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Kay DH

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Kay DH

  1. Kay DH
    Thanks for the information, Rebecca. I'll check it out.
  2. Kay DH
    I wish they had tests in which you didn't need to poison yourself. The genetic test doesn't require this, but it only indicates if you have the HLA DQ2 or (and) DQ8 gene(s), not if celiac is activated. I doubt it would help if you map out what you eat in terms of nutrition, because doctors are very lacking in this knowledge, too. Perhaps a note from a nutritionist...
  3. Kay DH

    ARCHIVED Is It In My Head?

    Kay DH replied to Braewyn's topic in Doctors

    It is a common thread on this forum. Doctors have a generally very-low level of knowledge about celiac and gluten sensitivity. The GI I went to said I only have a 10% chance of celiac because of my (multiple) symptoms when I eat gluten and genetics (HLA-DQ8 gene). He decided I have diverticulitis instead (negative) and only did 1 endoscopy biopsy (negative...
  4. Kay DH
    Yes. I run bread that is stale or didn't turn out (hockey puck) through a food processor and then store it in bags in the freezer. If the cornbread flavor is strong, then you might need to add more spices when you make things, but it should work out. Even coffee cakes can be pulverized and used as crumb toppings for pies.
  5. Kay DH
    Only about 3% of people that have celiac are diagnosed with it. The 97% were not tested, or the tests were negative. Even if a person does not have celiac they can still have an immune response to gluten, or gluten sensitivity. Your symptoms are very similar to celiac symptoms. My symptoms started more than a year ago, after getting the flu. I've been...
  6. Kay DH
    Celiac and gluten sensitivity are overwhelming in the beginning, in terms of food, emotions, and social life. It gets better and easier through time as food choices and other knowledge becomes automatic. You might try a basic diet first, avoiding processed foods, to limit cc. It is also less expensive this way. If your girlfriend hasn't done so, it would...
  7. Kay DH
    You can also open the tin for everyone at work to "enjoy." That would make you look generous while getting rid of the nasty molecules. People are basically clueless, even if they are supportive. I have a friend that was going to bring alcohol-free wine to Xmas, thinking that regular wine had gluten. She is actually quite smart and does cook, but can't...
  8. Kay DH
    I'm from Lakewood. There is a Denver chapter (Open Original Shared Link)for celiac, and they do have various fun events. I imagine there are support groups, but I am new to gluten-free too. You could contact them for info. Perhaps I can help. I've been a bit focused on celiac this year, the grieving, friends not understanding, purging the house of gluten...
  9. Kay DH
    You could contact them at the (above) website and ask for the recipe. I liked the book because it included some of the science and reasons behind recipes. Such as the pasta needs to have a texture like silly putty before it is rolled or extruded. It is my first pasta experience, so I may have had some beginners luck, too. When we made the batch it was...
  10. Kay DH
    Perhaps they have improved the Breadman motors since two of them burned out on me. The Cusinart is a good bread maker. I've been using my Zojirushi for years, and I use it a few times a week. The old Breadman motors couldn't take my abuse (I just threatened to spank the bread makers. I never actually did it).
  11. Kay DH
    I'll admit that I'm prejudiced against bread makers with weaker motors. Two of them have burned up on me over the years. I like the more manly bread makers. Zojirushi is a lot more expensive, but I use it so much that it is worth it for me. It doesn't have a gluten cycle, but I programmed one in.
  12. Kay DH
    Mine was a year in November. Cooking and eating at home is pretty easy, creative, and fun. I voted hard just because of how my diet has affected some work and social friendships, problems with eating out, and it is harder than other diets. My friends sometimes exclude me from gatherings because they "don't have any thing I can eat", even tho I bring my...
  13. Kay DH
    Last night we had gluten-free spaghetti fresh out of a pasta maker. It was great. I used a pasta recipe from "The Gluten-Free Italian Cookbook" by Mary Capone ( Open Original Shared Link ). My SIL lent us her (unused) pasta maker. I won't add the brand except to say I expected a pocket fisherman attachment on it. We had to add a bit more tapioca flour...
  14. Kay DH
    Probably not. The cheap breadmakers tend to be underpowered and non-programmable. gluten-free bread only needs one knead cycle, so it is useful to have a breadmaker that has a gluten-free option, or can be programmed. Otherwise it is better to just use the oven.
  15. Kay DH
    Symptoms are a bit different for each person. GI symptoms tend to resolve fairly quickly, and joint, muscle, neurologic, skin, and other symptoms can take longer. Mine take about a week. Your doctor should refer you to a dietitian knowledgeable about celiac, because gluten is hidden in some processed food. CC is a big problem, especially in the learning...
  16. Kay DH
    A primary ingredient in soy sauce is fermented wheat, it provides much of the flavor. They should call it wheat sauce instead of soy sauce. For soups, the wheat adds body, it thickens the soup slightly. It can also add taste, such as wheat used to make smoke flavoring. Companies are migrating more to xanthan and other thickeners. Some use cornstarch...
  17. Kay DH
    That there is. I've been gluten-free for about a year now and most things are automatic, but I still get frustrated. It is irksome having to be on guard at restaurants and any time I have to eat out (as opposed to wanting to eat out before). I really wish my friends would not cook for me, but some still want to (no, you can't use the spoon you stirred...
  18. Kay DH
    If gluten makes you ill, and you feel better off gluten, then that is the best proof you have celiac, gluten sensitivity, or allergy. You can have secondary problems such as yeast or other inflammation. You can check your symptoms when you get ill relative to candida or celiac. I went completely gluten-free in January. I thought I was gluten-free for...
  19. Kay DH

    ARCHIVED Odd Symptoms

    Kay DH replied to GFreeMO's topic in Coping with Celiac Disease

    I know. It can be so frustrating. I tell my friends not to cook for me and why, but sometimes they want to and I sometimes get sick from it. The other side is that I love to cook, but some of them won't even try gluten-free foods. I tried to convince one that my gluten-free gravy using turkey broth didn't taste any different with corn starch than if I...
  20. Kay DH

    ARCHIVED Odd Symptoms

    Kay DH replied to GFreeMO's topic in Coping with Celiac Disease

    If I get minor cc then I get similar symptoms. Had some soup that a friend made and swore was gluten-free on Saturday. I stopped her from stirring the soup with a spoon she used for the wheat noodles-- she said she didn't touch the soup. So, possibility of cc from the soup, the pot she cooked it in, cutting board, or whatever. No D, just gas, cramps,...
  21. Kay DH
    As you exclude gluten from your diet, you may become more sensitive to it (cc from foods that are supposed to be gluten-free, eating out...). Even foods that are labeled gluten-free but have been processed in a plant that also processes wheat... can be problematic. You may also find that dairy causes problems for you until your GI tract heals. That you...
  22. Kay DH
    Still, call your gas company and have them check the outside meter and your house. We had a gas leak for 1.5 years because the gas line on our new furnace was leaking. The installer didn't tighten the connection. We couldn't smell the gas (actually the "rotten egg" gas added so you can smell it), but friends could. We called the gas company three times...
  23. Kay DH
    Getting glutened makes me depressed and gives me mood swings; these are predictable and go away within 4-5 days. There can also be a detox period after going gluten-free. Celiac and gluten sensitivity are new realities, and it can take a while for them to hit you. By three months my friends were telling me they didn't invite me to parties because they...
  24. Kay DH

    ARCHIVED Anemia

    Kay DH replied to MissBecky's topic in Related Issues & Disorders

    Next time you go to the doctor, have him/her check your B vitamin and thyroid levels, too, along with iron.
  25. Kay DH
    I was talking with a friend yesterday whose SIL got the flu, followed by Lupus. I suggested she mention the gluten-free diet to her SIL, in case she was sensitive to the proteins and abstinence helped the Lupus symptoms.
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