Jump to content

ms-sillyak-screwed

Advanced Members
 View Profile  See their activity

  • Posts

    599

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by ms-sillyak-screwed

  1. ms-sillyak-screwed
    Hubby doesn't get it... I feel for you. And you will get the same reaction from main stream doctors. They get money $$$$ from the insurance companies NOT to DX us. They only has 20 minutes of celiac disease in medical school. And years-ago they were told only europeans get it [not] Americans. Also remember there is NO magic pill yet (although there is one...
  2. ms-sillyak-screwed
    Flavored Coffee is a no no. I have found they use SOY in many of them. And soy is bad for us. (Some are in denial here...) Oops did I say that? [giggle] Ronnie -- have you read THE PALIO DIET or DANGEROUS GRAINS? They are great book and will guide you to some answers. They go into secondary food intolerence or allergies; like soy, legumes and night...
  3. ms-sillyak-screwed
    Open Original Shared Link
  4. ms-sillyak-screwed
    I've GAINED 7 LBS... I'll share with you what I'm doing... Open Original Shared Link I have been seeing my Chiropractor and he knows a little more about this then I do. He is bone crunching me 3-times-a-week. What he has me doing is having a big meal for breakfast. For me I can't do the peanut butter, ice cream or any of the ultra yummy things...
  5. ms-sillyak-screwed
    Pharmaceutical Companies Links I’m not sure why our brainstorming thread went no-where. Open Original Shared Link Almost 1,100 people have read it and no-one wants to become pro-active?! I have great hopes for change and was ready to move with it. But it seems no one else wanted to partake. Oh well… LYNNE tiredofdoctors!!! -- Asked for contact inf...
  6. ms-sillyak-screwed
    I also agree with everthing posted here. A few things I'd like to point-out since you are a newbie. I've been fighting this around 6 years now Gluten & Dairy Free and (free of soy, legume and deadly night shade veggies for almost year now)... If you go for a blood test -- you MUST have gluten in your system and even at that you can come back with...
  7. ms-sillyak-screwed

    ARCHIVED Gi In Florida

    ms-sillyak-screwed replied to floridanative's topic in Doctors

    I know a month or so is a long time. A week is plenty for some. But what I was thinking is... some of us can rent houses/villas or some type of housing that we can stay a week two or more. Or even do house swaping with Italians. It might be easier for some of us Celiac's that have serious secondary food allergies that have real issues with questionable restaurant...
  8. ms-sillyak-screwed

    ARCHIVED Gi In Florida

    ms-sillyak-screwed replied to floridanative's topic in Doctors

    I contacted that Dr. B on the west coast of Florida (a while ago) and I was treated the same way by the girl answering the phone and told me the same thing... Writing to the book publishers and telling them the info is NOT correct, is a good idea. But unless the book is RE-printed the bad information is still circulating... It's like yesterday I read a...
  9. ms-sillyak-screwed
    Thank you Lynne!
  10. ms-sillyak-screwed
    --
  11. ms-sillyak-screwed
    I agree with everything that is said here. I would just like to add something here. I also developed a serious thyroid problem. And I found out the hard way the drugs they give us, either have corn, gluten, or dairy in many of them. So please check if you are put on the medication. Another warning -- the dye used in the thyroid pills most times are...
  12. ms-sillyak-screwed
    -
  13. ms-sillyak-screwed
    -
  14. ms-sillyak-screwed
    jenvan -- Thank you for the kind words. The serum was made up two different times. The first time I had the SHOT (I didn't know) but I had a cracked back tooth and the doc said the reason for the reaction. I took anitbiotics and for the first time in my life taking them I felt better, much better following knocking whatever was in my system out. After...
  15. ms-sillyak-screwed
    I was just surfing th net lookinf for soy free chocolate and found this I'd like to share with you. Open Original Shared Link
  16. ms-sillyak-screwed
    --
  17. ms-sillyak-screwed
    I really want to keep this thread and our GOAL alive. I wanted to arm myself with more knowlege and have finished several really good books about celiac disease. I am creating a web site for us to put our plan into play without the 'big guys' watching our every move. It will be a site that doesn't cost anyone anything, just out of the public view. If...
  18. ms-sillyak-screwed
    DingoGirl -- STOP SOY! SOY is poison. It is what caused me my thyroid problem and will cause hair loss. Have your thyroid checked and remove SOY from your diet. Really give it a try you'll get better. I am not kidding I promise! I just noticed your last post. What were your thyroid blood levels, if you don't mind me asking??? Because everyones...
  19. ms-sillyak-screwed
    katshow --- Just remember everyones body is different. I had the skin scratch tests and had a slight reaction from the scratches and I had a big time celiac disease reaction to the SHOTS. I get seizures and I got 3 in less then a week and a half, after having the "SHOT" to counter-at the food allergies I have. I believe the doc was a liar (for $$$) he doesn...
  20. ms-sillyak-screwed
    Lynn -- glad you had good luck! I have a thought. I wish some how we could get a copy of Dangerous Grains & The Palio Diet to the health care community. I don't have an answer how to get them to read the book(S). But next time I have the need to go, I'll ask if they read either book.
  21. ms-sillyak-screwed

    ARCHIVED Gi In Florida

    ms-sillyak-screwed replied to floridanative's topic in Doctors

    1 out of every 200 people have celiac disease!!!!
  22. ms-sillyak-screwed
    Hi all! Just wanted to update you. Well, I'm on a mission to spend at least 10 minutes EVERY day and talk celiac disease. I talk to strangers I talk celiac disease with everyone I come in contact with. One day I took my own advise (I began a thread some place here) and wrote to my local newspaper about celiac disease. It's easy! Do the same to your local...
  23. ms-sillyak-screwed
    "The Paleo Diet" Is a wonderful book that will help each and everyone of us. If you haven't read it buy it, borrow it, or order it through your local library (a inter library loan.) I just finished it. Its a great reference. And THE PALEO DIET RECIPES are safe and yummy too. "Dangerous Grains" must be in your book collection. Some how we have to this...
  24. ms-sillyak-screwed
    Cross contamination is my big thing. We think we are buying the right products but many of these food manufactures are processing the gluten and gluten free foods with the same machine and belts. They aren't clean properly. I think that is the problem I've been having with the rice flour I uses every blue moon. It is either sitting on the shelves with...
  25. ms-sillyak-screwed
    QUOTE "Response (Gwyn) - 09/26/2005 12:58 PM Thanks for contacting Folgers, Vincent. We use natural and artificial flavorings in our flavored Ground and Whole Bean versions. If you prefer decaf coffee, it might help to know we only use pure water and natural ingredients for decaffeination. So, you can have all of the flavor, without all the caffeine...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.