Jump to content

quincy

Advanced Members
 View Profile  See their activity

  • Posts

    227

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by quincy

  1. quincy
    This is odd to read this post because I have had rib cage soreness leading up to and after my dx in April. It turns out that I have osteopenia and I kept wondering why the tips of my ribs (lower right side in the back) were tender and sore. Then I find out I had osteopenia. All of my lumbar area was out of whack and sore probably due to the weakness that...
  2. quincy
    wow, this sounds exactly like me a few months ago when I first found out. if you search my posts going back to late april early may you will see. pounding heart, dizziness all the time, bumping into walls, weight loss, extreme anxiety...... all I can say is it gets better, but I needed an antidepressant and small dose of klonapin for the first few months...
  3. quincy
    I found that my fat digestion was almost non existent at first. A good digestive enzyme really helps break down the fats, especially since you are using olive oil and avocado. that would have made me sick as a dog. i started off slowly just with the fat from lean meats such as chicken and filet mignon. small amounts with a veggie and a potato. i would...
  4. quincy
    I had the same problem Discodiver, you sound like me a few months ago. I thought if its gluten-free it wont make me sick. but would eat the pancakes and still be wracked with pain. it took awhile for me to tolerate the tapioca and the xanthan gum, which if you do any research on, is a laxative.... I have heard that products that use guar gum are...
  5. quincy
    I am staying in Wilmington visiting my sister for a few weeks and returning home soon.I found several places that catered to Celiacs. One was a food co op called Tidal Creek. They are located on Oleander. They label all their shelves to indicate the item is gluten-free. Their salad bar dishes are all indicated if gluten-free and warnings not to mix utensils...
  6. quincy
    this is amazing. when I first was diagnosed and my anxiety was sky high, I just came up with the idea that I should learn to knit to keep my mind in a certain state. someone at my work says she will teach me. I have the needles and yarn sittin in my car for several months now.... haha. maybe its time to put them to use... Thanks!!
  7. quincy
  8. quincy

    ARCHIVED Anxiety

    quincy replied to AliSha097's topic in Coping with Celiac Disease

    my anxiety peaked just at the time of dx and lasted for several months. I mean, the worst anxiety you can imagine. I am on prozac and finally do not need to take klonapin as much anymore. Several things are related to the anxiety: first, the low vitamin D levels and also the poor absorption of Omega 3 fatty acids that you get from fish oil and other essential...
  9. quincy
    I was 48 when I found out. that was 4 mos ago. Symptoms of cramping and pain when younger but nothing major. some alopecia that went away and always had canker sores from childhood. last year I decided to get my cholesterol lower so I went on a high fiber diet: oat meal, and high fiber grains. and thats when it all just hit. few years ago started terrible...
  10. quincy
    I am traveling and went to a health food store cafe. they had gluten free wraps and rolls for the veggie burgers and quesadillas. I got home and ate it and began to realize that the tortilla was grilled and decided to call the place. The kid that answered said most likely the tortilla was grilled on same surface as the gluten breads!!! i am so angry...
  11. quincy

    ARCHIVED Vitamin D

    quincy replied to detritus's topic in Coping with Celiac Disease

    my endo doc put me on 50,000 iu's twice a week for 6 weeks, then a re test of my levels. I wanted the D3 but she told me it wasnt available in this dosage. once you get your levels up then you can do maintenance at 2000 or so a day with D3. it is also recommended to get a bone density test and to take calcium plus D twice a day. my bone density test revealed...
  12. quincy
    sorry to hear of your trouble. I know what its like to be doing well for a few days and then get hit by something. my nutritionist recommended a probiotic that only she can order. if you have a nutritionist ask him/her about that. also, I just came from my appt at the celiac disease center at columbia univ. and I was told to order a multivitamin called...
  13. quincy
    for some reason i have been unable to tolerate fish oil, though I used to be able to with no problem. I am hoping that it wont give me D in the future so I can get my HDL's back up again. I will try the b vitamin group which I believe is where inositol comes from ?
  14. quincy
    mine always smelled even though I was dx'd last month. maybe the damage not too bad then? interesting that I have found it to be a veggie I can tolerate unlike brocoli which I love, just is too gassy for my stomach now... maybe soon I can go back to the broccoli...
  15. quincy
    thanks for the feedback. I am still waiting for my lab work to come back for iron, copper, and vitamins. I know for sure that my D is quite low and am taking 50,000 IUs for that. the dizzy feeling has returned after going away for a few weeks. the anxiety is almost unbearable but I refuse to take benzodiazopenes anymore, they have a terrible after effect...
  16. quincy
    I have seen threads on this topic before but thought I would bring it up once more for feedback. Just prior to my dx I was taking the xanax I had sitting in my medicine cabinet more often than I preferred. It was just a small dose but by the time I was told I had Celiac I had to take it every day but found it backfired on me by the next morning...
  17. quincy
    have you tried the coconut oil, cold pressed etc. not sure if the medium chain stuff is good. i have tried it recently and it made me sick, but then everything other than H20 or purple carrot juice makes me ill. soy milk yuk, coconut milk, yuk. i am going to try bobs red mill gluten free oats and see the result. cautious though as contaminated oats and...
  18. quincy
    I am also recently dx'd. too bad I didnt have a good doctor like you did to suspect this immediately. I can tell you that I also thought I had cancer, and that axniety has still not gone. i am taking klonapin in small doses if the anxiety gets really bad. still have symptoms also. they say it takes time.... sounds like you are already doing better...
  19. quincy
    yes, thank you. so true. I am going to the library to check out the mediterranean diet book. I have been thinking that for awhile. I think it will be the best for me. If anyone reading has had success on it please chime in. Thanks!!
  20. quincy
    thanks for the info. to confirm your point WheatChef, I had a lipid profile done before I knew I had celiacs in February. By the time I had my follow up panel done in late April, my numbers came down off their highs so that total cholesterol was below 200 for the first time I can remember. I was on a basic diet of filet mignon, chicken, eggs, potatoes, and...
  21. quincy
    I have been dealing with similar symptoms and have been gluten free for about 6 weeks, but I got cc'd 2 times and both times the depression and anxiety, dizziness, and pain on my right side all added up to just misery. I am going through this now after eating supposedly gluten free pasta at an Italian place. I wonder sometimes if I will ever heal or be over...
  22. quincy
    thanks Wheat Chef, not sure what trac to take as my lipid ratio of HDL to LDL is competely inverted for the worse. My ldl is high and my hdl is very low, so not sure about eating high fats. I understand many are grain free completely. I did a modified atkins diet about 10 years ago (I never ate cheese or bacon/eggs), but lean meats and veggies and oatmeal...
  23. quincy
    this is just depressing. We are fighting something we cannot see and this is frustrating. I feel like I cannot trust anything or anyone but me right now. I miss eating without worrying... I finally found Bob's Red Mill Gluten free oats. If anyone has any objections or advice on this let me know. I am only gluten free for 1 month and I am getting tired...
  24. quincy

    ARCHIVED Gluten Csi

    quincy posted a topic in Coping with Celiac Disease

    ok, I need some feedback on my most recent slip-up. I have been diagnosed about 5 weeks now. When I eat at home and stick with my chicken, potatoes, meat, rice pasta, bananas, peanut butter, and apples, I make progress. went to an Italian place that served gluten free pasta in marinara sauce. They assured me it was safe. I ate it thinking I was taking...
  25. quincy
    I suffered from canker sores all my life. never knew it was from gluten. I started using rembrandt's tooth paste for canker sore sufferers and they completely went away until recently when I was diagnosed. they are not a problem for me now.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.