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quincy

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Everything posted by quincy

  1. quincy
    my labcorp score is 3.47. I really know nothing about thyroid issues but I will be getting a test soon for t4 and t3 and reverse t3 so I don't know what those scores are yet. any help here would be much appreciated.
  2. quincy
    Did you get any resolution to your bladder symptoms? I still am improving but its still uncomfortable: it feels like a UTI but there is never any infection or blood in the urine. some of us might have painful bladder syndrome (PBS) or Overactive bladder syndrome (OBS) or IC interstitial cystitis. my naturopath doctor recently emailed me this statement...
  3. quincy
    . sorry to hear about all of the problems you have been having, and lets hope the diagnosis gets resolved soon. I know what you are going through as I have been there. It took months for my upper right quadrant pain to go away after going gluten free. It is true that if your intestine is inflamed or enlarged it will put pressure on your back and its very...
  4. quincy
    I just had the ELISA test for 90 foods. It showed "servere" for dairy, casein, and peanuts and moderate for egg yolk. Its a good tool I think for those with ongoing IBS because it may indicate that there are other intolerances beside gluten. It cost me $195 dollars through my doctor (functional medicine).
  5. quincy
    I know this is an old thread, and since there are MANY threads on this topic, I thought I would just respond to this one rather than start a new topic I have been gluten free for almost 2 years. Just prior to my diagnosis I went through a bout of pressure, urgency and frequency. Urologist could not find any infections but did a CT scan. nothing showed...
  6. quincy
    are you also dairy free and are your probiotics dairy free? Depending on what you are eating, there are many foods that will ferment in your gut, bypass absorption in your small intestine and pass into your large colon undigested which can cause dysbiosis and bloating, gas etc. check out the FODMAP diet and perhaps switch to low FODMAP foods for awhile...
  7. quincy
    Yes, I have heard of him as well. I was not aware of the potato being on the bad list though. Millions of asian people eat rice every day and I don't think they have these problems so it makes me question the entire premise. I think it has more to do with the processed foods that we eat that cause inflammation rather than the actual grain (other than gluten...
  8. quincy
    I take Ultra Flora DF (dairy free) by MetaGenics. It has bifido, lactobacillus and acidophilus. Its a good one. when you first take a probiotic you can feel a little loose bowel but your body will adapt pretty well. If you have constipation this will help alot.
  9. quincy
    IC means Interstitial Cystitis, its a condition where the mucous lining of the bladder breaks down and causes burning, frequency and urgency of urination. it sounds like if sediment is being released then it is something different than IC. They say that taking magnesium supplements or having a multi vitamin with magnesium will help with the calcification...
  10. quincy
    for me, the benefit would be great if not eating pizza and donuts and bowls of pasta with butter would be healthier (which I know it is), but I eat all this organic stuff, whole foods, and when I get a craving for carbs, ok so I was eating a bowl of rice chex w cinnamon. and still my cholesterol is so whacked! sometimes I have gone to my buddies' house...
  11. quincy
    I take probiotics for sure. and yes I think antibiotics mess us up and can perhaps start the celiac damage process. I was taking cipro actually a few months before I began getting abdominal pains to the point where I had to get an endoscopy and thats when they discovered the damage.
  12. quincy
    I have been gluten free since my diagnosis in April 2010. But I have had alot of problems because I had several bad sinus infections, then it was other things that they put me on antibiotics for and that has really caused me alot more trouble...
  13. quincy
    yes I have the pot belly too. people on the IC network say the pot belly is typical of the IC condition. Do you have bladder problems as well? urgency, frequency, collicky feeling above the pubic bone? I am avoiding all citrus fruits because the IC diet says to, so I follow the foods listed on FODMAP and the IC diet. it is getting ridiculous because...
  14. quincy
    yes I have been on the Daily apple forum and it was interesting. My nutritionist was talking about avoiding foods that ferment quickly in the gut and that are not absorbable and wind up going past the small intestine into the large colon and causing alot of havoc. It seems to make sense. it is called FODMAP, though I really cant pronounce what it stands...
  15. quincy
    I am 2 years into being gluten-free and I STILL have the dining out problem. I just don't trust anyone when they say they are being careful because in reality they are NOT a gluten-free kitchen. I feel safe in a PF changs because they have been doing gluten-free for a long time. I don't really have any answers about this except to speak up no matter what...
  16. quincy
    yeah doctors are clueless sometimes. I went to an endocrinologist in 2006 cause I knew something was wrong and I thought it was low testosterone. He basically ran some blood work and told me I was depressed. If he had checked my vitamin D back then my celiac might have been discovered perhaps 4 years earlier than it was. instead I wound up being given lexapro...
  17. quincy
    yes there is a guy in Texas who charges 69.00 to join his web site plus 12.99 a month. Celiac has put a hole in my wallet as it is, so it kinda sticks in my craw that he would charge people who have suffered from celiac to gain access to his info. I am sure he is a nice guy and he seems sincere but to make a living off of people with a disease is beyond...
  18. quincy
    I just posted a new topic before seeing this one, sorry. If I go grain free where is my source of carbs? I hear that you need to have a certain amount of carbs, correct?
  19. quincy
    There is a guy on the internet who claims that ALL grains are problematic not just for people with celiac. I find this confusing because the major celiac docs do not suggest this. On top of it, this guy is charging ALOT of money to join his "society". what gives with this. I get his free stuff and now I am afraid to eat rice or corn products which...
  20. quincy
    I suffered from horrible canker sores my whole life. about 10 years ago, I discovered that an ingredient in toothpaste called Sodium Lauryl Sulfate was in most toothpastes to make them foam up, however some people are sensitive to this irritant. in fact. this chemical is in many soap and shampoo products and causes skin irritation. Many canker sore sufferers...
  21. quincy
    yes, I have been cramping in my bladder for months now. I am going for bladder re-training therapy and bio feedback. Its awful not to be able to drink a lot of water because my bladder just freaks out. My pt said that almost half her bladder re-trainig patients have celiac!! I have bladder wall thickening and she said its probably collagen thats built...
  22. quincy
    Just prior to my celiac dx I was running to the bathroom for both reasons. I seemed to have had the painful overactive and spasming bladder while having loose bowels. I had many scans and tests but the doctors did not tell me what was wrong with my bladder. AFter seeing 3 urologists, the last one told me my bladder wall was thickened and since I had no...
  23. quincy
    glad you were finally diagnosed (dx'd). I was dx'd in april 2010 and I had bone pain in my ribs, lumbar spine and hip and it turns out I had bone density loss in all of those areas. I would advise you find a GI doctor to test you for vitamin definciencies. If you are experiencing bone pain, I would recommend a bone density scan, but if that is not feasible...
  24. quincy
    mostly chicken, salmon, nuts and greek yogurt. I also sprinkle milled Chia seeds on my yogurt. I do use a protein powder occasionally - it's rice protein powder. I will check the container to see if its CGF, though I don't think it is. I don't drink it that often. are there any protein powders that are certified gluten free?
  25. quincy
    I hope you heal faster than I have. Its taken me more than a year to settle down and I am dealing with the residual affects such as loss of bone density, reflux and a sluggish gall bladder... I am at least tolerant of dairy again after 18 mos gluten free.
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