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kwylee

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Everything posted by kwylee

  1. kwylee

    ARCHIVED Frustration

    kwylee replied to landofoz's topic in Coping with Celiac Disease

    I personally think paying attention to personal care products is extremely important. It doesn't make any sense to remove every speck of gluten by merely paying close attention to your food. Many, many people get hit with cross contamination by shampoo, conditioner, lotions, etc. True it doesn't invade your gut via your skin, but the problem is very real...
  2. kwylee
    I work within the life insurance industry so not myself an expert on how health insurance is viewed by carrier underwriters. But there is someone with my firm who deals with this and I asked her about how gluten intolerance and celiac are viewed in her realm. First, she suspected that your insurance is not a group plan because she said that individual...
  3. kwylee
    Hi doublelsega! I see this is your first post, welcome to the board! I happened to pick this up because I'm subscribed to this particular thread, and although you may certainly get some response by others, but you may also want to repost in a brand new thread so that it could be viewed by more folks who have possibly experienced what you have. Or a helpful...
  4. kwylee
    I was a major gluten & dairy hound prior to having to change my diet, and I was like you: never would have guessed that I could be happy not being able to eat the foods I practically lived for! But you know what I found? Once I got into the new way of eating (found substitutes that now I love) I was so much better that it became second nature and now...
  5. kwylee
    I've lost my Mom as well and I know exactly what you're feeling. Even though I hadn't yet stumbled upon my gluten & dairy issue at that time, it affected me not only emotionally but physically for a couple weeks. Sounds like you have more than your share of stress right now and that can't be making it easy for your system, especially so close to having...
  6. kwylee
    My biggest problem with this situation isn't how lynxigirl is handling it, but the notion that the meeting is mandatory and not only was the announcement that she cannot bring a snack made clear via public forum to her co-workers, but all this is compounded by the thinking that she may be pressured into ordering/eating food to be fully compliant at the event...
  7. kwylee

    ARCHIVED New Symptoms

    kwylee replied to debnak's topic in Coping with Celiac Disease

    There's no way around this. You're going to have to follow the diet.
  8. kwylee
    Thank you! YES!!! This is the type of situation in the workplace that drives me to the soapbox. That GM needs to be acquainted with laws (hopefully you're in the U.S.) that govern his actions.
  9. kwylee
    No 2 hour glucose test, just the old comprehensive blood panels and metabolic tests. My blood sugar was between 86 and 90 on a few tests in the last few months so the PCP dismissed it. Diabetes runs rampant in my family and I'm going to mention this to the PCP - IF THE GUY EVER CALLS ME BACK!!!!!! I left a message for his office on Monday. This is nuts...
  10. kwylee
    So I wonder if there is some residual effect to starting or stopping hormones. A compound pharmacist once told me it could take up to 6 months in some people to feel full effects of hormone shifts. Hmmmm. This hormone connection is interesting and something I had almost dismissed, now not so sure. I've used a topical compounded prescription for a couple...
  11. kwylee
    I'm definitely going to research that angio lymphatic edema issue. And that thyroid issue keeps coming up in my research too. I've left a message for my doctor to have a complete thyroid panel done. If he doesn't agree, I'll just have it done on my own. Skylark, so interesting that you mention lithium. I'm not on any meds at all except bioidentical...
  12. kwylee
    I have been strictly gluten free for coming up on 2 years now and overall doing fine. Since last November though, I've experienced a dry mouth to varying degrees, sometimes it ebbs off for a few days but then returns with a vengeance. Water helps somewhat, but most of the time I have to drink more than my stomach can handle to feel any minor relief. My...
  13. kwylee
    You are right about how lucky you are!!! All that, and Disney trip too! Have a good time, and let everyone know how it was when you return.
  14. kwylee
    Not sure there's anything to be gained by stressing over the notion of unnecessary gallbladder removal issue. I do know that I've read many who say that gluten affected the GB to the point of removal, so you'll never know what came first, chicken or egg. Right now, being gluten AND stress free will help your system recover. Once things settle, you'll get...
  15. kwylee
    Withdrawal? Absolutely!! After I was cold turkey with no trace of gluten for about a week, I went through another week of exacerbated symptoms, for me that meant dizzy, foggy even worse than before, intestinal distress, etc. And every system is different, so withdrawal for some could be light or even non existent, but I always tell others to just ride it...
  16. kwylee
    Hi and welcome!!! Sounds like you are well on your way, given the help and moral support you are receiving from your employer and co-workers. That will come in handy. I've read hundreds and hundreds of posts here, and the two chief reasons someone in your situation does not feel well at this point is either cross-contamination (don't rule it out just...
  17. kwylee
    As with all like dilemmas, the way you handle this is going to boil down to what makes YOU feel most comfortable. Like many kind gestures, they are really born out of the giver's own need to feel good about themselves and not primarily about how it makes the recipient feel. Keep that in mind before you decide how to handle this in a way that is true to yourself...
  18. kwylee
    Yes, withdrawal is definitely an indicator that you are intolerant to gluten. The degree to which you feel those symptoms vary from individual. I personally had a really hard time the first couple weeks, but I lived through it and I'm a BIG weenie about such things so if I could do it, anyone can. I didn't have a positive diagosis for celiac either...
  19. kwylee
    Well, I personally wouldn't pay money to join a society when it will really come down to how YOU feel when you ingest grains. I think I have read that particular individual's information out there and as I recall, he says something like the gluten in rice and corn which may not adversely affect some, may affect others. I do have problems with rice and...
  20. kwylee
    What you say makes sense to me, about hard to get a negative anti-gliadin result from Enterolab, given that I think most people are intolerant to gluten to some degree, or perhaps the test is just as unreliable an indicator as everything else. But you are so right. Those results as well as feeling much better, turned out to be excellent motivation to stay...
  21. kwylee
    I have a question and I've often wondered about this. A couple years ago I did test negative through biopsy and bloodwork prior to going gluten free. Most of my symptoms were neuro but I mentioned to a (very) young doctor that the dizziness that had plagued me for years seemed to worsen after eating, so that was among the tests he ran, but he concluded...
  22. kwylee
    Thanks for the lead and thinking on the sweet rice flour. Now the trick is going to be to find it locally. Perhaps I'm misreading the previous posts about the chef's question, but I meant that a chef's training on the principals of preparing a roux would certainly include wheat flour in the recipe. As my recent pathetic roux attempts would attest...
  23. kwylee
    The only thing I make with rice paper is actually one of my favorite meals. I use it as a wrap made with breast meat chicken, avocado and grated carrots. It's all in the dipping sauce though, usually a mixture of sweet and spicy, depending on my mood. It takes a little practice to work with the rice paper, but so worth it!!!!
  24. kwylee
    I would love it if someone could make a gluten free, dairy free, soy free Krispy Kreme donut that tasted just like the original. I only ate those donuts on certain Sundays and sometimes on vacation, but it would be nice to know it could be done.
  25. kwylee
    I don't know, the chef's question about the roux made perfect sense to me. I'm from New Orleans where we have made roux based meals long before the cooking channels made them a household word. In fact, one of my first memories is my grandmother teaching me how to make a perfect roux and it's a serious science down here, just the right mixture, color and...
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