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quincy

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Everything posted by quincy

  1. quincy
    wow spock thats crazy shi@#t no pun intended. I was the kinda guy that just ate whatever anyone put in front of me, no need to ask any questions. now i speak to the chef or sous chef directly. if they don't understand what I am talking about cc and if they don't get the fact that I need separate everything i just pass on the meal... i have NEVER gone through...
  2. quincy
    Hey Jason, no doubt you will go through a stressful adjustment period. I have been in the same job for 8 years and want to make more money but my current job allows me sick time when I need it and its in one place so I can deal with all of these new food req's. I think you might be surprised by the new people you will meet who will have similar issues as...
  3. quincy
    so your scan, Ravenwood, showed a thickening of the large bowel as well? if you look at a posting by dennis429(??) in the post diagnosis section of the forum he has a topic called 'pain in lower left.' It caught my eye cause I was having same thing and he also was told his ct scan showed thickening but when they did follow up biopsy there was no indication...
  4. quincy
    My CT scan showed "thickening" of the large intestine? this is the first time I have had a ct scan performed since being diagnosed so this might not be something new but was there all along? I have been gluten-free for year w gut pain on and off but lately off until I started adding some new things to my diet and new products. so perhaps I was gluten'ed...
  5. quincy
    well interesting, they told me the same thing. that I had "thickening" of the colon that transverses the abdomen from the liver to the left side with a few small pockets on the left. But my GP couldn't say what was causing it, maybe colitis, crohns or c diff.... anyone else have any thoughts on this or have gone through this? at first when I was told...
  6. quincy
    It can't hurt to get a confirmation by blood test to see where your antibody levels are. all your symptoms sound familiar. I just found out a year ago and learned that I was pre-osteoperosis due to lack of vit d and calcium. having your vitamin levels checkd through blood test is a good idea too. it gives you a baseline of what supplements you should be taking...
  7. quincy
    thanks Paul, I was just eating some of the sweet potato chips last night, despite going through D from hell all day yesterday. by the way, i notice in your profile you mention the garbanzo beans of pain. may I ask why? I was practically living on my homemade hummus recently, but wasn't feeling so great after a while with it. any reasons why?
  8. quincy
    I used this site as my second bible once i found out a year ago yesterday. I also google everything "is 'this product' gluten free" and usually many hits from this site come up and you will get your answer. if you have an iPhone or smart phone there are some apps out there as well. when shopping you can also check for the 'certified gluten free' label...
  9. quincy
    I just went through a ct scan for lower left pain. my gp said it was diverticulitis though I had no fever. my friend has diverticulitis and doesn't get fevers so that could be a possibility?
  10. quincy
    Each person is different. It sounds like your reaction is not good. have you had a blood test to see if you are celiac or gluten sensitive?
  11. quincy
    Hey Nate, I have been there and it has been hell for me this past year. the first 6 months were the worst for me too. I woke up every morning with the worst feeling ever. I had to take .5 mg of klonapin just to get through the nausea and the anxiety so I could go about the day. I felt great in the sixth month. My mother is Italian and she tried to be...
  12. quincy
    I cant stand artificial sweeteners no. and that drink was awful and it came out awful too! TMI sorry. I stopped the silk drink and the toothpaste for now. thanks so much for your feedback.
  13. quincy
    thanks Sylvia, that ct scan drink was rough and I will have to call them back to find out it was gluten free. the woman said it was crystal light mixed with whatever they use.....so not sure. I had to have a c diff test also to rule that out. I think I am being glutened without knowing. I have canker sore in mouth right now. new products using are...
  14. quincy
    OMG the watery D is awful. They gave me the drink and I specified that I had to be gluten free but now I dont know if it was or not! THe watery d started yesterday though, but today its worse. now the doc wants to check for c diff? after all my posts on here I am still a newbie when it comes to all these tests!! I am praying the ct scan doesnt show something...
  15. quincy
    thanks so much for that response. The reason I was alarmed was that the pain was lower left and usually my glutening results in the typical (for me) ache on my right side. But funny the pain on the left is gone and now I have the tell-tale ache on the right. it is amazing that you say the diverticuli went away! I am supposed to go for a ct scan and...
  16. quincy
    This is my one year anniversary since dx in April 2010. Everything has been going well, my antibodies are negative, my bm normal. THen I ate this easter candy I thought was ok but I misread the label and the one I ate was made on equipment with wheat. woke up next morning with "stitches" on my lower left abdomen. something I have never had before. it was...
  17. quincy
    I had chronic rib cage pain which could have been from the swelling in my intestine or from the Osteopenia. I am coming up on my year anniversary next week and I can say I have made progress but I don't know how your doctor could makes such a statement after a month gluten-free and no scope to confirm. If I were to take my slow progress in Vitamin D absorption...
  18. quincy
    I have had those dreams all my life too from early childhood into adulthood. My crazy dreamlife just started up again after dx last april. Now my nightmares are of forgetting I cannot eat gluten and freaking out after eating a bowl of pasta or a slice of pizza and then realizing in horror what I had done. I usually collapse in the dream overwhelmed by fear...
  19. quincy
    RedBridge isn't bad as far as gluten-free beers go. My brother and 2 sisters refuse to get tested even though I was dx'd in April and they all have various symptoms. My older brother passed away from Type 1 Diabetes and I strongly believe now that he was an undiagnosed celiac. My younger brother has had unexplained seizures since a child. The doctors just...
  20. quincy
    Gluten anxiety for me was the worst thing I have ever gone through in my life. I was having panic attacks in my sleep. I called 911 twice thinking it was a heart attack. In addition, after going gluten free the anxiety got worse because I developed ataxia and it gives you the feeling, literally, that you are spinning out of control. so horrible. after...
  21. quincy
    Thanks for responding. I cannot confirm for sure that it was PF Chang that glutened me. It was the only place I had eaten that day however. It did come out on the PF Chang plate so something major would have had to go wrong. I work with someone who waitresses there at a different location and I will ask her if it is possible that there could have been a...
  22. quincy
    I love PF CHangs; it's the only place I have never had a problem, until this past Monday. I ordered the beef with broccoli lunch bowl and the egg drop soup. I noticed that the sauce was quite good, and tasted "better" than usual. within a short time I began to get my tell-tale pain under my right rib cage. I can definitely tell my right intestine is tender...
  23. quincy
    That's an interesting point, though I am a male with Celiac. I go to a celiac support group in New Jersey and there are a good number of men there, though definitely outnumbered by the females. Part of the danger for guys is that they will ignore their symptoms for many years until it gets to the point where they have no choice. I did not do that myself...
  24. quincy
    I am also taking Norvasc since the summer. It took a month or so to adjust but I have had decent results so far. I switched to the generic and I made sure the generic company pharmacy dept checked for gluten and they told me it was gluten free. I can check the name of the generic company and post back again later. as an aside, has anyone had any gum problems...
  25. quincy
    Yes. I was dx'd in April and got worse after that. My advice it to stay away from milk and dairy for awhile depending on what level damage you have to the brush border of your small intestine. I wound up getting used to the Pacific brand of their Almond drink. at first it is just awful but I have gotten quite used to it now and it satisfies my milk cravings...
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