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quincy

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Everything posted by quincy

  1. quincy
    I went through a terrible period of anxiety leading up to my dx and for months afterward. I had to take meds for it. Low B6, folic acid, and Vitamin D are contributing factors so make sure you get all of your levels checked so you have a better idea as to where you stand. Essential fatty acids that you get from fish oil etc are also key to healthy brain...
  2. quincy

    ARCHIVED Ttg Test

    quincy replied to Annie4439's topic in Coping with Celiac Disease

    My TTG was 51 in April 10. My last reading as of Dec 2nd was a 4. So it sounds like going from 171 to 34 is quite good in 4 mos. It takes time for the numbers to go down but if you are very strict about gluten it will come down to negative soon. dairy does not affect the ttg number, its just that dairy is not digestible if you have villi damage, which...
  3. quincy
    yes agree. I drink the Pacific brand almond milk, its much less expensive at Trader Joe's. Tried the coconut milk too... yuck and the D was terrible... go almond!!
  4. quincy
    sorry for the late response: I use an enzyme that bought through my nutritionist but you can get it online. Its called DigestzymeV by Ortho Molecular. Jarrow has a good one too if you don't want to spend as much money. also, the probiotic I use I got from the health food store. Its called Ultra Flora Plus DF by Metagenics. Your local health food/organic...
  5. quincy
    very true. the more "whole" unprocessed foods you eat the better. I would do the research on Prilosec and other drugs of its class. they are not intended for long term use and can cause b12 deficiency and bacteria overgrowth over time. To ween off correctly consult your doctor. I basically had the time release pellets in a capsule. I would open the...
  6. quincy
    Yeah, I found out last year at age 48. talk about mourning a loss. After the initial shock of hearing Celiac for the first time and learning what it does to you, it all kind of came rushing at me at once. Everything suddenly made sense but it was too late to go back and live my life again without gluten... I spent all of my childhood sick and skinny and...
  7. quincy
    Good posts. Before diagnosis, my first symptoms several years ago was acid reflux, especially from bread and oatmeal. After being on prescribed prilosec for several years, I was able to slowly ween myself off of it as I went gluten free and my symptoms began to subside. I then thought I could eat any gluten-free item and I would be fine. Wrong. I started...
  8. quincy
    thanks for that bit of detective work. I only eat their donuts as a treat once in awhile and I like that they are dairy/casein- free as well. I noticed for the first time (duh) that they don't have the certified endorsement on their box. So I wonder if they were to purchase new equipment (much more expensive for them) could they get even lower than 5ppm...
  9. quincy
    I have only tried their donuts and I have not had any problems and I am extremely sensitive. Kinnikinnick is another issue that would be interesting to explore, perhaps I will give them a call about their video for their reaction to the forum members' posts and questions. or perhaps if you have been sickened by their products, you should contact them and...
  10. quincy
    yes Skylark, I feel the same way; I would not be as alarmed if the facility has areas (hopefully well segregated) that process gluten products and other areas that are non-gluten, but the same machine, to me, is a considerable risk to me. IMHO
  11. quincy
    sorry about that. I have not posted links before. I try not to do that on forums but this was a good video clip. this will take you to the company's "TV" site just scroll down to find the one that says "The Importance of Dedicated facilities" hope it works this time....
  12. quincy
    I checked with the store and all the olives at the olive bar do not have anything containing gluten and there is no salad bar nearby to it. I don't normally buy from salad bars anymore, it's too risky for my taste and this was a one-time occasion for the holiday party I had. So I believe it was the Trader Joe's French String Beans which warns that the equipment...
  13. quincy
    Welcome to the community Jen. I was dx'd in April and I just got my latest blood work showing my antibodies close to zero, and that is just in 8 months. I also had villous atrophy but not sure it was total as yours was. There is a lot to learn, so do alot of googling and read the blogs posted here and the topics you will learn alot. This is the place...
  14. quincy
    It seems that many of us have become quite sensitive. I just posted a new topic in the Food Labeling topic area of the forum that has a link to a video that shows how much is involved in sanitizing a machine that processes wheat. check it out and see what you think. It really raised some basic questions about the food industry and what they claim. How much...
  15. quincy
    I came across this promotional video on Kinnikinnick's website. Very effective advertisement for their company for sure, but is it heavy-handed, so to speak? Though their donuts are so good they don't have to convince me to buy their products! But do you think it is too over the top and misleading, or does it show a legitimate issue of what is going on at...
  16. quincy
    This was my first Christmas gluten free. Being a bachelor who ate out ALOT, I used my stove for the first time. yes, it's true. My sister came up from NC and she prepped the turkey for me so all I had to do was put it in my oven. I am glad to know that my oven works.... haha. The rest of the family chowed down on stuffed turkey and the typical Italian meal...
  17. quincy
    This is a timely topic for me. I just recently was at TJ's and was about to buy their tomato sauce. When I looked on the back of the jar I saw the warning that the equipment used was shared with wheat containing foods. I put the bottle back. I then went and bought their French String Beans in the frozen section. Later that evening I steamed and sauteed...
  18. quincy
    my best guess would be that perhaps you are reacting to mold or an allergen that is in the straw. My understanding is that it is the grain kernel of wheat (someone please correct me here if inaccurate) so it doesn't seem like you would be exposed to any gluten in the sense that we understand gluten ingestion/exposure. I have a terrible grass pollen allergy...
  19. quincy
    Thanks Shezatrip for the kind words. yes, I take a powder formula recommended by my Nutritional Doctor and it helps my gut rebound. It is interesting how similar my story is to T.H.'s I am now 49 and my doctor suspects I was celiac from age 6 or 7. It's hard to know, but I remember YEARS of canker sores. my childhood was spent tolerating terrible canker...
  20. quincy
    I had my tell-tale pangs last night in the upper right quadrant where most of my original inflammation was when I was diagnosed. That means I ingested some gluten but not sure where it came from. my question has to do with foods processed on lines that also process wheat. I tried TJ's frozen French string beans and didnt even think to check the bag....
  21. quincy
    I was using Gi Revive powder to soothe and heal the gut. It is a bit pricey but you might want to try it for a few months and see if it helps. It contains L-Glutamine as well as N-Acetyl Glucosamine, Chamomile, Slippery Elm bark, Cats Claw etc. Its made by Designs for Health. I use it now only when I get glutened as it helps soothe my gut and relieves alot...
  22. quincy
    Before my dx I was eating regular oats every day thinking it was good for me. After dx I tried to eat BRM gluten-free oats like you but I could still not seem to tolerate them. I guess everyone is different. I seem to remember reading that the Celiac Sprue Assoc does not recommend that anyone w Celiac eat oats in the first year after dx, but Columbia Celiac...
  23. quincy
    I take it once in awhile, perhaps I should take it regularly. I take coQ10 regularly. The brand I use is from Designs for Health because its supposed to have the best absorption rate at only 8%. I seem to be sleepy all the time so not sure if it really works
  24. quincy
    this must be common because I have experienced day time anxiety about accidental glutening then having dreams where i ate something like pizza or bread or cake....
  25. quincy
    after my diagnosis in april of this year the main things that improved my healing was a good digestive enzyme, probiotics and something called GI Revive. you can order it online. also, stay away from dairy based on your level of intestinal damage. all dairy, including dairy in processed foods will cause you alot of distress. It seems I felt worse for the...
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