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Gutsy Girl

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Gutsy Girl

  1. Gutsy Girl
    Kathleen and Kayo, I was wondering the same thing. I have celiac and SIBO. I wonder if perhaps one type of bacteria - the main classifications I know about are hydrogen versus methane producing bacteria - tends to have different preferences so that folks who have methane bacteria do better on SCD and folks who have hydrogen bacteria do better on FODMAP...
  2. Gutsy Girl
    Check out Dr. Pimmental's info and you'll come up with some answers. Rifaximin is good stuff for hydrogen producing bacteria (the diarrhea type) but I was told by my GI motility doc that it's not nearly as effective for folks who have methane producing bacteria (constipation type). Both are types of bacteria that can be found in SIBO. Are you making...
  3. Gutsy Girl
    Was diagnosed with Celiac 2010 (had started gluten-free diet 100 percent strict in mid-2009), and in 2011 was diagnosed with SIBO. Lived almost all my life with chronic diarrhea until several months after going gluten-free. Then after a few months, I had my first run-ins with constipation which was a new animal to me altogether. Its gotten worse and worse...
  4. Gutsy Girl

    The jaw pain adds to my headaches, can`t wait for joyful day to wave goodbye to ataxia,no one can know how we have suffered, wouldn`t wish on worst enemy,Terri

  5. Gutsy Girl
    Geez...does nobody but me have this problem? Any solutions out there?
  6. Gutsy Girl

    ataxia has been improving a little, so YAY! but headaches and jaw pain fairly intense. Hoping for a happy new year.

  7. Gutsy Girl
    Ox On Roof... (why the name? you have me curious!) Just wanted to say that reading your posts is entirely entertaining (perhaps I'm easily entertained...???? ) and I've been chuckling . Thanks for posting.
  8. Gutsy Girl
    Having big time gut problems, we tend to be acutely aware of how emotions affect our GI system. I personally lived my whole life from childhood in school, through college, and in the workforce KNOWING that if I experienced almost any emotion rather strongly, I was going to have to make a mad dash for the loo and pray I arrived in time before the package...
  9. Gutsy Girl
    Hey, something caught my eye in the OP's post. You drink wine once a day or sometimes. I've found it hard to find gluten free wine. Please correct me, others, if I'm wrong. But wine is very often CC and on the general no-no list unless you've DEFINITELY found a brand that is 100% gluten free. Is it possible that this is a source of the problem...
  10. Gutsy Girl
    Yea, this is great advice. To simplify, you may consider using Dr. Bronner's magic castile soap (unscented) for cleaning everything - it's made for cleaning literally everything and when I'm reacting to stuff, that's my stand-by for hair, face, body, floor cleaning, even laundry. Helps make the crazy itchies go away. Read all labels twice. Sometimes...
  11. Gutsy Girl
    Jenny, I know next to nothing about thyroid and I've never heard of the LEAP MRT so will have to google that when I have time and am more rested and alert. Glad you've gone gluten free. But so sorry you're having trouble. *Compassionate smile.* I feel for you. So...you said you're cooking with butter and doing simple stir-fry sort of deals...
  12. Gutsy Girl
    Ravenwoodglass, I could not agree more!
  13. Gutsy Girl
    Oh my! I can't imagine what I would go through if I had to eat gluten again...or then again...I can but it's a hellish nightmare. I don't intend to speculate or judge you as to the "WHY?"s of your decision to go back to a glutened diet. I'll just tell you a little about me and my experience, as it seems that's what you're looking for. My wheelchair...
  14. Gutsy Girl
    Oh wow, that's interesting! I was using Trader Joe's toothpaste (trying to avoid SLS), and ended up with bleeding painful gums every time I used it! Maybe there's a connection here. I didn't want to go back to big-brand toothpastes, but I saw no other options. Interesting that someone had a similar reaction. Hmmm....Sorbitol?....
  15. Gutsy Girl
    Cooking in a cast iron pan can also help. Whatever pans/pots you cook with...the metals in those pans and pots end up in your food to some degree, so cast iron can be really helpful for this. Of course, with a cast iron pan some people don't use detergent so be very careful about cc issues if it's always been YOUR pan. I tolerate iron supplements some...
  16. Gutsy Girl
    I think my middle name should have been "Gurgle". I think I'm intolerant to the whole world.
  17. Gutsy Girl
    Hi pathway... Nice to meet you. Glad you came onboard. I think more people need to know not only about Celiac Disease and Gluten Intolerance/Sensitivity, but also about gluten ataxia...as it's probably the only known reversible or at least non-progressive form of ataxia if gluten is eliminated 100%. I think there are lots of people out there suffering...
  18. Gutsy Girl
    It is amazing how our stories are almost IDENTICAL - you're my twin I think. LOL. Although I don't look like a rooster (though I assume you don't either, but if you do we can chalk that up to celiac disease too, right?).....Just joking. Someday, when I have the guts (pun intended), I may pay a FRIENDLY (ha!) visit to my neuro-quack and let him have...
  19. Gutsy Girl
    I have always hated that stupid phrase "when life gives you a lemon, make lemonade". Seriously...I hate that quote!! But if you look at the social worker's statement POSITIVELY, you can say, "Yes, my life is out of control, I feel like *fill in the blank* and I want to live more normally. I believe that certain foods cause this discomfort (whatever...
  20. Gutsy Girl
    Wow, you're only 17 and you're able to handle this peacefully?! GOOD FOR YOU!!!! I was NOT at this point until I was about 24 or 25 years old (26 now). (Don't let me puff up your head, now. LOL.) *HUGS!* I'm happy for you and hope that over time, things will improve in your relationship with your Mom. For the first time, my Mom is starting...
  21. Gutsy Girl
    Is Rachel-24 still around? She sure had some great ideas. I'm divulging an incredibly long thread very slowly (the "OMG...I think I'm on to something" one). It's like a billion pages long. LOL.
  22. Gutsy Girl
    Through keeping a food journal to the T, I realized I was reacting with brain fog and zombie-ness and bloating, among other things...to POTATOES. Of all things, I would have thought potatoes were pretty safe, bland, etc. A few weeks ago, I cut white potatoes and all white potato products out of my diet entirely, and I'm happy because I feel clearer...
  23. Gutsy Girl
    Oh, now that's no fun! Sorry!
  24. Gutsy Girl
    I'm nodding with understanding, yet chuckling too. Whenever I go ANYWHERE and need to eat, it looks like the carnival is coming to town. Wheelchair and/or crutches, cooler, water jug, utensils and plate for me myself and I, bag of pain medicines and TENS unit/pain relief devices, etc. Talk about being "different"! Wheelchairs, crutches, and things...
  25. Gutsy Girl
    Your Brain on Gluten This is interesting. ..gluten can actually cause UBO's (unidentified bright objects) on the brain that show up in MRI scans. It can also cause "pins and needles" or "crawly-like" feelings all over the body...something a lot of us struggle with. - PH Your brain on gluten: Should you lay off the gluten before it's too late? There...
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