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Latest Celiac Disease News & Research:
Everything posted by kwylee
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I truly understand your angst but I'd rather someone ask me questions as opposed to doing their own research. There's so much out there and I had to dig for quite some months before I reconciled the disparity in info available that was actually usable for my specific needs. I recently had to travel for work and loved it when a chef came out to question...
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I agree that you have to be careful not to diagnose yourself merely based on what you read on the internet. Doing so, it's relatively easy to think you're dying from cholera or some horrifying disfiguring disease. But plain baking soda in water is nothing more than "bi-carb", which has been used for ages for upset stomach. In fact, since alka seltzer...
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ARCHIVED Soy
kwylee replied to Bob4962's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Here's a link I found interesting. It seems to be first speaking about milk products but then includes soy in the mix. My brain's reaction to soy is the same as gluten, lightheadedness within 10 minutes. Possible this explains why? Open Original Shared Link -
ARCHIVED Newly Diagnosed
kwylee replied to Teachermndiaz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
First, if there is more celiac testing to be done, then you should not discontinue gluten until after all that is completed. I have a feeling that others will pipe up about that. Secondly, I never had intestinal trouble either (although I would consider a daily bout with diarrhea to clearly be intestinal distress, as this is NOT normal). 98% of my gluten... -
I'm not a chemist but I have tried this, supposed to be a measure of your stomach acid level. On an empty stomach drink a solution of 1/4 teaspoon sodium bicarbonate (plain old baking soda - like Arm & Hammer) in an 8-ounce glass of water. After you drink you measure to see how much time elapses before you burp. Burping within one to two minutes is...
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ARCHIVED Gluten Symptoms After First Time Eating Gluten Free Breads?
kwylee replied to josh052980's topic in Coping with Celiac Disease
I found that when I first reintroduced rice and corn into my diet, I started feeling less stellar overall, no stomach issues but just dragging a bit the next day. Now I don't eat much of either at one time, and I don't eat both on the same day and I'm just fine. Most days I just stick with my potatoes that have always been my mainstay carb, along with fruits... -
This is so true. I don't have a similar background as you, Googles. I grew up in a pretty well balanced family (as families go, haha), so that wasn't it for me, but I lived with an undercurrent of "dread" for a number of years before I finally found the gluten connection. Now I always gauge my level of health by my feeling of well being, and have found...
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ARCHIVED Need To Vent About My Symptoms
kwylee replied to Strawberry-Jam's topic in Coping with Celiac Disease
Perhaps if you gave up all packaged foods for awhile and see if that makes a difference. I personally liken packaged foods to eating out. There's always a chance for some type of contamination that is out of your control. Just a thought. -
I agree with Mamaw. I would have wondered about your friend's comment about so many people having celiac these days, if it would have been delivered in the vein as, "I see, another one of those gluten avoiders I see in the news". But since it was followed up with a clear and understandable reason for the upswing in diagnoses, I just gathered from your post...
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ARCHIVED Sad, Worried, Sad, Sad, Sad, Worried, Etc.
kwylee replied to varthurs's topic in Coping with Celiac Disease
First of all, this is the place to come when you're down and need to talk to people who understand. I think it's okay and normal to go through a short period of grief over what seems to be such a tremendous life change. But once you get the hang of it, those changes more than make up for feeling better. You asked how you were going to survive this? The... -
ARCHIVED Why Do We React With Anger When People Do Not Get It?
kwylee replied to Chad Sines's topic in Coping with Celiac Disease
Why Do We React With Anger When People Do Not Get It? I think your answer is in your question. They're reacting. Years ago I was property manager for a high rise office building downtown. One day in a staff meeting a building engineer commented that he couldn't keep up with the machines dispensing the feminine products in the buildings' ladies... -
ARCHIVED New Problem Since Diagnosis
kwylee replied to Googles's topic in Coping with Celiac Disease
May not be related for you, or could be a different food item you are eating, but the same thing happened to me and turned out to be a probiotic I was taking that contained soy. -
If it turns out either of those candies are gluten free (sorry, I'm not where I can easily search the internet, and I personally don't eat those because of the dairy) it still be a case of cross contamination if they are produced on shared equipment. Seems I've heard that about snickers before. For me, dairy (and soy) quickly became the same to my body...
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I have tested negative for Celiac as well, but I did test positive on another showing that my body was producing antibodies to gluten, which means that for years prior to my antibody test, my body would be on the defensive anytime I ingested gluten in any amount. I had become lightheaded all day every day, but gluten intolerance manifests in many ways and...
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ARCHIVED My Husband Doesn't Get It
kwylee replied to eborzecki's topic in Coping with Celiac Disease
I think that's ingenious! -
I just looked back at some of your posts and notice that last week you may have still been eating a bit of gluten. If you are now entirely gluten free, you may be experiencing withdrawal. It is common and will pass but you must stay gluten free. If you are not gluten free, then you cannot evaluate any other food intolerances until you are 100% so. Either...
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I admit I do not have personal experience with anorexia, but is it possible that if you could isolate what is making you so miserable in the evenings, there may be a replacement for it, e.g., a packaged food that contains soy could be exchanged for one that is soy free? Are you eating foods that are packaged? If so, I'd start with one of those as a possible...
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ARCHIVED My Husband Doesn't Get It
kwylee replied to eborzecki's topic in Coping with Celiac Disease
Nothing. -
For awhile I was waking up with nausea every morning and couldn't figure out why. It would go away as the day went on but would be back each morning. I started keeping a detailed food diary and found it was soy content in probiotics I was taking every night before I went to bed. That the nausea is happening around the same time each day suggests an...
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ARCHIVED A Farewell... Beating My Symptoms
kwylee replied to josh052980's topic in Coping with Celiac Disease
So glad to hear that!!!!!! Thanks! -
ARCHIVED A Farewell... Beating My Symptoms
kwylee replied to josh052980's topic in Coping with Celiac Disease
I totally understand what you are saying but certainly sorry to see you go. I think the board could benefit from a member and poster who is not Henny Penny, not assuming the sky to be falling with each off moment. Because there are so many people out there, intolerant to gluten, on this board and yet-to-be on this board, who could use a level head in times... -
ARCHIVED How To Cope After Negative Blood Results
kwylee replied to Hailiesmom08's topic in Coping with Celiac Disease
On the issue of sensitivity, I was the same way prior to removing gluten. It seems that now my body has become extremely fine tuned, and while most of the time we curse it to have this sensitivity, it's really our marvelous human system that's doing its job, signaling when we ingest something that can hurt us and striving for that perfect balance that creates... -
ARCHIVED How To Cope After Negative Blood Results
kwylee replied to Hailiesmom08's topic in Coping with Celiac Disease
Please consider that a negative test for Celiac in no way gauges whether your body is reacting negatively to gluten, and you have proven to yourself that this is so. By making the intelligent choice to listen to your body for the sake of your health and that of your daughter, know that you are gluten intolerant and that is the grandaddy condition that doctors... -
ARCHIVED gluten-free Daughter With Anxiety
kwylee replied to GFmomanddaughter's topic in Coping with Celiac Disease
Your daughter's "tummy burning" is exactly what I had for 2 weeks after accidentally drinking a cup of herbal tea that contained barley malt. I have been strictly gluten free for almost a year and a half, and I never even had measurable stomach problems before going gluten-free (just neuro), but now of course I feel it when my body comes into contact with... -
ARCHIVED No One Will Come Over To Eat At My House
kwylee replied to GFreeMO's topic in Coping with Celiac Disease
OK, got it...the food is important - and it seems that you are really most upset that they won't come to you and you feel left out. But there must be things you can make that don't include olive oil or rice milk. You seem to indicate that you and your Mom were very close at one point, with all the lunches. It also seems that you are really (understandably...