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quincy

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Everything posted by quincy

  1. quincy
    My numbers have steadily gone down since going gluten-free. Here are my blood results: Deamidated Gliadin Abs, IgA: 15 Negative range Deamidated Gliadin Abs, IgG: 33 High (moderate to strong positive) t-Transglutaminase (tTG) IgA: <2 so my question is: Am I still getting hidden gluten somewhere because the IgG reading is still...
  2. quincy
    so you have been through alot of tests. so they are suggesting that you are getting referred pain from the spine? but no back pain? I have been pain free for the past week now, thank God. Have you had stool analysis to make sure your digestive and pancreatic enzymes are properly breaking down the fats and carbs etc?
  3. quincy
    hey RJ. is the pain in LLQ (lower left quadrant) how you initially presented with symptoms for celiac? I was hoping Dennis would add to my question about what he makes of this issue. My celiac pain was more like classic gallbladder pain up near my right rib. so this llq pain really came out of nowhere. I tested negative for h pylori, giarda, but only a...
  4. quincy
    its great to hear of your decision and that you are able to swing the short term disability. Looking back I wish I had done the same because I was barely hanging on getting up at 6 am every day when my body was aching constantly. Good for you !!
  5. quincy
    Definitely, I just started to take enzymes again after a relapse and I had mad heartburn last night. It's best to take it after you have a few bites to eat first. last night it was so bad I took two zantac 75's and then chewed on some tums and it finally subsided. It takes some getting used to at first...
  6. quincy
    thanks for the info. I also can tell when I got gluten or colitis cause the pain is higher up in abdomen with celiac. I just joined the MC forum and they have been great over there. I have never had a problem with severe weight loss and D or bloody D. so not sure if this would be CC or LC at all.
  7. quincy
    Great post/question Sunnydayz, I was diagnosed last year at age 48 and I only took off about a week after I found out. But I wound up taking more sick days and barely, I mean barely, got through till June when school let out. Luckily I work for school district and I had alot of sick days built up over the years that I never used. Looking back, I was...
  8. quincy
    Yes Deezer, I thought I was getting gluten from a new source. I was convinced my recent ttg reading would have crept up but it came back negative again. I have been gluten-free since dx last year april 21st. my functional medicine internist thinks my gallbladder is not working which would add to my fat intolerance/malabsorption. I was taking DigestZymeV...
  9. quincy
    ever since I stopped taking the digestive enzymes my situation has deteriorated again. back to loose bowels again after months of bathroom bliss. going to restart enzymes once the stool specimen goes off for testing again...
  10. quincy
    Hi Debbie B, the location of your pain is exactly where my pain was that led me to the endoscopy which led to my diagnosis. The biopsies showed no barretts or h pylori but alot of inflammation of the lower esophagus where it meets the stomach. I could press in the spot and feel pain. I also had a slight hiatal hernia. All this inflammation extended to...
  11. quincy
    isnt' Rosacea a red blotchy skin condition? I don't know much about it but another poster said she had it from bacterial overgrowth... maybe check out that lead to see? just guessing here based on your recent diagnosis....
  12. quincy
    L-Glutamin is an amino acid yes. Do some inquiry first before just taking it, maybe ask Dr. Lewis. I go to Dr. Tennyson at Columbia, but I did not have the hydrogen breath test. What did you do for the bacterial overgrowth? I was given the bone density test last June and it came back with osteopenia on a 48 yo male...! I also had severe Vitamin D deficiency...
  13. quincy
    My understanding is that the older we are the longer it takes to heal,especially if you had significant damage. I was diagnosed last year and I am still lactose intolerant. Have you had any other tests besides a scope? My concerns are that I have other intolerances that no seems too eager to investigate. I go to celiac doctor in NYC,do you mind me asking...
  14. quincy
    the only cheese I was advised to try was Cabot's 75% fat free yellow cheddar. Even that made me sick. I can eat corn chips now w no problem but anything too oily or fatty my system just could not handle at first. I would eliminate ALL dairy and chips right now, no processed snacks, just basic lean protein and soft veggies like cooked carrots. if you have...
  15. quincy
    your profile says you have severe damage so I hope that you are off ALL dairy. make sure all of your products are dairy free. I was worse after going gluten free and my pain was on my right side and my rib cage in the back. You must also have your bone density checked to make sure you do not have osteopenia or osteoperosis. your vitamin D levels must be...
  16. quincy
    That is where my pain first began last year before my scope. I thought it was my GB and want on a bread and pasta diet to quiet my GB down! little did I realize I went on an unintended gluten challenge! have you had a recent scope? Mine showed significant irritation at the base of esophagus where meets stomach, hiatal hernia causes the acids to come up into...
  17. quincy
    gosh I am so sorry to hear how bad you are feeling. I have been there too, the part about just passing in my sleep or at least staying asleep to not have to deal with the array of symptoms. I think that is what is so bothersome is that it's not just a stomach ache or D, its the dizziness, anxiety, depression etc. many others on this forum have been to...
  18. quincy
    Hi GFM. I didn't know that all BRM flours are processed where the oats are processed. Good to know; I thought for some reason their oat processing was completely separate. I will have to remember that. I used BRM corn meal to make muffins and YUCK, what a bad response I had. I also remember that right after going gluten-free I reacted to ALL processed...
  19. quincy

    Tested positive for celiac through biopsy and blood April 2010.

    Vit D deficiency and Osteopenia in June 2010

  20. quincy
    I am going to try some of your recommendations. thank you. I like the idea of the cold burgers with salt. I would imagine you use at least 85% or better for the ground beef. I really empathize with you about the cheese and watching friends eat pizza. I live vicariously alot when I watch people eat chocolate layer cake and pizza etc. let us know how the...
  21. quincy
    Despite the gluten free nature of flours you can still react to them. are you using oats as well? some celiacs/gluten sensitive people cannot tolerate gluten-free oats or gluten-free oat flour.
  22. quincy
    I am sure the endoscopy showed whether you had a hiatal hernia. if your hernia has gotten worse they might have to tighten it up ? I know that abdominal exercises really bother me both upper and lower gi
  23. quincy

    ARCHIVED Dairy

    quincy replied to Chad Sines's topic in Coping with Celiac Disease

    I was letting a little lactaid milk creep into my diet again for my tea. I also had some cheese and yogurt and within a few weeks I had a bad bout of colitis. I just cant take dairy after years of being a milk drinker.... ringing in ears, sinus and lung congestion and worst of all the colitis problems....
  24. quincy
    My pharmacy is clueless about gluten free ingredients of drugs so you will need to call the manufacturer. sometimes they will even ask you for the batch number on the bottle so have that handy. again, the problem with generics is that most pharmacies change generic suppliers from time to time so you always have to check on the bottle who the manufacturer...
  25. quincy
    yes I have a canker sore now but its not too bad. I was drinking red wine and eating cheese lately, I don't know what I was thinking!! I just wanted to feel "normal" for awhile and hang out with my gluten-eating friends I guess. I also went back to caffein and was using lactaid milk. had some yogurt to see if I would get sick... all of the above have...
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