) should not be shared because they are very difficult to clean. If you are having problems, look at things like shampoo, make-up (you or a...
  25. sb2178
    Definitely stick with it, and keep a detailed record of your progress for your next dr's appointment. Write down what you eat, how you feel, etc. A diet trial really takes a couple weeks before you can be remotely sure that it's the right thing. Only your body will have the answer. If you still aren't sure after about 4 weeks, you could try to reintroduce...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.