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Latest Celiac Disease News & Research:
Everything posted by Almendra
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' Well, what I was trying to say is that they only even try to serve/notify potential gluten free customers when THAT ONE chef is in. Don't even try to serve it when she's not. SO let the GFers know when it's safe to come. In the interest of my safety, I would value less actual claimed time of gluten free availability in exchange for the restaurant being...
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I almost wish that the Olive Gardens that have ONE chef who really gets it would just put up a "Now serving gluten-free." sign on their webpages/storefront when that chef is in so that their capabilities are less in question than their availability. If someone can't/won't get it, in the interest of our health and safety, I wish they wouldn't even try.
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ARCHIVED Dating A Celiac
Almendra replied to CNA5400's topic in Parents, Friends and Loved Ones of Celiacs
If you use a lip balm, make sure it's gluten free. -
ARCHIVED Soft Lips By Mentholatum
Almendra posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I LOVED that these were one product that I could buy anywhere that actually say "Gluten Free" on the label/boxing. But, I soon realized that my lips would get irritated whenever I used them. Did this happen to anyone else? Or is this just a completely different allergy all my own? -
ARCHIVED Gluten-Free Cosmetics
Almendra replied to GFLindsey's topic in Gluten-Free Foods, Products, Shopping & Medications
I do think that using these products is on a personal trial and error basis. You have to consider the following: *How sensitive you are (are you still getting sick while using a certain product every now and then - when there seem to be no other possibilities) *How prone you may be to make an absent-minded mistake that could end up with "trace ingestion... -
Olive Garden does get abysmal ratings when it comes to gluten free.
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ARCHIVED Gluten-Free Cosmetics
Almendra replied to GFLindsey's topic in Gluten-Free Foods, Products, Shopping & Medications
After calling Neutrogena, Revlon, L'Oreal, Maybelline, etc. I started to pick up a pattern. Will they put their assurances in WRITING. Many will not. From some companies, I got a positive answer from the call line, and a we cannot comment or assure you of that in an e-mail when I sent a separate e-mail request to the same company. I repeatedly got answers... -
ARCHIVED Questions On Coping In General
Almendra replied to josh052980's topic in Coping with Celiac Disease
It IS hard to forget when you don't feel just right. I try to do something fun that does not have to do with food. Something active that can get my mind off any discomfort. Many times, by the time I'm done, I feel better. There is life outside food. Meanwhile, about 8 months into my diagnosis I was still not doing great occasionally, I started looking... -
ARCHIVED Got Any Funnys From Friends/family Trying To Understand?
Almendra replied to Chad Sines's topic in Coping with Celiac Disease
Me: I can't have gluten anymore or I will get sick - so no wheat, rye, or barley. Aunt: Well, you can still have white bread. Me: Nope. It's made from wheat - the flour is just bleached. Aunt: Hmmm. So, you can have self-rising flour. Me: [silence]... uh... no... also made from wheat. I could just see her sending me a big... -
Is there a hotel or hotel chain that "gets" it yet? I can find the occasional restaurant where I feel safe, valued, and understood. BUT... are there any hotels that are making the leap?
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seemingly silent... but sometimes, oh, sometimes... silent but deadly So sorry, couldn't resist.
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I hope that they find an answer for you. There is such a thing as unresponsive Celiac Disease - I think it's Refractory Disease (or something like that). Joe C (Kid Rock's friend) had that, I think. There is also a DNA test to see if the gene for Celiac is even in your DNA (being a genetic disease). If it's not, then, from what I understand, then...
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So true. Pot lucks are danger zones because other attendees are not plugged in to CC. My sister-in-law has a child with a severe milk allergy - so she understands. She tries out gluten-free recipes, but acknowledges that her kitchen is not a safe one for me to eat from. She just tells me if it tasted good or not.
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It is so hard. A friend offered to make something gluten-free for me for a shower she was having. I just had to confess to her all of the "accomodations" I've had to do in my home kitchen to keep me safe (after trial and sickness, trial and sickness) - and assure her that I CANNOT expect anyone to do that. Truly, my mother is the only one who takes...
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Thanks for the info on the bakery. I'm a newly diagnosed Celiac/Colitis, but an old nearly 65 yr old that doesn't understand how to blog. I probably shouldn't order from that bakery as I've gained weight in the past 2 mo. Please be my friend. I need help with this
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ARCHIVED Weight Gain On gluten-free Diet
Almendra replied to Almendra's topic in Related Issues & Disorders
luvs2eat - lol - Mac n' cheese vs broccoli - WW340 - So true about how scary it is to be a hungry Celiac - stuck somewhere without "safe" food. That's a good point. Gfreeatx - I've wondered about the sudden new ability to absorb, but, honestly, for me I was always able to put on a few pounds - but loosing them used to be easier. Trish... -
ARCHIVED Your One Best Money Saving Idea
Almendra replied to aeraen's topic in Coping with Celiac Disease
Ditto on the rice and beans for cheap gluten-free eating. We use a rice cooker and crockpot for the dried beans. I found a recipe for crockpot beans that's been my favorite for about 10 years now, even before celiac diagnosis. (If anyone wants it, please message me.) We change it up with different kinds of beans- or different kinds of cheese to melt... -
Before I knew I had celiac, I was having trouble at a job performing at my best. In cubicle world, there is no privacy to deal with certain things so I did the following things to make it (this was before I knew that Celiac was the reason). I was so tired and fatigued - so when I felt I was about to collapse on my desk, I resorted to bathroom stall power...
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ARCHIVED How Do I Talk To My Boyfriend About Kissing?
Almendra replied to WinterSong's topic in Coping with Celiac Disease
I hope this is just a learning curve for him. Everyone has different symptoms - long term and short term. I get pains about 1/2 hour after a glutening and other side effects can last for a few weeks later. This does help me to pinpoint the source of gluten. Some people actually vomit. I've heard of a case where a person with no apparent symptoms... -
ARCHIVED Need To Vent, Shoulder To Cry On And Everybody
Almendra replied to txplowgirl's topic in Coping with Celiac Disease
In the end, his promises to you don't seem to mean anything. Maybe it's time to make promises to yourself. When I was getting out of a toxic relationship, it helped to have a talisman, a physical symbol of my own promises to myself. I bought myself a ring that I liked (not too pricy - but enough for me to take it seriously) and gave myself a promise... -
ARCHIVED Need To Vent, Shoulder To Cry On And Everybody
Almendra replied to txplowgirl's topic in Coping with Celiac Disease
Wow! If he doesn't even care enough about himself to take care of himself, then how the *!#$ is he going to be able to care enough about you to take care of you? -
ARCHIVED How Do I Talk To My Boyfriend About Kissing?
Almendra replied to WinterSong's topic in Coping with Celiac Disease
Paranoid? Really. My hubs was with me during my diagnosis AND seen my waist expand inches in hours post-glutening - and noticed it shrinking later (often weeks later). He's seen me go from bubbly to miserable after a glutening. He gets it. But really, should a girl have to get kissed after he has a big bowl of pasta - and have him watch what happens... -
ARCHIVED Why Are Cosmetics So Frustrating?
Almendra replied to gfreecarboholic's topic in Coping with Celiac Disease
June 18 of 2010 I received this e-mail from Oil of Olay: We know Celiac is a serious disease, so we want to give you clear information regarding the use of our beauty care products. If wheat and/or gluten aren't directly added to a product by us, these ingredients won't be listed on our packages. Like many companies, we often purchase the scents for... -
Apparently, there's been a study that determined that about 80% of people who go on the gluten free diet gain weight during the first year (they even mentioned this on the popular Dr. Oz show). Some (including Dr. Oz) say it's due to the food. I really think it's due to revenge-on-the-world eating -- where a Celiac finds a food she/he can eat and just...
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ARCHIVED Why Are Cosmetics So Frustrating?
Almendra replied to gfreecarboholic's topic in Coping with Celiac Disease
I am not worried about absorbing it into my skin. However, because I seem to be very sensitive to the smallest ingested amounts, I am worried about the trace amounts that would be in makeup. Mascara can flake off. What if it lands in my food? And face lotion/makeup... Who would really have to worry about glutening from licking that last morsel off...