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quincy

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Everything posted by quincy

  1. quincy
    I have been gluten free since May 1st 2010. I was taking 20mg of Prilosec up to that point and had to keep taking it for at least several months. However, I went to a doctor who practices Functional Medicine and she put me on a regimen of Digestive enzymes with meals, a fantastic gut healer/soother called GI Revive, and a multi vitamin that contained more...
  2. quincy
    yes, CF has been working on one for quite some time, but apparently they got some things wrong and had to make some corrections but it is on the way to being released soon. It is a gluten-free as well as soy dairy and egg allergy sensitive as well. my understanding is that in Europe, caramel coloring can be derived from sources other than corn. most...
  3. quincy
    I use the balsamic and olive oil for dressing. even then, I have to check the balsamic vinegar because the CF uses one that has caramel coloring and the product is from Italy. it never ends it seems. now I have to find out if caramel coloring in vinegar is safe etc.....
  4. quincy
    Cheesecake Factory is in the process of re- doing their soon-to-be released allergy menu for people that are gluten intolerant, soy, eggs etc. The waiter had an old un released version and found that the beets are not safe for celiacs.
  5. quincy
    I have been ordering the French Country Salad at CHeesecake Factory thinking it was safe. I eliminated the candied pecans and the goat cheese and had chopped egg and chopped apples instead. I ate the asparagus and the beets. After several attempts at ordering it, the waiter finally told me that the beets were not gluten-free. They were glazed. Ah HA!!!...
  6. quincy
    Hi Dennis, welcome to the forum. I was dx'd in April. I felt worse for the first few months after going gluten free. It's like your system is screwed up and it takes time to peak before the auto immune response starts to settle down. So just hang in. One week is only the beginning unfortunately... but i am doing SO much better but it took until the 5th...
  7. quincy
    I was dx'd in April and in June I had a bone density test. 49 yo male with osteopenia! very low D (11) and Iron is low too. u might want to ask for bone density test. the exercise is good but you need to re-mineralize because it is possible that the lack of absorption of minerals, calcium and d has caused some leaching from your bones. don't mean to alarm...
  8. quincy
    my tTG was at 51 in April and was recently at 8. not bad for 5 months of being gluten-free... yours will come down as well.
  9. quincy
    reflux is what drove me to the doctor in the first place along with the burning sensation that never went away. turns out I had gerd, hiatal hernia, and gastritis, duodenitis and voila, Celiac. After being on omeprazole (prilosec) for several years, I am no longer taking anything for acid reflux except an occasional tums. Seems like the gluten containing...
  10. quincy
    I suffered from canker sores for years.seems like every month I had a horrible one that needed to be burned with silver nitrate. I have found great success with a brand of toothpaste that does not contain SLS (sodium Lauryl Sulfate) which has been shown to be an irritant. the canker sore formula toothpaste I use is expensive but it has been such a blessing...
  11. quincy
    hmmm. liver, kidney function normal as far as I can tell. complete blood panels all show normal levels. Functional Medicine doctor feels that the all the vit D is being utilized to rebuild bone from the osteopenia. not sure if that is a valid conclusion but she is a chemist/internist/oncologist so I hope she is right. in the meanting taking the Vit D3 1...
  12. quincy
    great thanks for the info. I am switching to Vit D3 10,000 IU's 6x's a week instead of the D2 50,000 IU's.
  13. quincy
    I am 5 months gluten-free and my recent blood work shows the antibody level went from 51 to 8 with the other indicators still positive (can't remember which ones they are). So I am heading in the right direction with the celiac numbers. However, my Vitamin D levels went down!! from 16 to 11.... after a summer in the sun almost every day, 50,000 IUs...
  14. quincy
    the enjoy life tortilla I had was just folded in half but it was really tasty because it was grilled.
  15. quincy
    I had a quesadilla once with the enjoy life brown rice tortilla and it was delicious because they somehow grilled it with olive oil or something. I have tried it microwaved and it was pretty chewy however. as far as Mission I wasn't aware that there were issues. I thought it was ok, but glad you mentioned that so I can do some more research on it....
  16. quincy
    Sorry to hear of your dx, but glad you know what to do. I was dx'd 5 months ago and have seen several nutritionists. The reason I say several is because I wanted to find the best consensus and advice. SO it is imperative that you find a good nutritionist. I also would suggest you find a Doctor of Functional medicine in your area. if you google Function...
  17. quincy
    any thoughts to having a dairy intolerance? if you put milk in the tea and the banana bread was made with milk ingredients. I get the same reaction to milk that I do with gluten... just a thought. most early grey has a special flavoring but its a natural substance. u have to check all herbal teas as some of them have barley.
  18. quincy
    I was dx'd in April and mornings were the WORST!! I also went from having a good appetite in the am to nausea and not really wanting to eat until after noon. I had to finally break down and take klonapin, which in addition to calming the awful anxiety I was having, it got rid of the nausea and brought my appetite right back. gosh, it was just a few months...
  19. quincy
    I was also diagnosed a few months ago at 48. Last summer I distinctly remember pain in my right hip. I knew something was wrong. a year later I was experiencing pain in my spine and ribs as well. my lumbar area was a mess. after dx I had a bone density test and was dx'd with osteopenia. question to you then is: have you had a bone density test? hang...
  20. quincy
    I went gluten free in late April. I had many of the similar symptoms. nausea, dizziness, spacey, D etc. I was under the impression that I was going to bounce back right away from removing gluten but instead I felt worse before I started to feel better 3 months later. still have some anxiety but I get through it each day. some talk about gluten-withdrawal...
  21. quincy
    Hi, sorry to hear about your dx. mine was in April and I am going through the same thing as you are. I am conflicted about dairy now also. I was dairy free (or so I thought) for awhile so in August I started increasing my intake of dairy and it came back to bite me... hard. My doc said to stay away from high fat dairy such as Ice Cream etc. several things...
  22. quincy
    I was recently diagnosed at age 48 and was shocked. I wound up having a biopsy before a blood test because I had not even heard of celiacs. I assumed an ulcer and gerd like the rest of my family. I have not read all of the posts here so perhaps this was said already. My advice would be to get tests for all of the possible negative outcomes, especially...
  23. quincy
    I go to Columbia but I brought with me the blood work confirming. However, you can have your GP write you the script for the Celiac AB panel. You can also call Columbia to ask them what specific tests they prefer to see. I know that some labs are better than others about the correct tests.
  24. quincy
    not odd at all, just poor choice of words on my part. By odd I meant coincidence. I was just having pain in rib cage and was going to post and saw your post. sorry for the confusion... don't think you are incoherent at all!
  25. quincy
    All my attempts to reintroduce dairy have failed since being dx'd in April 2010 w celiac disease. I have told my GI doc several times that even yogurt and hard cheese will make me sick. not right away sick, but within a few days, the celiac disease symptoms are aggrevated. My last attempt I wound up with a fever for 2 days and horrible D a few days after...
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