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Lori2

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Lori2

  1. Lori2
    When my tests were negative, the GI told me to "Eat what you want and take Imodium." After a few months, I made several decisions: 1) I hate feeling like garbage. 2) I don't need a doctor's permission to eliminate gluten from my diet.
  2. Lori2
    This is totally anecdotal. I talked to someone the other day who travels to Europe frequently. He is not celiac. He cannot eat wheat bread in the US but he can eat the wheat bread in Europe. He is convinced that it has something to do with the GMO changes to US wheat that are not allowed in Europe.
  3. Lori2
    This was your reply to my posting about my fecal tTG testing in July, 2010. At that time it was 86 units (negative below 10 units). I just redid the test and the tTG has dropped to 12 units. I have been gluten-free for a year so I think this means I'm making progress. Might this possibly mean that, even though my blood tests were negative, I might actually...
  4. Lori2
    I have a sensitivity to sugar (beet, cane, honey, agave, xylitol--my gum--dates, raisins). Cane sugar showed up as positive on an IGg blood test--the only one of the group included in the test. The others identified by elimination and symptoms.
  5. Lori2
    When I did my initial testing with EnteroLab a year and a half ago, my tTG reading was 86 units (normal less than 10 units). I just redid the test and now my fecal tTG has dropped to 12 units. If I understand these figures correctly, that would mean that the diet is working. Am I correct?
  6. Lori2
    I just got results yesterday from some food testing. I show an "intermediate immunologic reactivity" to rice--my go-to food. That explains a lot of my problems. Just something more for you to consider.
  7. Lori2
    Sometimes looking for a food intolerance is worse than looking for a needle in a haystack. I don't think there is a food out there that someone isn't allergic/sensitive to. My personal no-no's besides gluten are sugar (cane and beet, honey, agave, xylitol, dates, raisins), onions, tomatoes and ??????? I'm still searching for that other something.
  8. Lori2
    Is there any chance that digestive enzymes might help?
  9. Lori2
    Don't be so quick to dismiss these symptoms as emotional. You're beginning to sound like a doctor.
  10. Lori2
    Yes, I will correct that to read: I do not possess either of the two genes that my physician says are necessary for a celiac diagnosis. That doesn't mean that I agree with him.
  11. Lori2
    I do not have either of the two main celiac genes either. I supplemented 12,000 units of vitamin D daily for three years to bring my levels up to a sufficient level.
  12. Lori2
    Having a doctor run a celiac panel first would be preferable. However, with no insurance and an unsympathetic husband, going on the gluten-free diet is probably your only option. With your symptoms, I would certainly give it a try. Gluten free products are expensive and are unnecessary. I personally can afford them, but do better without them. I stick...
  13. Lori2
    That test was a year and a half ago. I've been gluten free for the past year. I just sent a second fecal sample to Enterolab to get a current reading and see if there has been any improvement. Diarrhea very much improved gluten free.
  14. Lori2
    My GI's advice--"Eat what you want and take Imodium".
  15. Lori2
    I had a high TTG reading from Enterolab (86, negative is less than 20) but I do not have either of the celiac genes. So is this anything to be concerned about?
  16. Lori2
    Here are some quotes from Dr. Alessio Fasano in an interview: Open Original Shared Link LW Thanks to your team
  17. Lori2
    Here are several other things to read. A study was made of three groups: the first diagnosed celiac by biopsy, the second diagnosed non-celiac but whose symptoms improved on a gluten-free diet, and a control group. Open Original Shared Link Divergence of gut permeability and mucosal immune gene expression in two gluten-associated conditions: celiac...
  18. Lori2
    I would really recommend that you stay away from oats for a while.
  19. Lori2
    I was just reading another thread about boils. Check this out:
  20. Lori2
    I am wondering about the significance of an elevated tTG fecal test from EnteroLab. When my frequent, loose bowel movements turned into diarrhea almost two years ago, I immediately thought of celiac because my son had a celiac diagnosis as a baby (outgrew it?
  21. Lori2
    Excellent article. Thanks for posting.
  22. Lori2
    I think we're all very different. I can eat gluten-free oats with no problem, but I can't eat either Udi's bread or Larabars.
  23. Lori2
    Thank you, Skylark. Onions are one of the things that I seem to be sensitive to. I know I have other problems beside gluten and sugar. Guess its time to put some more study into fructose malabsorption.
  24. Lori2
    I tried Claussen Kosher Dills for the first time several weeks ago with questionable results. I will try again soon. Also note, reactions do not show up immediately in everyone. Mine take three days--makes it difficult sometimes to determine what got me, even with a detailed food diary.
  25. Lori2
    I've noticed it mainly in supplements. I was about to take a new probiotic this morning when I noticed "to insure the multiple strains of bacteria thrive, I've added FOS for their growth and survival." As I understand it (not necessarily correct) the FOS acts as a prebiotic.
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