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shayre

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by shayre

  1. shayre
    Bummer. I didn't know that they were gluten-free safe this whole time...too late.
  2. shayre
    Well...what the heck? Why...on earth...would they use barley water??????? Omg, are companies just trying to do the bare minimum to get the gluten-free seal? Don't they know that they could drastically increase their sales if they didn't do stuff like that? Sorry, I'm a bit beside myself now..... So I am a little confused. Does that mean that the 5ppm...
  3. shayre
    Oh yes. I ditched the Rice Dream long ago! I drink Almond Breeze now. Yes, I seem to just...not feel as good...on gluten-free oatmeal. I quit it to be safe. As far as Udi's granola I am fairly certain of a gluten reaction, since I slowly went downhill everyday...then was better when I stopped. My reactions are NOT severe most of the time...like fogginess...
  4. shayre
    Hi. Okay, so I learned that I react to gluten below 20ppm. I am basing that on the fact that I react to some gluten-free foods that are obviously allowed that much. I am trying to narrow down how many ppm that I react to. I seem to react to Udi's, so I'm wondering if anyone already knows how low they actually test? 10ppm? 5ppm? I reacted to the muffins...
  5. shayre
    Oh Senokot...AWFUL STUFF! I remember those days, when I was trying to relieve myself. I hated it. I am not in your situation, bu to me...no wonder their is leakage! That stuff for me was just as bad as XLAX! The cramping and liquid diahrrea. It was gross. I would consider Miralax and talking with your doc about it. I know that docs put kids on Miralax...
  6. shayre
    That's a hard place to be in. Our house went gluten -free, because mixed just wasn't working. I did notice a big difference in how I felt when we started being very careful with the gluten, but I did notice more difference after going gluten-free for all. Maybe some people could manage it, but we couldn't. It will also depend on the sensitivity level...
  7. shayre
    I don't usually like peppers in my spice, but I seem to feel digestive issues after the Fox mix and ground onion. I also love the Italian Herb mix, but that might cause me slight distress...hard to tell cause I use it everyday. I have a drawer full of others but I have not used all of them. Thanks also for the gardening tips:)
  8. shayre
    I used to have a high-end pet boutique that I sold a few years ago, and we carried the high-end brand of wheat free, gluten-free foods. My cat threw them all up. She is old and has liver disease. We resorted to a Purnina Indoor wet and dry because she keeps it down. Now I can't remember what brands were or are gluten free. I know that Wellness is, because...
  9. shayre
    I wanted to quickly take an opportunity to thank all of you, and tell you that I luv ya! You are almost like extended family. You are always here when I need you, and when I go away and come back...you are always willing to help. Thank you for that:) I had an "unofficial" celiac disease diagnoses... with zero proof on paper. The little piddly handout...
  10. shayre
    I may not be great in the diplomacy dept, but why can't you print off the info of rice dreams site? I bet you could print off hundred's of people's response the stuff from THIS site and slap that down in front of her. If she is catering to the gluten-free community then she needs to be aware that MOST of us are more sensitive than her!!!!!!!!!! She can...
  11. shayre
    Might I also add into researching "gluten ataxia". I don't know a lot about it, but it is a disorder where gluten severly effects the brain and causes lesions. Maybe one of you know more about it?
  12. shayre
    Just adding my 2 cents... My kids are not constipated, but I was sooo constipated since I was a kid. I was raised by my dad, so he never really noticed...and it wasn't an issue that I wanted to talk about. I could go for a week or 2 back then without a BM...more as an adult. As a kid, I didn't really know that it was a problem. In my late teens I started...
  13. shayre
    I had genetic tests done for myself and my 2 boys, but with our seperate specialists. Mine also assessed "risk" along with the gene detection. I was really upset when both of my son's genetic test came back. It only showed that they have 1 gene and did not assess risk...with alelles...and all of the more detailed stuff that I don't understand. I don't think...
  14. shayre
    Bad reactions for me on Rice Dream!!!!!!!! I didn't know why I kept feeling worse everyday while I was drinking it. I saw somewhere that they process it with barley from other people with celiac disease or gluten allergies. There was a website bashing it. I forgot about it by the time I was drinking it. Then I remembered...oh yeah. I decided after getting...
  15. shayre
    I'm still keeping an eye on my children, but their tests for celiac disease were negative too. I'm not sure that I believe that. However if this helps...I have been "unofficially" diagnosed with celiac disease in the past 2 yrs. Before that...Hashimoto's Thyroid. I am now perceived as having RA and possibly Lupus. Yes, there is a definite link to autoimmune...
  16. shayre
    My son had a UTI too, but he was potty training at the time. And it was for the reason stated above, and he just had to quit holding it. I have 2 boys, and they are ALWAYS hot! The clothes come off as soon as they come in the door. I have a hard time keeping clothes on them! I find that to be odd for a little boy to be cold so much. I am cold all of...
  17. shayre
    That might be a good idea...if I can find them? I would also like to try walnuts.
  18. shayre
    Yes, I do question the super sensitive thing, but I think that I've been doing okay on Penzey's only spices. But I really would like users of Penzey's to say if they've reacted. I have tried to grow my own spices in pots on my kitchen window sill and I got too grossed out when I realized that there were these little teeny tiny bugs ALL over them. I threw...
  19. shayre
    I have tried the Namaste cookie mix a couple of times and seem to do okay with it when I don't eat the entire batch! I am wating to add peanut butter. Has anyone done this, and does it change the baking time or temp? And how much to put in?
  20. shayre
    Oh, you guys...I'm having a positive day today, but I'm all too happy to join in! I am SICK of not being able to go out to eat. I am sick of not being able to let my kids join in other kid's gluten fun without getting glutened myself. I am sick of my son asking me if we can stop for a burger or have regular pizza, and having to crush him. I'm tired...
  21. shayre
    I took my kid to play at Monkey Joe's bounce place. I packed gluten-free food for all of us, because they cannot touch it around me or I will get nailed too. I asked them if I could bring in my own food due to allergies. They looked at me like I was the biggest liar! I had to ask 3 different people and a manager several times, but they kept ignoring me...
  22. shayre
    I've had good experiences in Indianpolis too. They are also my #1 restaurant. I order take out twice per month. I did get glutened once, but I didn't know if it was glutened or food intolerance. What happened was that I was dining in the restaurant and the wait staff and manager told me that the gluten-free calamari was safe for me. I told her that I...
  23. shayre
    I actually had a good experience the other day in Indiana. I came to meet some family,and just prepared myself not to eat...just enjoy the company. The waitress asked why and then what food allergies. I told her that I'm allergic to everything and that it's no use. She brought me the allergy menu anyway, and I ordered grill chicken with asparagus. i...
  24. shayre
    I ate there too, and they were trying to be very accomodating, but maybe I have too many issues. I can't have dairy, soy or corn either, so my choice ended up being a salad with steak on it plain. They informed me that no chicken and only 2 cuts of steak were gluten free. No spices or sauces. It was okay, and I didn't get sick. It feels that I had to talk...
  25. shayre
    Hi. Well, I DOOOO take it all with a grain of salt. I have fructose issues myself. I just don't have big gluten reactions a lot of times...unless I know I got really glutened, so I'm left wondering? I get muscle aches and pains and foggy brain, but I am also sorting through RA and possible Lupus issues. It's just hard to sort out. I know that there are...
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